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Member Since 08 Jan 2012
Offline Last Active Yesterday, 09:41 PM

#887544 Why Is The Main Stream Media, Tennis Stars And Others Trying To Destroy The G...

Posted by Adalaide on 07 September 2013 - 06:31 AM

FWIW my most serious and only real concern about CC in spices and herbs was from myself having them before diagnosis. I baked a lot and simply replaced all of them because I would simply use the same spoons without washing or getting clean ones and would double dip from one spice to the next, or from flour to spices. A lot of my spices are McCormick, I also buy spices at Costco and a few other brands when McCormick doesn't have what I want which isn't often.

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#887498 Walmart Now Has Bales Of Hay?

Posted by Adalaide on 06 September 2013 - 08:46 PM

I buy hay for my bunny. We buy alfalfa, timothy or plain old grass hay, whatever is cheap because Freya isn't picky. There are some grasses that look remarkably similar to wheat but aren't wheat. I keep the hay (an entire bale) in a large tote in my living room with my bunny who has a large "bunny condo" in the living room. Hay gets all over the room. I do wash my hands after handling her hay, but I don't particularly worry about gluten. Hay is just messy.

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#886933 gluten-free Foods In Bulk Bins--Safe?

Posted by Adalaide on 02 September 2013 - 04:10 PM

I buy things from more than one store in the area that sells in bulk. The key is in how you do it. Rather than buying out of the bin, I purchase an entire package at a time. This means things like 25 pounds of corn starch or salt. I buy my pasta in 10 pound boxes. However the store receives it to put into the bulk bins is how I buy it. The bonus to this is that I get a 10% discount off the per pound price by just buying the whole package. The downside is that at one of the stores I have to get them to order it for me and wait for it. The other always has a few boxes of pasta and oatmeal in stock.


It can seem expensive with the sticker shock of things like $65 for a bag of salt or $16 for a box of pasta. But then it isn't like its something you'll buy every month. I also space out my purchases as much as I can. If I know I'm getting low on more than one thing I'll buy one in one month and another the next so I'm not blowing my whole food budget at once. Keep in mind that with things like a 10 pound box of pasta, you can probably tuck that in your pantry. With things like a 25 pound bag of anything, you'll have to also buy a 5 gallon food storage bucket. (And a rubber mallet and one of those wrench thingers you open the buckets with unless you get a special screw on lid one.)

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#886191 Why Is The Main Stream Media, Tennis Stars And Others Trying To Destroy The G...

Posted by Adalaide on 27 August 2013 - 10:39 PM

Explain to me how it helps me to be gluten free and safe to have a bunch of hipster morons eating sort of, kinda, but not really gluten free. Because that is how they do it you know. They don't take it seriously, they don't take CC seriously, and they endanger the rest of us with their half-assed approach every time they do something stupid. They go to restaurants and pick the croutons off their gluten free salad and tell their server it isn't a big deal. They eat fries with their gluten free meal even though they're from a shared fryer. When their burger comes out on a bun and the server suddenly remembers and apologizes they say it is fine and just pick it off the bun.


Then when we go out to eat and require this by medical necessity the server remembers halfway through getting our salad and just picks the croutons off, and we get sick. The server rolls their eyes every time one of us points out we can't eat the fries from the shared fryer. They realize the cooks mistake and just pick the burger off the bun in the back, that way we don't have to get upset about it. These morons are endangering our health and I wish they would just stop. And I'm not just bitching about random idiots either.... my own freaking MOTHER WAS A BANDWAGON BETRAYER!!!! The sooner they all knock off the crap, the sooner we can focus keeping ourselves healthy instead of fighting against the fad.


And guess what? A lot of what is in the tons of similar articles is completely true. Gluten free foods are full of sugars and fats that are not in the same exact gluten filled foods. A fair number of people here can actually point out that upon going gluten free, if they replaced gluten foods with gluten free foods they DID gain weight. The only time people lose weight is when they stop eating crap, at which point they are losing weight not because they are gluten free but because they stopped eating Twinkies. Not exactly rocket science. This will fade like the South Beach and Atkins and whatever else there was and that can't come soon enough for me.

