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xjrosie

Member Since 06 Jan 2012
Offline Last Active Jun 10 2012 01:13 PM
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Posts I've Made

In Topic: Intro With Lots Of Mixed Emotions

26 May 2012 - 12:35 PM

I went through something similar. I grew up with stomach aches, unexplained pains, severe anemia, hair falling out. At one point in high school I was on pills to reduce the acids in my intestine because of the sever abdominal pains I had. None of my friends can remember a time when I didn't complain of not feeling good after eating.

My daughter, who is diabetic, had testing done. Her endocrinologist considers testing for Celiac Disease routine. Sure enough, her antibodies were astronomical. Her endoscopy and biopsy confirmed. Since then, another daughter was also diagnosed. Since I had two out of three daughters test positive, I went totally gluten-free in our house. As a result, I don't hate food. I have started to lose weight, and my anemia is not as bad - even without the supplements. I don't have stomach aches anymore, and I look forward to riding my bike because my legs aren't in extreme pain. My depression is not as severe, and my hair doesn't fall out like it did before.

If you know in your heart that this is the problem, you don't need a doctor's diagnosis to go gluten-free. Do your body and your family a favor. Best wishes to you if you decide to commit.

In Topic: Nannying For Two Little Kids!

26 May 2012 - 12:23 PM

If you want to try baking, ask the parents to pick up some Bob's Red Mill All Purpose Flour. It has been the best thing to replace regular flour that I've tried. Then you can bake again!

As for eating, I would suggest finishing your meals right before getting theirs ready. Then you can eat safely and still tend to the kiddos while they're eating.

In Topic: My Challenging 5 Year Old

26 May 2012 - 12:18 PM

It has occurred to me that my daughter might have been Celiac from birth. From day one, she was emotional, hard to reason with, impossible to deal with. Highly intelligent, but near failing because she refused to do homework. I couldn't wake her up in the morning without a fight. Getting dressed, brushing teeth/hair, taking showers - a constant fight. I would have to start nagging her about two hours before when I wanted her to shower if I wanted her bathed at night. For the first two years of her life she had a big bruise on her forehead because she would bang her head on whatever was closest if she became upset. And not gently.

Since going gluten-free in December, her attitude has changed. She's started to learn her chores instead of throwing a fit because "she doesn't know how to do it" (even though I constantly coaxed her by telling her I would teach her). She does her homework without prompting. She's gone from struggling to get C's because of not turning her homework in, to all A's. She takes a shower right when I ask, even when she doesn't want to. She remembers her vitamins in the morning (deficiencies from being glutened for so long).

This is beside the health issues. She had gone from above 80th percentile down to the 15th in height and weight. In third grade she was one of the smallest children; now she's right about in the middle. Her height and weight are up into the 60th percentile now, and that's after only six months. She's gained four inches since January. Her feet have sprouted two whole sizes. She went from a size 8 to a 12 - and she's very lean. Her nickname is Bruiser. Being gluten-free has made her a healthy, happy child. To me, it borders on miraculous.


It's like having a totally different child.

In Topic: 1 Year In And Numbers Aren't Where They Should Be

26 May 2012 - 12:05 PM

I would go with checking at school. It's probably easier for the 13 y.o. to comply because older kids don't normally have parents send snacks to school for birthday parties and such.

If you haven't done so already, go to her school and talk to the principal and also any teachers your daughter has. They all need to be aware of her situation. Also, make sure that kids at school do not touch anything she eats, and she can't touch anything her friends eat. It could have gluten on it. Her desk should be wiped down after each time the class has snacks, in case her friends touched her desk while eating. My daughter's school calls me when there are surprise treats, and they send notes home for planned parties, listing everything they will have to eat with ingredients. I then have to okay anything my daughter is allowed to have. I get a lot of phone calls, lol.

Sounds funny, but no lip kisses with gluten-eaters unless they've washed their mouths first. No sharing lip balm or lip gloss. Keep her toothbrush away from toothbrushes that gluten-eaters use. I bought my daughter a toothbrush case to use, until our whole house went gluten-free.

My daughter is super-sensitive, so we've learned the hard way. I have to say, she makes me so proud because she even remembers things that I sometimes forget. She gave away a whole pack of Tootsie Rolls because her friend touched the package while eating lunch.

In Topic: Celiacs...(?) Gluten Sensitivity... Custodyand Visitation

06 May 2012 - 11:55 AM

Our six year old was diagnosed with celiacs at three... when our divorce began. She had two positive blood tests and one negative.... no endoscopy... father claims I convinced myself she has something "hard " to diagnose and threat... to get attention presumably... He won... I could not afford a lawyer... he had two. The doctors would not back up the diagnosis... now he has been given sole medical/ legal custody... I can only take her to the doctor in emergencies. He denies she has rash, diarreah, pain in her arms and legs, really bad gas... vomiting.... her stool is seldom firm and the color changes frequently...
I do not have insurrance to have an endoscopy done on myself...but I have had the same symptoms all my life... Not eating gluten is the only thing that works to make me feel completely fine... in fact I feel great and full of energy when I abstain...!
We live in a small town... medical care (and family law) here is really backward... I don't know what to do for my daughter... Her father would not admit that she had symptoms before, which I do not understand, he certainly will not now... My credibility was questioned but no proof was offered, only inuendo that I had pressed the doctor and had taken the child to the doctor "more than usual." The custody order actually said it was just too hard to maintain a gluten free diet... and that he now has control over her third party notification regarding diet restrictions... This decision is harmful to our daugjters' health... but I am barred from helping her... by law... without good reason...I am intimidated by him, all the lawyers, doctors, judges... He tried to accuse me of child abuse for not feeding her gluten. Someone help... please


First, document EVERYTHING. Take pictures, make a log, recordings...anything to keep records of her symptoms. Gather all the doctor's files you have in regard to her positive blood tests. Yes, take pictures of her poop. Date everything.

Then, contact the free legal office in your area. If they won't help, start contacting every family lawyer to plead for them to help you pro bono.

Good luck