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charlotte-hall

Member Since 19 Dec 2011
Offline Last Active Sep 13 2013 09:26 AM
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Topics I've Started

Help Needed Please

13 September 2013 - 08:35 AM

Hi,

 

I've been diagnosed for 18 months..

Every 6 months or so when I go to see my consultant for routinely check ups I have a TTG level blood test done a few weeks before so we can discuss the result..

This time it's come back negative which I can't understand because I've been diagnosed with coeliac disease?


Given Up

17 March 2013 - 03:22 AM

I'm 16 and been diagnosed for 18 months. I'm still not even close to being back to 'normal'. I'm very strictly Gluten free and I also can't eat Gluten free oats, barley malt extract. I'm very super sensitive even products labelled as 'Gluten Free' still make me ill. I'm beginning to lose hope, my consultant said from blood tests etc I should be better as my TTG levels are back to a normal level, but nothing is improving. I still wake up every day knowing I'm going to feel ill and exhausted. I'm doing my GCSE's at the moment and I've been struggling through that, and it's totally degrading knowing that I'll most likely be feeling like this through college as well. It's starting to affect me mentally as well now and no one even understands. Most people just assume 'oh she can't eat Gluten, that's it'. Instead of realising how much it affects people when they can't do normal things from feeling so bad. And also I know I won't do the best of my ability in my exams, but throughout life I will be up against people who have had a normal life during their exams and I will never be the best I can. And the hospital aren't helping at all, I've been told there's nothing they can do and I just have to 'deal with it'. Well I can't anymore and I've completely given up.