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#883945 Terrified

Posted by Adalaide on 12 August 2013 - 08:29 AM

I share a house with gluten eaters. IMO sponges are evil. They're nasty dirty things that just hold germs and are cesspools of bacteria. Worse though, is when you share a house, once they are contaminated they are useless. Dishcloths on the other hand can be laundered. I have a stash of several dozen. When I make food I simply wash the counter, twice, the second time with a clean cloth. (I'm just paranoid like that.) Then I use a clean cloth to wipe down the surfaces I'll be touching while I cook, and I make sure the pantry door is open. This is usually stove knobs and the fridge/freezer door handles. Before I started doing this I would wash my hands so much they would crack and bleed. OW!


I have my own separate condiments, my own shelves in the pantry and fridge. I also worried about the condiment thing and the bottles, what if they are making a sandwich and get bread out and then get the mayo out and then I want mayo and the outside of the bottle is covered in gluten? Um... we aren't using the same mayo, problem solved. (And it seems that everyone in this house is obsessed with touching as much as humanly possible while making toast. It drives me up a freaking wall!) I do have separate dishes, because toast. Like I said, people here can't seem to figure out CC rules so screw it. This is what keeps me safe. If on the other hand, people in your house can follow simple hand washing rules, the transition will be simple and easy. It seems there are as many different sets of rules as there are shared houses. You'll have to figure out what works for you and the people you share a kitchen with. This will take time. Until then, just breathe easy and take things slowly. You don't have to have this all figured out overnight.

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#883786 Sad, Frustrated, Need Support

Posted by Adalaide on 11 August 2013 - 10:52 AM

I'm not going to blow sunshine and rainbows up your butt, because I'm just not like that. I have been successfully gluten free because I have a wonderfully supportive husband. I suppose I could have also done it alone. What I could not have done was manage this fighting him every step of the way, especially with him not being gluten free. We have a shared house, which takes absolute cooperation and consideration on the part of the gluten eater.


This sort of thing makes me fairly angry. What the hell is the problem with people who make a "in sickness and health" commitment then up and say they can't deal with it? Doesn't want to hear about it any more? Well that's just too damn bad. IMO if that is her attitude about your health, because that is what this is, it isn't food, it isn't about dinner, it is about your health, you guys have some very serious issues to work out. There are so many dinner options that are naturally gluten free that can keep you from feeling bad and no one will ever notice. Meat, potatoes and veggies, fruit and ice cream for dessert. What is wrong with things like this that she would rather ostracize you than have you be part of the family you created together?


As pointed out, you aren't symptomless. The damage from celiac doesn't happen overnight and the healing won't either. I didn't notice if anyone directed you to the newbie thread or not, but if not you need to check it out because it is possible with your wife's decided effort not to cooperate that you are missing some things you need to cover. You need to have a serious discussion about how to run your kitchen together to keep you healthy. It may help her to know that once basic rules are set up in the kitchen and everything becomes routine that it does become less a topic of discussion and more of a this is just part of life sort of thing. If she can't accept that you have a serious disease and this is how it is treated instead of taking a pill every day, you'll have some hard decisions to face.


ETA: I guess I should add that I don't want to seem all gloom and doom and crap. You just need to get your wife to be on your side. Lots of people live happy, comfortable lives with gluten eaters. I do. (That is as much sunshine as I can manage today. :P)

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#882869 Are All Smarties Created Equal?

Posted by Adalaide on 04 August 2013 - 11:50 AM

I know you checked the Smarties website but from your post I am wondering if you are saying that you are buying the Smarties brand name candy or the store brand candy. You say the label depends on what store brand you are looking at, you you mean Target brand candy or Smarties brand candy at a Target store? There is a significant difference there, especially since many large chains have their own brands with their own ingredient list which can be different with every package of similar candy.


