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goblue2014

Member Since 31 Dec 2011
Offline Last Active Jul 10 2012 07:49 AM
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Topics I've Started

Does Anyone Know Of Good Remedies For A Gluten Reaction?

03 July 2012 - 07:55 PM

I have been gluten free for 7 months, but I still feel overwhelmed at times trying to keep myself away from gluten, especially since I seem to be extremely sensitive - and what’s worse is that my sensitivity has increased dramatically over the past few months. When I accidentally ingest gluten, I feel completely incapacitated and there seems to be absolutely nothing I can to do ease my gut pain, diarrhea, nausea, headaches, heartburn, hair loss, or exhaustion. Is there anything I can do or take to take the edge off my symptoms when I am experiencing a reaction? Thanks.

Jessi

New To The Gluten-Free Lifestyle

31 December 2011 - 11:07 AM

Hey all,

I'm 20, and I've been chronically ill for about 3 years now. It began with intermittent blood in my stools, and extreme fatigue. I contracted mycoplasma meningoencephalitis in April 2009, and since then, my symptoms have exploded. I have chronic migraines, constipation, diarrhea, gas, bloating, extremely irregular/nonexistant menstrual cycles, hair growth in weird places, hair loss, anxiety, depression, PTSD (from the meningoencephalitis), insomnia, inability to concentrate, joint pain, nausea, tinnitis, hyperacusis, and nosebleeds (but I'm probably forgetting some). I've also always had other issues since I was a little kid - tooth enamel deformities, skin rashes on my upper arms and back, unexplained weight gain and inability to lose weight.

I'm a college student, and at the end of this semester, I was ready to take a year or so off from school because my psychological problems and other health issues were so severe. My mom talked to my aunt, whose daughter has a confirmed case of celiac disease, and after comparing similarities with her condition, I decided to try going gluten free. I know that I shouldn't cut gluten out of my diet yet if I'd like to eventually get tested for celiac/gluten allergy/intolerance, but I feel that this was somewhat of an emergency situation. I was losing my ability to even function, and since I'm in a legal battle with my current doctor (long story), I don't really have anyone who knows my entire situation and health history well. I needed to start getting better fast or else I was looking at taking a semester or even a year off of school - and since I'm very passionate about my studies, that would have been a devastating decision for me to make. I've spent my entire inter-semester break reading about celiac and gluten intolerance, and it seems like I am a textbook gluten intolerance/possible celiac case. I also have an aunt who has celiac, and I know it runs in families, so I wouldn't be surprised if I had some sort of inability to process gluten.

I have been tested for just about every disease under the sun, all to no avail, and the thyroid blood work that I just had done about 3 weeks ago came back completely normal. As far as my medical records are concerned, the only condition I have is a very mild case of colitis, but I know that the majority of my symptoms cannot be explained by just that. I have made a full recovery from my meningoencephalitis (a very rare occurrence since most people don't survive the disease), and while some of my symptoms may be explained by any damage that has been done, in the past two weeks of my new gluten-free lifestyle, even those symptoms have subsided a lot.

My biggest questions right now, I guess, are these: Is it unreasonable for me, given the circumstances, to remain on the gluten-free diet I've started? Especially since I would like to be formally tested once I have a decent, stable doctor? Also, if I want to be tested and have accurate results, do I need to re-introduce gluten to my diet at some point? Do I even need to be tested, given all of my classic symptoms?

It's only been about two weeks since I began my gluten-free diet, and I have already seen some amazing changes in my health. My hair loss stopped almost immediately, I have more and more energy every day, my diarrhea and constipation have both ceased, and my headaches have decreased in both frequency and intensity. I have a lot of hope in the gluten-free lifestyle, and I'm sort of banking on a gluten intolerance/celiac as being what is wrong with me. Any advice you can give to this newbie would be greatly appreciated!

Happy New Year!