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Adalaide

Member Since 08 Jan 2012
Offline Last Active Today, 06:55 AM
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#880142 Struggling As A Celiac:(

Posted by Adalaide on 18 July 2013 - 03:53 PM

I can't even begin to imagine treating my own children this way. It makes me sick to think a mother could be like that.

 

My best advice is that since cooking is an important life skill for anyone, you should probably offer to cook dinner a few times a week. Nothing fancy, and you can get ideas from the dinner thread. http://www.celiac.co...t-chat/page-437 There are plenty of naturally gluten free things to make wonderful meals. Maybe seeing that meals can be "normal" and delicious and safe for you will make a difference.

 

And hey, at least summer vacation is half over right? Don't throw anything at me! :ph34r:


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#880138 Pretty Sure Im Slowing Dying. - Past Gluten Free

Posted by Adalaide on 18 July 2013 - 03:38 PM

I felt worse before I felt better. When I was diagnosed with celiac my husband and I were both quite sure at that point that whatever was wrong with me was probably killing me but damned if we could figure out what it was. At that point, I felt pretty much like Dani, a zombie who got hit by a bus. And those were my good days. Then I got my diagnosis and went gluten free. And then I felt worse. So. Much. Worse. It was like I was a zombie who was sucked dry by an army of vampires and left in the middle of the freeway to be hit by 100 buses. Eventually it passed.

 

The withdrawal can be terrible and for the first time your body isn't fighting itself over this poison you are putting in it. Just like when you get sick with the flu or after a major surgery, as your body begins to heal it sucks the energy from you and you feel drained. You'll get through to the other side, you simply have to have patience. This is a marathon, not a sprint. You could have vitamin deficiencies, you could have intolerances to other foods, you could be crashing from too many refined carbs, it could be a million things on top of the fact that your body finally has a respite from being poisoned.

 

My best advice though is to treat your body well, give it as much as you can in fresh veggies, fruits and meats and give it time. Make sure you are at least getting enough time in your schedule for enough sleep, and carve out enough for some naps as you need them on days off if you tolerate naps well without disrupting your life too much. A lot of people think this is some sort of magic cure-all and they stop eating gluten and in a week they feel like superman. It doesn't work that way. (which sucks) Healing may take the patience of a saint, and you may have to dig deep to find that patience. (I sure as hell have had to! :lol:)


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#879365 How Helpful Are Dietitians?

Posted by Adalaide on 13 July 2013 - 01:03 PM

I didn't see a dietician or nutritionist, I really saw no point. By the time I saw my doctor for an appointment after my biopsy results I had had an entire weekend to spend on the internet and knew more than I ever wanted to and more than enough to get started. Certainly more than I would have learned in a first appointment. I do think though that there is a distinct need there for people who are just not equipped in the way many of us are to head out to the internet and take things into our own hands.

 

To that end, my goal once I am well enough to attend college again is to become one myself. This has been playing in my mind for some time, and I'm not sure when I will reach the point I can attend college again. But, because I know there is such a lack of specialty, I know I can fill a distinct need. Also, because there is a somewhat distinct overlap with diabetes and I have spent time with a dietician about that with my husband and spend a lot of time focusing on that in the house as well, I feel I will be able to address that with real world experience as well. If not from first hand experience in having the disease, at least in first hand experience in helping to manage the meal planning, carb counting, and such that goes with it.

 

I don't think seeing a dietician should be a waste of time or money. I only think that most of the time it is, which is sad.


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#878525 Popsicles

Posted by Adalaide on 07 July 2013 - 10:58 AM

Someone suggested a popsicle thread. No one ever got around to it. Well I found this recipe posted on facebook today and it is next on my hit list. I am heading to the store tomorrow because as wonderful as these low/mid 90s have been the past few days, we're heading back to 100ish this week. Trips to the store here happen before 10 or 11 because I'm not getting caught out in the heat after that!

 

These I'll put in molds. I got my molds for $1 each last summer, they're super cheap if you check dollar stores, check at the end of summer (not helpful now I know) or aren't picky about shapes. As we have a little more money to spend on kitcheny things, I'll indulge in some more exciting molds than the plain round stick ones I have now.

