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Member Since 08 Jan 2012
Offline Last Active Jun 12 2015 11:32 AM

#910983 The What's For Dinner Tonight Chat

Posted by on 31 March 2014 - 07:03 PM

Apparently it has been decided that I'm allowed to use the oven. So I'm baking some chicken tonight. Yay!!! Not frozen meals. Carrots and maybe rice or something with it.


Insurance companies and everything about them are designed to just piss people off. I had to spend hours on the phone between my PT and insurance, then spend a weekend waiting for a callback, just to find out my PT is out of network but that I can get an exception. <_< Tomorrow I get to try to make sure it's all sorted out and make an appointment. Joy.

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#910781 The What's For Dinner Tonight Chat

Posted by on 29 March 2014 - 08:34 PM

This is fantastic news Addie .... keep up the walks!  I am so very happy it went well.


I'm not worried about Laura...I am certain she is fine...but likely having a bit harder time in the hospital than you.  She'll be back online very soon -- right, Laura?


Love and hugs to you both : )


I know she has her own challenges that make things difficult. I'm sure she is fine too. I just wanted to hear how her cool robot surgery went and hopefully see her pop her head in and just say hi, and that she generally feels like hell, or whatever, because I'm sure we both do, and she can go back to whatever. At least if she reads this she knows we're thinking of her. :wub:

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#910354 Coconut Oil/milk

Posted by on 26 March 2014 - 01:28 AM

If it was only an intolerance, it shouldn't be an issue at all on your skin. And, I agree that at this point it would be totally fine to test it again and see if you can have it in your diet. Just make sure you are trying something without additives that could be the problem rather than the actual coconut. (Such as some "milks" that are boxed.)


Lots of people use coconut oil as a lotion out of the shower. I actually use it to make a body scrub that I use in the shower. It's just as effective, and I come out without needing to bother with an extra step. If you aren't fond of that idea, or are still worried about it being on your hands, you can just use gloves when you apply it as a lotion. It isn't something I would worry about though beyond washing with soap and water after.

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#910264 Numbers Are Fun!

Posted by on 25 March 2014 - 10:13 AM

I got it! I got it! I did it late late late last night, I was doing a happy dance in my chair. It won't taunt me anymore and I can safely play my new Diablo expansion in peace. But, having it mobile will give me something to do and curse in the hospital Thursday afternoon. :)

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#910010 Numbers Are Fun!

Posted by on 23 March 2014 - 08:18 PM

I've passed this along to my oldest daughter who is the super math nerd. I want her to share my pain. I've managed some high scores, but can't get past a 1024 tile. It taunts me, and I can't help myself... I keep playing. Curse you!

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#909910 Suddenly Sensitive To Lotion?

Posted by on 22 March 2014 - 08:15 PM

When I started having this same issue it took me a long time to figure out. It is certain scents used in things for me. I now have to use a dye and scent free detergent and dryer sheets. If it is a problem with scents, it could be anything you use on your entire body. Your laundry soap, dryer sheets, lotion, shower soap, even your shampoo or conditioner because it washes down your whole body.


As a tip, although this will seem super weird, if you use a homemade body scrub made with olive or coconut oil you won't need body lotion. I have terribly dry skin, and aquagenic pruritis and no longer need lotions to have amazingly soft, non-itchy skin, fresh out of the shower. As for lotions that won't irritate, I love Eucerin and there are some all natural ones made with coconut oil that are great if you're into that sort of thing.

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#909737 Gluten Free Medication

Posted by on 21 March 2014 - 10:44 AM

I have always, since diagnosis, used personal contact with every single individual manufacturer, or their website if information is available there as my source. I have never considered second hand information that may be out of date as good enough to stake my health on. I have never had issues getting answers, every manufacturer has provided clear and easy information.

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#909735 Numbers Are Fun!

Posted by on 21 March 2014 - 10:39 AM

I can't get past a 512 single square. But I do keep getting high total scores. Why, oh why, does this have to be so addictive?

