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Adalaide

Member Since 08 Jan 2012
Offline Last Active Today, 03:59 PM
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#883786 Sad, Frustrated, Need Support

Posted by Adalaide on 11 August 2013 - 10:52 AM

I'm not going to blow sunshine and rainbows up your butt, because I'm just not like that. I have been successfully gluten free because I have a wonderfully supportive husband. I suppose I could have also done it alone. What I could not have done was manage this fighting him every step of the way, especially with him not being gluten free. We have a shared house, which takes absolute cooperation and consideration on the part of the gluten eater.

 

This sort of thing makes me fairly angry. What the hell is the problem with people who make a "in sickness and health" commitment then up and say they can't deal with it? Doesn't want to hear about it any more? Well that's just too damn bad. IMO if that is her attitude about your health, because that is what this is, it isn't food, it isn't about dinner, it is about your health, you guys have some very serious issues to work out. There are so many dinner options that are naturally gluten free that can keep you from feeling bad and no one will ever notice. Meat, potatoes and veggies, fruit and ice cream for dessert. What is wrong with things like this that she would rather ostracize you than have you be part of the family you created together?

 

As pointed out, you aren't symptomless. The damage from celiac doesn't happen overnight and the healing won't either. I didn't notice if anyone directed you to the newbie thread or not, but if not you need to check it out because it is possible with your wife's decided effort not to cooperate that you are missing some things you need to cover. You need to have a serious discussion about how to run your kitchen together to keep you healthy. It may help her to know that once basic rules are set up in the kitchen and everything becomes routine that it does become less a topic of discussion and more of a this is just part of life sort of thing. If she can't accept that you have a serious disease and this is how it is treated instead of taking a pill every day, you'll have some hard decisions to face.

 

ETA: I guess I should add that I don't want to seem all gloom and doom and crap. You just need to get your wife to be on your side. Lots of people live happy, comfortable lives with gluten eaters. I do. (That is as much sunshine as I can manage today. :P)


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#882869 Are All Smarties Created Equal?

Posted by Adalaide on 04 August 2013 - 11:50 AM

I know you checked the Smarties website but from your post I am wondering if you are saying that you are buying the Smarties brand name candy or the store brand candy. You say the label depends on what store brand you are looking at, you you mean Target brand candy or Smarties brand candy at a Target store? There is a significant difference there, especially since many large chains have their own brands with their own ingredient list which can be different with every package of similar candy.

 

The statement on a package that it is manufactured in a shared facility is completely voluntary. It is quite possible that you would put one package down and pick up another that doesn't say that and put it in your cart, but the product may in fact still be from a shared facility. Buying from reputable companies with good manufacturing processes is the best way to be safe. If you are unsure about a product or company, contact them rather than just dismissing them. A for instance is that many M&Ms will say that they are manufactured in a facility with wheat because of pretzel ones, that does not mean that all M&Ms have gluten in them. Good manufacturing processes prevent CC and allow us to consume M&Ms safely.


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#882743 New Diagnosis, Quick Question

Posted by Adalaide on 03 August 2013 - 10:30 AM

No one is going to die if they go to a party and don't eat for a few hours. So you may be hungry. So what? So someone may get all butthurt over the fact that you don't want to spend the entire party in the bathroom with exploding bowels. Again, so what? If that is the kind of people hosting the party, you can either explain to them with the patience of a saint that it really just isn't safe for you to partake and they can be understanding, or you know not to go to their parties any more. You now have a built in jerk-o-meter. (Yeah, I stole that... sue me. :P)

 

Do you really prefer to be sick, risk your long term health, spend a day (maybe more) in the bathroom and in agony, plus all the other symptoms that you may get... over someone's feelings about what you put in your mouth? Are you freaking serious?!?! If they don't like that you care about your health, they're jerks and you don't need to associate with them. Family or not.


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#882357 Can't Buy Good Produce

Posted by Adalaide on 01 August 2013 - 12:11 PM

I was just thinking that since you can't have ice cream, you can freeze a banana (it is helpful if you cut it up a little) the throw it in a blender or food processor. You don't have to add anything to it at all, but you can add a little of whatever type of milk you may be using and BAM! Ice cream! I swear, it is awesome. I was doing this all. the. time. before I had to stop eating bananas.


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#882282 Azelastine Hcl Nasal Spray

Posted by Adalaide on 01 August 2013 - 06:48 AM

Apotex is a gluten free manufacturer.

 

http://www.apotex.co...ts/allergen.asp


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#882155 Can't Buy Good Produce

Posted by Adalaide on 31 July 2013 - 09:40 AM

Can you do frozen veggies? I know it may take some legwork for you to find out but it could be a good option.


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#881745 You Can't Hurry It.

Posted by Adalaide on 29 July 2013 - 10:02 AM

Very good advice and reminding. Especially about not needlessly avoiding healthy foods that are not necessarily a problem. I personally think it is positively silly and possibly dangerous to start eliminating healthy foods from a diet without first giving your body time to begin to heal. This can lead to deficiencies that are completely unnecessary and could lead to additional symptoms that you didn't previously have. (This happened to me, although in my case the removal of certain foods from my diet was based on sound medical advice and must be strictly adhered to.) 