 

http://www.saveur.co...mango-con-chile


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#878397 Hot Tamales!

Posted by Adalaide on 06 July 2013 - 07:53 AM

We had a bunch of thunderstorms roll through last evening. Fortunately it doesn't look like they started any fires. One was centered right over me as it passed and was pretty epic, loved it! The temp dropped 25 degrees in half an hour, which was really nice. Only supposed to be low 90s today, I'll take it!

 

Some moron last night was setting off fireworks where they are banned and started a fire right by two homes. <_< Fortunately it got put out really quickly by crews. Stupidity should be a crime, and frankly I hope he gets whatever hefty fine they're imposing for playing with illegal fireworks this year. Or just bill the moron for the firefighting efforts.


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#878247 The Fireworks Are Still Flying

Posted by Adalaide on 05 July 2013 - 05:30 AM

4thFireworks04.gif

 

Always nice to remind those starting out that although the road can be long and difficult and at times seem impossible if they read some of these other threads, there is hope and healing.


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#878202 Gluten-Free Bread Recos, Hated Udi's

Posted by Adalaide on 04 July 2013 - 06:28 PM

I tolerated and told myself I liked Udi's okay when I was first diagnosed. Truth is that I just wasn't a fan of gluten free bread. I took about three months or so off of bread completely. After that I suppose I forgot what bread tastes like and feels like. I like Udi's and Rudi's both just fine, although I prefer Udi's. (Not for taste but because Rudi's has a problem where it won't come apart!) My favorite by far is the chia one.

 

Some food for thought. Gluten free bread will never be the same as gluteny bread, do not expect it to be or you will always be disappointed. Instead, attempt to view it as something else entirely and try to enjoy it for what it is. This shift in attitude may also be partly responsible for my enjoyment of bread now.


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#878190 Hi Everyone, I'm Back!

Posted by Adalaide on 04 July 2013 - 04:37 PM

I really don't know what to say to 2012 except that I'm glad its over for you and that I'm glad you seem to have pulled through ok. I'm laughing at the hitting a kangaroo thing because the way you say it, it sounds just like we talk about hitting a deer back in PA. Meh, hit a deer, no biggie... shrug it off and get on with your life. You might get a little mad if you get a busted headlight instead of just dings and dents.

 

This year sounds generally awesome for you. Black Sabbath? I'm kind of a little jealous.

 

 Bit of a drastic push, admittedly.

 

I nominate this for understatement of the century.


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#878169 Anybody Else Have Fruity Pebbles Issues?

Posted by Adalaide on 04 July 2013 - 12:22 PM

I have to agree that there are a lot of things about fruity pebbles that could disagree with you. My first thought before reading the other responses was that they have a LOT of color. I have eaten both kinds of pebbles and not had trouble with either.


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#877912 May God Bless Our Firefighters!

Posted by Adalaide on 02 July 2013 - 09:17 PM

This is a horrible tragedy and my heart and prayers go out to all of the friends and family of those lost. We would also do well to remember to keep those still fighting and those who will spend the rest of the season fighting in our thoughts and prayers. They'll need it with these conditions.

 

I think bartfull hit the nail very much on the head. These men don't risk their lives to save homes. They do it to save lives. Without these teams we would see more instances of what happened last year in Colorado. We saw lives lost to wildfires last year in Utah. We have teams that work year round to prevent fires ending up like this. Doing controlled burns, setting up fire breaks, but you can't anticipate everywhere a fire will start. When a town is threatened, lives are threatened. Where there is a need, there will always be heroes who answer the call. With this there is most definitely a need.


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#877654 Homemade Condiments, Sauces Etc.

Posted by Adalaide on 01 July 2013 - 03:48 PM

More purple. And okapis are giraffes closest relatives. They're like funky tropical giraffe cousins. Still, as much as they're like each other... they're not too. (An okapi would make a far more practical home pet due to its smaller size. I've put a lot of thought into these things.)


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#876889 The What's For Dinner Tonight Chat

Posted by Adalaide on 27 June 2013 - 07:28 AM

WOOO!!!  Happy Anniversary!

