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Adalaide

Member Since 08 Jan 2012
Offline Last Active Today, 09:39 AM
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#909910 Suddenly Sensitive To Lotion?

Posted by Adalaide on 22 March 2014 - 08:15 PM

When I started having this same issue it took me a long time to figure out. It is certain scents used in things for me. I now have to use a dye and scent free detergent and dryer sheets. If it is a problem with scents, it could be anything you use on your entire body. Your laundry soap, dryer sheets, lotion, shower soap, even your shampoo or conditioner because it washes down your whole body.

 

As a tip, although this will seem super weird, if you use a homemade body scrub made with olive or coconut oil you won't need body lotion. I have terribly dry skin, and aquagenic pruritis and no longer need lotions to have amazingly soft, non-itchy skin, fresh out of the shower. As for lotions that won't irritate, I love Eucerin and there are some all natural ones made with coconut oil that are great if you're into that sort of thing.


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#909737 Gluten Free Medication

Posted by Adalaide on 21 March 2014 - 10:44 AM

I have always, since diagnosis, used personal contact with every single individual manufacturer, or their website if information is available there as my source. I have never considered second hand information that may be out of date as good enough to stake my health on. I have never had issues getting answers, every manufacturer has provided clear and easy information.


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#909735 Numbers Are Fun!

Posted by Adalaide on 21 March 2014 - 10:39 AM

I can't get past a 512 single square. But I do keep getting high total scores. Why, oh why, does this have to be so addictive?


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#909600 Crps

Posted by Adalaide on 20 March 2014 - 03:54 PM

I got my confirmed diagnosis today, CRPS. I'm a ball of emotions. For 5 years I've been trying to get doctors to tell me what's wrong. I've had them tell me to take pills for the pain, that a diagnosis doesn't matter. I've had them tell me I'm depressed. I've been told it's all caused by anxiety. I've been told it's somatization. (I won't make you go look that up, it's being so batsh!t crazy you physically manifest symptoms.) Five. Long. Years. In that time it's gone from just my foot and ankle to be two entire limbs. A doctor saw me, in his office once, with my leg swollen so much up to the knee that it was literally rock hard. He wanted to give me meds and send me home, he wasn't worried about what was causing it. I was even once told by a neurologist, a specialist who should be able to diagnose this disease easily that I don't come close to fitting the profile. After I explained to him what both "CRPS" and "RSD" stand for. <_<

 

I literally feel like the inside of my skin is burning. Every moment, of every day, for five years. And they dismissed me. Doctor after doctor sent me away. I literally went into offices sometimes and begged for help, crying. I just wanted it to stop. And they called me nuts. It is such a relief to finally have a doctor listen, and tell me I have a real, honest to God disease doing this to me. And even though I've wanted this for so long, it's scary as hell to know that I'm facing this forever. The best I can hope for is "good" days with less pain and to prevent it from spreading. It's also difficult not to be mad. I don't know mad at what exactly, but mad because people with autoimmune diseases are prone to CRPS. And I started this road before my celiac was diagnosed, and it was caused by an injury from falling off the curb in front of my house which happened because of my ataxia. From celiac. I'm 36, and i just want to scream that it isn't fair!

 

I need to go to PT but I need to go to someone who has experience treating PT and can do aqua therapy in a heated pool. And the place my doctor wants me to go to isn't covered by my insurance, so now I get to spend the week before my surgery calling every PT place in the area, then finding which of the ones that can do it is the best for me.

 

Anyway, mostly I think I'm probably ranting. Although any helpful suggestions are awesome. I know #1 at the top of my list is to get the heck back on my low histamine diet before I go fling myself off the highest cliff in Utah. (at least it would be a beautiful view this time of year :lol:)

 


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#909419 The What's For Dinner Tonight Chat

Posted by Adalaide on 18 March 2014 - 09:11 PM

I just need to have obvious symptoms for my appointment. So I had to make it in the afternoon when my symptoms are worst. And going low histamine very much helped with my swelling and mostly cleared it up. I just need to have "enough" symptoms the doctor can see or whatever to confirm diagnosis. It's rough, but I'm managing. I'm enjoying things I usually can't. I can get uncured bacon or sausage at the store next to my house that they make there and is fresh and safe. So I'm just going all out on other crap. I'd so kill for an avocado! But... stupid oral allergy crap and I'm too scared to try again. <_<


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#909037 Happy Spring, Fellow Gardeners!