The statement on a package that it is manufactured in a shared facility is completely voluntary. It is quite possible that you would put one package down and pick up another that doesn't say that and put it in your cart, but the product may in fact still be from a shared facility. Buying from reputable companies with good manufacturing processes is the best way to be safe. If you are unsure about a product or company, contact them rather than just dismissing them. A for instance is that many M&Ms will say that they are manufactured in a facility with wheat because of pretzel ones, that does not mean that all M&Ms have gluten in them. Good manufacturing processes prevent CC and allow us to consume M&Ms safely.

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#882743 New Diagnosis, Quick Question

Posted by Adalaide on 03 August 2013 - 10:30 AM

No one is going to die if they go to a party and don't eat for a few hours. So you may be hungry. So what? So someone may get all butthurt over the fact that you don't want to spend the entire party in the bathroom with exploding bowels. Again, so what? If that is the kind of people hosting the party, you can either explain to them with the patience of a saint that it really just isn't safe for you to partake and they can be understanding, or you know not to go to their parties any more. You now have a built in jerk-o-meter. (Yeah, I stole that... sue me. :P)


Do you really prefer to be sick, risk your long term health, spend a day (maybe more) in the bathroom and in agony, plus all the other symptoms that you may get... over someone's feelings about what you put in your mouth? Are you freaking serious?!?! If they don't like that you care about your health, they're jerks and you don't need to associate with them. Family or not.

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#882357 Can't Buy Good Produce

Posted by Adalaide on 01 August 2013 - 12:11 PM

I was just thinking that since you can't have ice cream, you can freeze a banana (it is helpful if you cut it up a little) the throw it in a blender or food processor. You don't have to add anything to it at all, but you can add a little of whatever type of milk you may be using and BAM! Ice cream! I swear, it is awesome. I was doing this all. the. time. before I had to stop eating bananas.

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#882282 Azelastine Hcl Nasal Spray

Posted by Adalaide on 01 August 2013 - 06:48 AM

Apotex is a gluten free manufacturer.



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#882155 Can't Buy Good Produce

Posted by Adalaide on 31 July 2013 - 09:40 AM

Can you do frozen veggies? I know it may take some legwork for you to find out but it could be a good option.

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#881745 You Can't Hurry It.

Posted by Adalaide on 29 July 2013 - 10:02 AM

Very good advice and reminding. Especially about not needlessly avoiding healthy foods that are not necessarily a problem. I personally think it is positively silly and possibly dangerous to start eliminating healthy foods from a diet without first giving your body time to begin to heal. This can lead to deficiencies that are completely unnecessary and could lead to additional symptoms that you didn't previously have. (This happened to me, although in my case the removal of certain foods from my diet was based on sound medical advice and must be strictly adhered to.) 


It can also take those first months to work out how to avoid CC in your own kitchen. Yes, I know you think you have a handle on avoiding CC and reading labels and no one is saying that anyone is doing anything wrong. Just... it takes time to adjust and hindsight is 20/20. Many of us thought we had a perfectly good handle on things in the beginning only to look back a year later and realize that if we went back to how we were doing things those first months we would be horridly sick again. Plus, even if you are doing everything 100% right, your body will take time to adjust. One day you'll be up, the next you may be down. You may bounce between being regular, some C and some D for absolutely no apparent reason. These things are normal and expected. 


I think more people should think about things in the context of what is actually going on with their bodies rather than setting unrealistic timelines. When considering the sheer amount of physical damage to your intestines, think about what it takes for your body to heal from serious injury. We aren't talking bumps, bruises and scrapes. We're talking major trauma. And the damage is rarely limited just to the intestines for those who had to fight for a diagnosis. The damage has spread to many other parts of the body, and only time will allow us to heal.

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#880735 Beware Archer Farms Gluten Free Fusili

Posted by Adalaide on 23 July 2013 - 10:26 AM

I truly appreciate that some companies have the decency to print warnings like that on their label. I can then choose to either contact them or not about their manufacturing processes and make a choice from there. But I never eat any of those products without checking. I understand being mad, but being mad at the company when they took every precaution they could in pointing out this could happen just seems pointless.

