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Adalaide

Member Since 08 Jan 2012
Offline Last Active Today, 10:11 PM
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#905147 Gluten Free Snack Discoveries!

Posted by Adalaide on 05 February 2014 - 10:11 AM

It never occurred to me, having grown up in the town that Wise is based in, that they are a local company. Twice in Utah I have walked into Wal-Mart in the middle of the night and seen a pallet of their chips, squealed in joy and took off running. Everyone probably thought I was crazy, especially when I just started grabbing as much as I could carry... but omg there is nothing like them. No other cheese puffs compare.


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#904920 Man I Was Bumbed!

Posted by Adalaide on 03 February 2014 - 04:36 PM

I don't have the stamina for shredding cheese, or the bank account for buying it shredded. So, I bought the shredder attachment for my KitchenAid. With the amount of cheese (and other shredded things) we go through in our house it has been well worth the investment. I shred a bunch at once and use corn starch to keep it from sticking to itself, but potato or tapioca would probably work too. Or just shredding only as much as you need at a time but I like cleaning up as few times as possible.


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#904909 Like Button?

Posted by Adalaide on 03 February 2014 - 02:47 PM

Being able to vote things down is just vicious. It seems rude, confrontational and unproductive. I like the voting thing we have now.


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#904716 Omission Beer - Ok, I'm Omitting It.

Posted by Adalaide on 01 February 2014 - 04:29 PM

I only have this link handy because I just linked it. But Omission beer (and any gluten removed alcohol) can't be labeled gluten free but has to have special and specific labeling that is different. http://www.ttb.gov/rulings/2012-2.pdf Couldn't pay me to touch the stuff. I'll stick with whatever is actually gluten free for beer.


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#904329 Not Coeliac But My Life Continues To Be Hell. Can Doctor's Get It Wrong?

Posted by Adalaide on 29 January 2014 - 09:51 AM

I had negative blood tests and a positive biopsy. It happens. You know it makes you feel bad. You either choose to pursue a diagnosis with a more enlightened doctor, or you can simply go gluten-free and feel better. No matter which you choose, I would suggest finding a doctor who doesn't treat you like that. No one should be treated with such disrespect by a physician.


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#904206 To Anyone In Moab, Ut!

Posted by Adalaide on 28 January 2014 - 11:50 AM

If you end up as far North as Provo/Orem, I can tell you everywhere to go. Probably not likely, I don't know where you're coming from though and where you'll drive through. If you come up from the south, check out things in St. George, maybe there's a Real Foods store down there, the selection isn't super but what they have is awesome. Good Earth is great too, or Sprouts. I'm not sure how they do things down in St. George, but up here most regular grocery stores have a good selection of gluten free options. There is for sure a Harmon's down there, they're great. But if you come from the north, Provo/Orem is your last bastion of real civilization so stop in Orem (our options are better than Provo's) and stock up. If you're coming through Grand Junction, I can't help.

 

Also, if you're coming down from the north, DO NOT miss Eleanor's in Sandy and Sweet Cakes in Salt Lake City. I promise, they are well worth it. Eleanor's is a little tricky to find in a brick building, but is really quick off the freeway and both have to die for cupcakes. Eleanor's also has real food too, so you can grab lunch. You won't be sorry!


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#903707 Infuriating Article On New gluten-free Restaurant

Posted by Adalaide on 23 January 2014 - 08:13 PM

I used to be all panicky about the whole shared blah blah blah stuff. There's gluten everywhere, it's lurking in every corner, every crevice, every nook and cranny just waiting to get me. :ph34r: Then I got the whole the planet is a shared facility spiel and realized that I was being ridiculous. Who wants to live like that? Constant fear that danger lurks around every corner? If the only gluten is beer served either in bottles or cups so what? Let people who want a beer and are merely trying to enjoy the restaurant for reasons other than that it is gluten free either enjoy it and a beer, or enjoy a beer while being supportive of their gluten free loved ones. When I go out to eat with my husband we carefully calculate where to go so that it makes both of us happy, beer makes lots of people happy, gluten free beer not so much. It's beer in an otherwise gluten free restaurant, it isn't like they're doing something truly moronic.


