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lisalgreer

Member Since 19 Dec 2011
Offline Last Active Sep 08 2014 02:35 PM
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Posts I've Made

In Topic: Buccal Swab Results: Any Other Double Dq1S Out There? Thoughts?

30 July 2014 - 12:54 PM

Well, I have a sibling with MS, diagnosed before age 30, and I have had some strange speech stuff, lack of balance, etc. Also, I have suffered with depression, OCD, anxiety on and off for years. I also have a lot of other symptoms like malabsorption. And I have one autistic daughter and now a son being tested for neuromuscular issues. Both of my kids have DQ1, obviously, soooo.

 

Yeah, I think it's all related, and I'm better off of gluten. I have the baby off of it too for now.


In Topic: Buccal Swab Results: Any Other Double Dq1S Out There? Thoughts?

29 July 2014 - 05:04 PM

So you were negative for the celiac genes? DQ2 and 8?

Have you had any celiac blood tests? Endoscopy?

Negative for DQ2 and DQ8. Celiac blood tests have all been negative. Haven't gotten an endoscopy yet, but I am going to try to over the next month or so. At this point, not sure I need one. The results and the journal articles I'm reading about Double DQ1 and my family history convince me to stay away from it for good.