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#909600 Crps

Posted by on 20 March 2014 - 03:54 PM

I got my confirmed diagnosis today, CRPS. I'm a ball of emotions. For 5 years I've been trying to get doctors to tell me what's wrong. I've had them tell me to take pills for the pain, that a diagnosis doesn't matter. I've had them tell me I'm depressed. I've been told it's all caused by anxiety. I've been told it's somatization. (I won't make you go look that up, it's being so batsh!t crazy you physically manifest symptoms.) Five. Long. Years. In that time it's gone from just my foot and ankle to be two entire limbs. A doctor saw me, in his office once, with my leg swollen so much up to the knee that it was literally rock hard. He wanted to give me meds and send me home, he wasn't worried about what was causing it. I was even once told by a neurologist, a specialist who should be able to diagnose this disease easily that I don't come close to fitting the profile. After I explained to him what both "CRPS" and "RSD" stand for. <_<


I literally feel like the inside of my skin is burning. Every moment, of every day, for five years. And they dismissed me. Doctor after doctor sent me away. I literally went into offices sometimes and begged for help, crying. I just wanted it to stop. And they called me nuts. It is such a relief to finally have a doctor listen, and tell me I have a real, honest to God disease doing this to me. And even though I've wanted this for so long, it's scary as hell to know that I'm facing this forever. The best I can hope for is "good" days with less pain and to prevent it from spreading. It's also difficult not to be mad. I don't know mad at what exactly, but mad because people with autoimmune diseases are prone to CRPS. And I started this road before my celiac was diagnosed, and it was caused by an injury from falling off the curb in front of my house which happened because of my ataxia. From celiac. I'm 36, and i just want to scream that it isn't fair!


I need to go to PT but I need to go to someone who has experience treating PT and can do aqua therapy in a heated pool. And the place my doctor wants me to go to isn't covered by my insurance, so now I get to spend the week before my surgery calling every PT place in the area, then finding which of the ones that can do it is the best for me.


Anyway, mostly I think I'm probably ranting. Although any helpful suggestions are awesome. I know #1 at the top of my list is to get the heck back on my low histamine diet before I go fling myself off the highest cliff in Utah. (at least it would be a beautiful view this time of year :lol:)


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#909419 The What's For Dinner Tonight Chat

Posted by on 18 March 2014 - 09:11 PM

I just need to have obvious symptoms for my appointment. So I had to make it in the afternoon when my symptoms are worst. And going low histamine very much helped with my swelling and mostly cleared it up. I just need to have "enough" symptoms the doctor can see or whatever to confirm diagnosis. It's rough, but I'm managing. I'm enjoying things I usually can't. I can get uncured bacon or sausage at the store next to my house that they make there and is fresh and safe. So I'm just going all out on other crap. I'd so kill for an avocado! But... stupid oral allergy crap and I'm too scared to try again. <_<

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#909037 Happy Spring, Fellow Gardeners!

Posted by on 15 March 2014 - 07:11 PM

Brilliant idea from Lisa. It's spring again!


I was out yesterday (or maybe the day before) and bought purple string bean seeds. Today we ordered ruby queen corn and purple dragon carrot seeds. I'll be checking my mint to see how it weathered the winter next week. And I'll be looking to buy some chocolate mint to add to my collection.

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#908590 Robots And Science And Stuff

Posted by on 11 March 2014 - 09:55 AM

My oldest daughter was completely set to be a chemical engineer. Then last year, her senior year in high school, while also doing some college courses she was on a robotics team. Apparently it was enough to change her life, because she's changed her major. She's going to be a mechanical engineer now. It must run in the family, because that's what my dad is. And my brother is just plain mechanically inclined and plays with machines all day for a living without having the education behind him.


Anyway, I think that's the whole point of FIRST. To change lives. I'm glad she was inspired in such a way and I hope that lots more kids are!

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#908427 The What's For Dinner Tonight Chat

Posted by on 09 March 2014 - 04:10 PM

Tonight was Lasagna and  some  cucumber salad


My husband is anti-casserole or any other such thing that he deems similar. I haven't had lasagna since before I got married. I should just make one sometime and tell him to get his own dinner. It sounds SO GOOD right now.

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#907464 Trader Joe's Or Whole Foods?

Posted by on 27 February 2014 - 08:10 PM

If you're near a Costco they have a lot of options. They're really great about allergen labeling also.

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#905724 Yep - There's An App For That

Posted by on 11 February 2014 - 09:59 AM

I don't use the lock feature either because I have the ICE app on my phone, which is completely useless if my phone is locked. I also believe that people shouldn't ask questions they don't want to know the answer to, which includes "how are you?" It shouldn't be expected of people to politely lie. I'm probably not exactly a favorite person in some circles either. :lol: (For instance, the cashier asked me yesterday when I was picking up my lortabs after a root canal and as the novocaine was wearing off and looked generally like hell how I was, I was completely honest.)

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