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#880724 Medic-Alert Bracelet

Posted by Adalaide on 23 July 2013 - 09:43 AM

With the tat thing, I do think that there are several relevant points about that. One is where you live, and that seems to matter a lot. Where I grew up in PA it seems everyone has one and no one cares no matter the type of job you are doing, professional or not. Where I live in Utah now, a fair number of people have them but they are not so commonly accepted which I believe is probably for two reasons. There is a strong Mormon population here and there is also a focus on professional work rather than the manufacturing that is where I grew up. Here I would be expected to cover a tat up, and I know that and accept it. I think the reason my husband is also resistant to it is because we are Mormon, although he grew up that way and I didn't which is why my attitude is more meh... it isn't a big deal, it is for a real medical reason and whatever dude. And his attitude is zomg you'd be defiling your body! :rolleyes: I think the point about it the worker and the Jewish nursing home was also a good one. Everything is about context.


As a general rule, we like to think our medical records are all digitized now. And sure, I can walk into the records office of any of the affiliated hospitals around here and get all of my records from every hospital and doctor's office but... Hah, you knew there was a but right? I still have to explain to every person every time I get to the hospital, a new doctor's office, ER, even if it is the same ER I've been to a few dozen times, what my allergies are. These include penicillin and latex so you would think that they are glaringly obvious and all over my digital chart in some sort of way that can't be missed right? Nope. Going for a blood draw? The first words out of my mouth have to be that I have a latex allergy. They don't check, and they don't ask. Our digital medical records are useless to us as protection when it comes to our allergies or even celiac. Mine also state with my celiac, because I made them put it in the allergy section that I absolutely can not be given oral medication under any circumstances. I doubt they'll pay attention to that when they decide they want to try to force something on me.


If you think your son will feel better if you have a bracelet, go for it. Especially if he hounds you about it.

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#880400 Struggling As A Celiac:(

Posted by Adalaide on 21 July 2013 - 05:32 AM

I am going to say this because I'm not sure anyone else noticed, and because someone who can be the "tough parent" needs to do it. If you want your parents to take your disease seriously, first you have to. Until you do, your parents won't, and you can't expect them to. You can't expect them to take things like cross contamination seriously, or statements like "no, just a little bit is not okay" seriously when you are willing to sit down and eat meals of fried chicken, mac & cheese, and biscuits and gravy.


What you think you just did was poison yourself physically, make yourself feel bad for a bit and you'll get over it. What you actually did was poison every last effort and bit of progress you ever made with your parents. What your parents now see is that what it truly comes down to, is that you simply are being picky. From their perspective now, you don't want to eat what they are working hard to put in front of you. If you wanted to you just would, after all you ate the fried chicken. And they can throw that back in your face every time it comes up.


What you need to do is two things. First, realize that you haven't made a choice, you've pretty much been given an edict. No gluten. There is no cheating, no sneaking, no work arounds. Accept it, move on. You need to stop thinking of certain things as your favorite foods. Either the gluten free versions are your favorites now, or you have new favorites. That just is the way is has to be, you'll be happier accepting that fact. One of my favorite things in the whole world has always been cupcakes, still is, now it is just gluten free cupcakes. You adjust your attitude or die inside a little every time you see what you can't have. Second, get your parents with you to your doctor. Now that you have done the damage of eating all of that in front of your parents you need to undo the damage. Having that discussion together can help them understand that it really is a serious disease that needs to be taken seriously. It may also help you hear it again right now since you are obviously struggling with it.


Remember though, you only fell off the wagon. There is no reason to stay off the wagon. We trip, we fall, accidents happen. Brush yourself off and keep walking. Everyone here is here to help. And also remember what I said first, I am saying all of this from the tough love parent point of view. (I'm doing a lot of that this weekend... teenagers. <_<)

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