Posted by Adalaide on 15 March 2014 - 07:11 PM

Brilliant idea from Lisa. It's spring again!

 

I was out yesterday (or maybe the day before) and bought purple string bean seeds. Today we ordered ruby queen corn and purple dragon carrot seeds. I'll be checking my mint to see how it weathered the winter next week. And I'll be looking to buy some chocolate mint to add to my collection.


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#908590 Robots And Science And Stuff

Posted by Adalaide on 11 March 2014 - 09:55 AM

My oldest daughter was completely set to be a chemical engineer. Then last year, her senior year in high school, while also doing some college courses she was on a robotics team. Apparently it was enough to change her life, because she's changed her major. She's going to be a mechanical engineer now. It must run in the family, because that's what my dad is. And my brother is just plain mechanically inclined and plays with machines all day for a living without having the education behind him.

 

Anyway, I think that's the whole point of FIRST. To change lives. I'm glad she was inspired in such a way and I hope that lots more kids are!


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#908427 The What's For Dinner Tonight Chat

Posted by Adalaide on 09 March 2014 - 04:10 PM

Tonight was Lasagna and  some  cucumber salad

 

My husband is anti-casserole or any other such thing that he deems similar. I haven't had lasagna since before I got married. I should just make one sometime and tell him to get his own dinner. It sounds SO GOOD right now.


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#907464 Trader Joe's Or Whole Foods?

Posted by Adalaide on 27 February 2014 - 08:10 PM

If you're near a Costco they have a lot of options. They're really great about allergen labeling also.


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#905724 Yep - There's An App For That

Posted by Adalaide on 11 February 2014 - 09:59 AM

I don't use the lock feature either because I have the ICE app on my phone, which is completely useless if my phone is locked. I also believe that people shouldn't ask questions they don't want to know the answer to, which includes "how are you?" It shouldn't be expected of people to politely lie. I'm probably not exactly a favorite person in some circles either. :lol: (For instance, the cashier asked me yesterday when I was picking up my lortabs after a root canal and as the novocaine was wearing off and looked generally like hell how I was, I was completely honest.)


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#905147 Gluten Free Snack Discoveries!

Posted by Adalaide on 05 February 2014 - 10:11 AM

It never occurred to me, having grown up in the town that Wise is based in, that they are a local company. Twice in Utah I have walked into Wal-Mart in the middle of the night and seen a pallet of their chips, squealed in joy and took off running. Everyone probably thought I was crazy, especially when I just started grabbing as much as I could carry... but omg there is nothing like them. No other cheese puffs compare.


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#904920 Man I Was Bumbed!

Posted by Adalaide on 03 February 2014 - 04:36 PM

I don't have the stamina for shredding cheese, or the bank account for buying it shredded. So, I bought the shredder attachment for my KitchenAid. With the amount of cheese (and other shredded things) we go through in our house it has been well worth the investment. I shred a bunch at once and use corn starch to keep it from sticking to itself, but potato or tapioca would probably work too. Or just shredding only as much as you need at a time but I like cleaning up as few times as possible.


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#904909 Like Button?

Posted by Adalaide on 03 February 2014 - 02:47 PM

Being able to vote things down is just vicious. It seems rude, confrontational and unproductive. I like the voting thing we have now.


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#904716 Omission Beer - Ok, I'm Omitting It.

Posted by Adalaide on 01 February 2014 - 04:29 PM

I only have this link handy because I just linked it. But Omission beer (and any gluten removed alcohol) can't be labeled gluten free but has to have special and specific labeling that is different. http://www.ttb.gov/rulings/2012-2.pdf Couldn't pay me to touch the stuff. I'll stick with whatever is actually gluten free for beer.


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#904329 Not Coeliac But My Life Continues To Be Hell. Can Doctor's Get It Wrong?

Posted by Adalaide on 29 January 2014 - 09:51 AM

I had negative blood tests and a positive biopsy. It happens. You know it makes you feel bad. You either choose to pursue a diagnosis with a more enlightened doctor, or you can simply go gluten-free and feel better. No matter which you choose, I would suggest finding a doctor who doesn't treat you like that. No one should be treated with such disrespect by a physician.


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