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Member Since 03 Jan 2012
Offline Last Active Mar 23 2013 03:04 PM

Posts I've Made

In Topic: Could My Couch Be Contaminating My Son?

24 February 2013 - 10:25 AM

If he is getting glutened, I wouldn't think the couch would be the first thing that popped in my mind.  I would guess eating out, grandma's house, or playdough. Maybe even another food sensitivity.    My GI doctor had a good long talk with me about keeping my sanity after my husband told her I was going crazy.  And he wasn't joking.  I had accidently given her something with hidden gluten in it (not on label as rye or barely) and it freaked me out for days.  I saw everything as poison to her.  She (who is a strict doctor) told me, "One cigarette a year won't kill a person.  One cigarette a month won't kill a person.  It is just like that with gluten. Oh, she might have a little diarreah but it won't kill her to get accidently glutened."  So when I looked at it that way, I lightened up.  Not with my gluten but with my obsession that everything was going to cause lymphoma. 

In Topic: Cleaning Furniture-Couches Etc

18 February 2013 - 11:58 AM

We are a mixed household. 3 of us are not gluten free and my daughter is. We never worry about furniture. In the kitchen, we do wipe down fridge handles, counters, etc after touching anything with wheat. We wash our hands after eating a sandwich. BUT...we don't do anything different with furniture. My daughter still has normal bloodwork showing no exposure. If that dog died 2-3 years ago, I am sure you are safe.

In Topic: Newly Diagnosed Baker

18 February 2013 - 11:49 AM

I am so sorry. I met a lady who was diagnosed celiac after her and her husband bought a pizza parlor! She now offers gluten free crusts. She makes them at home and then takes them to the restaurant to prevent cross contamination. (Not sure if that is FDA allowed but I trust that more than making them there!)
Children with autism are often on a gluten free/dairy free diet. You could make cupcakes and birthday cakes for them in addition to celiacs. I had a friend this week complain that no one made dairy free cakes! You may could just adjust your specialty. There is a gluten-free bakery that will ship to your house. You could be one of those, too! Celiacs would love a totally dedicated gluten free bakery! I'd love for you to come to my town!

In Topic: Really? Is There New Info?

18 February 2013 - 11:42 AM

Is the death rate the only thing to think about??? What about quality of life????

She will tell you her quality of life was better before. Of course, she has no intestinal symtoms and could eat a loaf of bread with no symptoms. So she would revert back to not taking her own food to sleepovers and potlucks. She'd love to be able to eat anything off the menu at any restaurant. She has broken into tears at the sight of Krispy Kreams. But she is 12 and that's just a tough age to be different anyway. So if I was to go on quality of life.....I'd let her eat gluten. But she really does good. She had the donut meltdown within the first 2 months. It's been a year now and she is doing great. I did have her GI appointment this week. I asked her about that topic at the conference. She said nothing has changed and you treat silent celiacs. She said, "they have to come up with topics to get you there." She said every year she has to go to a pediatric GI conference but there is hardly ever anything new.

In Topic: Really? Is There New Info?

09 February 2013 - 06:55 PM

You can read the whole article called "Mortality Rates for Celiacs with Persistent Villous Atrophy Similar to those with Healthy Guts". It is on the Publications and Publicity board...page 2. I don't know how you tell the difference between refractory sprue and someone who just doesn't stick to the diet. Both would have villious atrophy. Nevertheless, I am keeping my silent celiac child on gluten-free until something cures it. My dh is type 1 diabetic and the doctors are hoping in some small way this may prevent it from triggering in her. Plus the whole infertility thing....just playing it safe and keeping her gluten-free.

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