 

It can also take those first months to work out how to avoid CC in your own kitchen. Yes, I know you think you have a handle on avoiding CC and reading labels and no one is saying that anyone is doing anything wrong. Just... it takes time to adjust and hindsight is 20/20. Many of us thought we had a perfectly good handle on things in the beginning only to look back a year later and realize that if we went back to how we were doing things those first months we would be horridly sick again. Plus, even if you are doing everything 100% right, your body will take time to adjust. One day you'll be up, the next you may be down. You may bounce between being regular, some C and some D for absolutely no apparent reason. These things are normal and expected. 

 

I think more people should think about things in the context of what is actually going on with their bodies rather than setting unrealistic timelines. When considering the sheer amount of physical damage to your intestines, think about what it takes for your body to heal from serious injury. We aren't talking bumps, bruises and scrapes. We're talking major trauma. And the damage is rarely limited just to the intestines for those who had to fight for a diagnosis. The damage has spread to many other parts of the body, and only time will allow us to heal.


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#880735 Beware Archer Farms Gluten Free Fusili

Posted by Adalaide on 23 July 2013 - 10:26 AM

I truly appreciate that some companies have the decency to print warnings like that on their label. I can then choose to either contact them or not about their manufacturing processes and make a choice from there. But I never eat any of those products without checking. I understand being mad, but being mad at the company when they took every precaution they could in pointing out this could happen just seems pointless.


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#880724 Medic-Alert Bracelet

Posted by Adalaide on 23 July 2013 - 09:43 AM

With the tat thing, I do think that there are several relevant points about that. One is where you live, and that seems to matter a lot. Where I grew up in PA it seems everyone has one and no one cares no matter the type of job you are doing, professional or not. Where I live in Utah now, a fair number of people have them but they are not so commonly accepted which I believe is probably for two reasons. There is a strong Mormon population here and there is also a focus on professional work rather than the manufacturing that is where I grew up. Here I would be expected to cover a tat up, and I know that and accept it. I think the reason my husband is also resistant to it is because we are Mormon, although he grew up that way and I didn't which is why my attitude is more meh... it isn't a big deal, it is for a real medical reason and whatever dude. And his attitude is zomg you'd be defiling your body! :rolleyes: I think the point about it the worker and the Jewish nursing home was also a good one. Everything is about context.

 

As a general rule, we like to think our medical records are all digitized now. And sure, I can walk into the records office of any of the affiliated hospitals around here and get all of my records from every hospital and doctor's office but... Hah, you knew there was a but right? I still have to explain to every person every time I get to the hospital, a new doctor's office, ER, even if it is the same ER I've been to a few dozen times, what my allergies are. These include penicillin and latex so you would think that they are glaringly obvious and all over my digital chart in some sort of way that can't be missed right? Nope. Going for a blood draw? The first words out of my mouth have to be that I have a latex allergy. They don't check, and they don't ask. Our digital medical records are useless to us as protection when it comes to our allergies or even celiac. Mine also state with my celiac, because I made them put it in the allergy section that I absolutely can not be given oral medication under any circumstances. I doubt they'll pay attention to that when they decide they want to try to force something on me.

 

If you think your son will feel better if you have a bracelet, go for it. Especially if he hounds you about it.


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#880400 Struggling As A Celiac:(

Posted by Adalaide on 21 July 2013 - 05:32 AM

I am going to say this because I'm not sure anyone else noticed, and because someone who can be the "tough parent" needs to do it. If you want your parents to take your disease seriously, first you have to. Until you do, your parents won't, and you can't expect them to. You can't expect them to take things like cross contamination seriously, or statements like "no, just a little bit is not okay" seriously when you are willing to sit down and eat meals of fried chicken, mac & cheese, and biscuits and gravy.

 

What you think you just did was poison yourself physically, make yourself feel bad for a bit and you'll get over it. What you actually did was poison every last effort and bit of progress you ever made with your parents. What your parents now see is that what it truly comes down to, is that you simply are being picky. From their perspective now, you don't want to eat what they are working hard to put in front of you. If you wanted to you just would, after all you ate the fried chicken. And they can throw that back in your face every time it comes up.

 

What you need to do is two things. First, realize that you haven't made a choice, you've pretty much been given an edict. No gluten. There is no cheating, no sneaking, no work arounds. Accept it, move on. You need to stop thinking of certain things as your favorite foods. Either the gluten free versions are your favorites now, or you have new favorites. That just is the way is has to be, you'll be happier accepting that fact. One of my favorite things in the whole world has always been cupcakes, still is, now it is just gluten free cupcakes. You adjust your attitude or die inside a little every time you see what you can't have. Second, get your parents with you to your doctor. Now that you have done the damage of eating all of that in front of your parents you need to undo the damage. Having that discussion together can help them understand that it really is a serious disease that needs to be taken seriously. It may also help you hear it again right now since you are obviously struggling with it.

