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Gluten Free Girls

Member Since 01 Jan 2012
Offline Last Active Jun 05 2014 09:41 AM

Posts I've Made

In Topic: 504 For Freshman In High School

23 August 2013 - 12:22 PM

Thank you to everyone for their thoughts!  We definitely send lunches from home for both my girls so our 504's don't involve cafeteria's at all.  For my 3rd grader we included frequent hand washing with soap and water after computer lab, PE, music, science lab....pretty much every time she returns to her classroom.  She has Clorox wipes to clean off her desk after any art projects. She has a routine to follow if she experiences anxiety because she has an anxiety disorder.  We included the accommodation of having a water bottle at her desk and instruction that she is not to use the water fountains.  Communication from the teacher to make us aware of any snack or birthday celebration is included along with an extra set of text books for absences.  Basically it's little things and to protect her from frequent or prolonged absences.  For my freshman in high school, I just want to make sure she is protected from absences and has a set framework for make-up work and testing.  I just hope I'm not forgetting anything!  Luckily my freshman is a type A perfectionist so she does really well and now that we are wrapping up the third week of school, she's over the hump in the sense of knowing where to go and what to do and how to manage the homework load.  I just want her to be protected from the attendance rules.  Our school district threatens to take away driving privileges.

In Topic: 504 Plan

17 July 2013 - 06:14 PM

I started this topic a full year ago, but here I am gearing up for the school year and wanted to know if any of you know the typical process of "renewing"  a 504 plan that was in place last year.  I would love to know if any forms are required.  I have scheduled meetings with both of my daughters schools but want to make sure that I have everything in order.  THANK YOU!

In Topic: Anybody Take Accutane?

27 March 2013 - 02:11 PM

I know this is an older discussion, but I have been researching acne treatments for my 13 year old daughter who has Celiac Disease.  Does anyone have information concerning what a proper protocol treatment would include for a teen with Celiac?  I took accutane in my early 20's and was diagnosed with Celiac and now have two daughters with Celiac but my daughters acne is present despite being strictly gluten free for almost two years.  I would greatly appreciate anyone's advice. 

In Topic: My Kids Are The Only Ones With Celiac Disease At Their School. Same With Eve...

01 September 2012 - 11:26 AM

My oldest daughter attends a school with close to 1000 kids and to our knowledge, she is the only diagnosed Celiac. Her peers have been wonderful and we just completed a 504 plan to make her daily existence easier while at school. My youngest daughter is in 2nd grade and attends a school with 800 kids. There is one other child diagnosed with Celiac but after a few months on a gluten free diet, the mother decided to stop the diet because it was just too hard and too expensive. Obviously I do not feel the same way. We do feel somewhat isolated and I too have reached out to our local ROCK group but similar to your situation, they do not have many events and they were unable to hook us up with other families in our area. Wait, are you in Georgia? My youngest daughter has befriended a little boy in her class that has a severe peanut allergy because they have that in common and have to follow the same cafeteria procedures. I often dream about having a family like ours over for dinner. My girls often say that they wonder if there are families just like us out there. While there may not be many now, sadly I hope that diagnosis becomes easier and then we will have more company. Best of luck to you!

In Topic: Son Newly Diagnosed And So Frustratred Already (Long Post)

01 September 2012 - 11:13 AM

Your post is all too familiar. My two daughters and I were diagnosed a year ago and we still have spells of grieving and crying. It's extremely overwhelming. You are far more normal than you know!!! I promise you that while it never will be easy, it does get easier. Our first year was tough just because you meet each holiday and scenario for the first time and you learn so much. Halloween, birthday snacks at school, Easter candy, and just the every day hurdles. You are a brave, strong Mom! I wish that I could just show up for families that are newly diagnosed and help you poor through your kitchen, walk with you through the grocery store and have a batch of gluten free brownies baking in the oven all the while. There is so much to learn and it's really left to us to research, read, and dig for all the answers. I promise that 6 months from now, you will look back at this first post and realize how far you have gone. In the mean time, cry when you need to cry, hug your boy every chance you get and keep posting on this forum because it really does help! Best of luck to you.

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