Yes, you guys do look amazing in your photo.

And we are all so very blessed to have men who are still here after all this nonsense. :wub:

Have fun tonight! :D

 

Last night I didn't make dinner plans and when I was standing in the pantry staring at thing my husband could tell I had something stuck in my head. He wouldn't let it go and finally I was like I just want a pizza like a normal person. I ended up ordering from Malawi's who does a pizza with a fresh tomato sauce, fresh basil and fresh mozzarella. I may have cheated a little and gotten a bit of pepperoni on it. :ph34r: They make their own crust so I understand that I'm taking a huge risk every time I get a pizza from there, and could have gone with another place that has a prepackaged crust but I like the fresh ingredients. (Even if the other place does do shrimp on pizza!)

 

Tonight is breakfast for dinner. He'll have sausage, and it is all natural, nitrate free and all that sort of nonsense so I'll probably at least taste it. Eggs, hash browns and pancakes. Or maybe buckwheat cakes, something like that anyway.


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#876305 The What's For Dinner Tonight Chat

Posted by Adalaide on 24 June 2013 - 11:24 AM

Oink...oink...I'm there too -- but did get my beloved 'silver shadow' back on the road this morning -- been riding hubs hybrid for awhile now as my shoulders and wrists were not happy with my race bike -- and....wait for it...my problematic left shoulder is happy -- well not happy, but not in pain which with my fuzzy math today is the same thing ;)

 

No resting today....need to take care of things that got shuffled aside this past week during playtime and graduation celebration....somehow my busy day is much less work than the little ones.....fun for a visit -- and they show their uncles how much work being a parent of small children is....great birth control for young adults :D

 

Yay for your bike back! And I encouraged my daughters both to babysit children of varying ages, preferably multiple children at once. I told them I wanted them to earn money. I lied. I knew it would be awesome birth control. Evil moms strike again! :lol:


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#876093 Unexpected Hospital Stay And Dietary Nightmare

Posted by Adalaide on 23 June 2013 - 07:29 AM

were you a prisoner?....THIS JUST IS MORE THAN I CAN TAKE.!  They can NOT forbid food from home, can't force you to eat, when you get your post hospitalization survey, GO TO TOWN!!  geesh

 

This is something I keep myself very aware of. There is such a thing as "leaving against medical advice." You simple begin to get ready to go, and eventually they'll bring in your release paperwork with that noted in your chart and usually why. (It was in my records from when my second daughter was born. She was lifeflighted to a NICU and they told me I had to stay in the hospital another day... my ass they were keeping me!)

 

I have been in instances where a doctor or medical person didn't understand the food thing. I have explained things with the patience of a saint. And with exasperation.

 

My biggest fear is being stuck in a hospital, or (later down the road)  a nursing home.... or a jail (not sure WHY I'd be there, but it's on my list of places to avoid :lol: ) and getting glutened left and right by well-intentioned staff and my brain starts to fritz.

 

(shudder)

 

These are my biggest fears too. I've joked with my husband that the only thing that keeps me from being a serial murderer is that if I get caught they wouldn't feed me right in prison. The fact that I faint at the sight of blood never comes up. :lol: I have an agreement with my husband about food and he knows what to do and bring me if I'm ever in the hospital. Since In N Out is closer to the hospital than home, I taught him how to order for me. B) Sad how I can trust a fast food place but I can't trust a hospital to feed me.


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#875983 Is My Biopsy Wrong?

Posted by Adalaide on 22 June 2013 - 07:15 AM

I hate to say it, but it is my opinion that there is no reason to go through the pain and suffering of a gluten trial for a new biopsy if you already had a positive one. The genetic test could actually be wrong. If they didn't do the right test, they wouldn't see the right parts of the genes, and it is now generally understood that there are almost certainly more than those two genes involved. There is no way that the science has entirely determined exactly every gene associated with celiac. And, if you are are going to continue with the challenge, just so you don't end up in the position again later don't stop at a skin biopsy. Go for broke and do both. There is no point walking through hell and only going halfway with the biopsies.

 

http://www.celiac.co...ting/Page1.html

http://celiacdisease...tic-Testing.htm


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