 

Remember though, you only fell off the wagon. There is no reason to stay off the wagon. We trip, we fall, accidents happen. Brush yourself off and keep walking. Everyone here is here to help. And also remember what I said first, I am saying all of this from the tough love parent point of view. (I'm doing a lot of that this weekend... teenagers. <_<)


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#880142 Struggling As A Celiac:(

Posted by Adalaide on 18 July 2013 - 03:53 PM

I can't even begin to imagine treating my own children this way. It makes me sick to think a mother could be like that.

 

My best advice is that since cooking is an important life skill for anyone, you should probably offer to cook dinner a few times a week. Nothing fancy, and you can get ideas from the dinner thread. http://www.celiac.co...t-chat/page-437 There are plenty of naturally gluten free things to make wonderful meals. Maybe seeing that meals can be "normal" and delicious and safe for you will make a difference.

 

And hey, at least summer vacation is half over right? Don't throw anything at me! :ph34r:


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#880138 Pretty Sure Im Slowing Dying. - Past Gluten Free

Posted by Adalaide on 18 July 2013 - 03:38 PM

I felt worse before I felt better. When I was diagnosed with celiac my husband and I were both quite sure at that point that whatever was wrong with me was probably killing me but damned if we could figure out what it was. At that point, I felt pretty much like Dani, a zombie who got hit by a bus. And those were my good days. Then I got my diagnosis and went gluten free. And then I felt worse. So. Much. Worse. It was like I was a zombie who was sucked dry by an army of vampires and left in the middle of the freeway to be hit by 100 buses. Eventually it passed.

 

The withdrawal can be terrible and for the first time your body isn't fighting itself over this poison you are putting in it. Just like when you get sick with the flu or after a major surgery, as your body begins to heal it sucks the energy from you and you feel drained. You'll get through to the other side, you simply have to have patience. This is a marathon, not a sprint. You could have vitamin deficiencies, you could have intolerances to other foods, you could be crashing from too many refined carbs, it could be a million things on top of the fact that your body finally has a respite from being poisoned.

 

My best advice though is to treat your body well, give it as much as you can in fresh veggies, fruits and meats and give it time. Make sure you are at least getting enough time in your schedule for enough sleep, and carve out enough for some naps as you need them on days off if you tolerate naps well without disrupting your life too much. A lot of people think this is some sort of magic cure-all and they stop eating gluten and in a week they feel like superman. It doesn't work that way. (which sucks) Healing may take the patience of a saint, and you may have to dig deep to find that patience. (I sure as hell have had to! :lol:)


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#879365 How Helpful Are Dietitians?

Posted by Adalaide on 13 July 2013 - 01:03 PM

I didn't see a dietician or nutritionist, I really saw no point. By the time I saw my doctor for an appointment after my biopsy results I had had an entire weekend to spend on the internet and knew more than I ever wanted to and more than enough to get started. Certainly more than I would have learned in a first appointment. I do think though that there is a distinct need there for people who are just not equipped in the way many of us are to head out to the internet and take things into our own hands.

 

To that end, my goal once I am well enough to attend college again is to become one myself. This has been playing in my mind for some time, and I'm not sure when I will reach the point I can attend college again. But, because I know there is such a lack of specialty, I know I can fill a distinct need. Also, because there is a somewhat distinct overlap with diabetes and I have spent time with a dietician about that with my husband and spend a lot of time focusing on that in the house as well, I feel I will be able to address that with real world experience as well. If not from first hand experience in having the disease, at least in first hand experience in helping to manage the meal planning, carb counting, and such that goes with it.

 

I don't think seeing a dietician should be a waste of time or money. I only think that most of the time it is, which is sad.


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#878525 Popsicles

Posted by Adalaide on 07 July 2013 - 10:58 AM

Someone suggested a popsicle thread. No one ever got around to it. Well I found this recipe posted on facebook today and it is next on my hit list. I am heading to the store tomorrow because as wonderful as these low/mid 90s have been the past few days, we're heading back to 100ish this week. Trips to the store here happen before 10 or 11 because I'm not getting caught out in the heat after that!

 

These I'll put in molds. I got my molds for $1 each last summer, they're super cheap if you check dollar stores, check at the end of summer (not helpful now I know) or aren't picky about shapes. As we have a little more money to spend on kitcheny things, I'll indulge in some more exciting molds than the plain round stick ones I have now.

 

http://www.saveur.co...mango-con-chile


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#878397 Hot Tamales!

Posted by Adalaide on 06 July 2013 - 07:53 AM

We had a bunch of thunderstorms roll through last evening. Fortunately it doesn't look like they started any fires. One was centered right over me as it passed and was pretty epic, loved it! The temp dropped 25 degrees in half an hour, which was really nice. Only supposed to be low 90s today, I'll take it!

 

Some moron last night was setting off fireworks where they are banned and started a fire right by two homes. <_< Fortunately it got put out really quickly by crews. Stupidity should be a crime, and frankly I hope he gets whatever hefty fine they're imposing for playing with illegal fireworks this year. Or just bill the moron for the firefighting efforts.


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