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#903510 Does Anyone See A Neurologist And What Do They Do For You.

Posted by Adalaide on 22 January 2014 - 11:36 AM

Few neurologists (in my experience) will take a patient without a referral from a doctor. Frankly, after talking to so many receptionists and hearing so many ask what doctor would be referring me I would hesitate to trust one who felt they needed to take patients "off the street" without a referral. Your doctor can also help you decide if seeing a neurologist is what you need to do, before you spend the money on it. I expect my initial appointment tomorrow to last 30-45 minutes and cost approximately $300-400, so something like $10 a minute. Having a doctor help sort out which sort of specialist you should be seeing can save you hundreds, or even thousands of dollars. Especially if you're seeing the wrong sort of specialist and having unnecessary and expensive tests done that you wouldn't have had if you had seen the correct specialist in the first place.


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#902768 Feeling Down

Posted by Adalaide on 15 January 2014 - 12:13 PM

Testing you after a month was sort of, well... stupid. There was no point in it since you would barely have started the gluten-free diet, and I think all of us who are more than a year in look back at ourselves in our first months and are like "omg I was doing WHAT?!" So first, just calm down about it. Stress surely isn't going to help you at this point. And remember, you're lucky to even get the diagnosis, as many here were unable to ever conceive or carry to term due to being undiagnosed until it was too late. So there is much hope for you, you simply need patience.

 

Review the newbie thread, make sure you aren't missing anything that could be causing you issues. If not, then simply wait for your next check on your levels. And don't be upset if they aren't down a lot, healing takes time and it may take months before you start to see positive improvement there.

 

Don't be afraid to be proactive about getting the appointments you need to get. I don't understand if you have a first appointment with a surgeon and you just don't feel like it is soon enough or you can't get an appointment for some reason. As long as your doctor made the referral in your notes, you should be able to call and make and appointment yourself and just ask to have your records sent over if they're not in the same network where they can just see them on their system.


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#902231 Celiac Without Many Digestvie Issues?

Posted by Adalaide on 10 January 2014 - 08:41 AM

I live every day in pain. Sometimes it is bad, sometimes not so much. It is much improved on a gluten free diet since my diagnosis but it isn't better enough to live a normal life yet.

 

It is possible that someone would accuse me of using my pain to not do things I don't want to do. There isn't just pain, pain makes you tired. It is exhausting beyond what anyone who doesn't suffer with it can imagine to be in constant pain. This leaves only so much energy for life and activities. On bad days, this leaves me turning down opportunities to do things I want to. On okay days, I carefully calculate doing what I want and denying activities I simply find distasteful. (That might even mean I don't do my dishes every day.) And on my good days, I still limit how much of myself I give to things I do that are necessary, but that I don't enjoy because I know that doing them will tire me and cause more pain.

 

Quite simply, I enjoy things like trips to the zoo. No matter how taxing, and that I know that they will cause pain and discomfort, I still go on occasion. I am repaid that pain in joy. On the other hand when it comes to things like my doctor's visits or chores, no, I don't want to do them. I'm going to be caused pain and discomfort by the activity but gain nothing enjoyable from it. And this isn't just me. This is the same story over and over from people who suffer with chronic pain.

 

Hopefully there will be answers from the GI. It really doesn't sound at all inconsistent with celiac, and a simple diet change is so much easier to manage than something that requires pills and all that nonsense.


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#901885 Mast Cell Activation Syndrome (Mcas)

Posted by Adalaide on 07 January 2014 - 05:13 PM

I've mostly be lingering and watching. But I thought I'd just poke my nose in and say that I have this issue too. It took months of being beat over the head with the obvious before I admitted it, mostly because I'm stubborn and it was a third entire group of foods to eliminate and I was very resistant. It made a world of difference for me though. Honestly, the most remarkable and immediate was that I stopped using my allergy medication which I had been taking daily for half my life and only sort of worked. I'm waiting to see what spring is like though, since I do have severe tree pollen allergies.

 

For me personally, the two absolute worst offenders are tomatoes and hard cheeses. Processed is worse, and the harder the worse off I'll be. On the other hand, chocolate doesn't seem to bother me at all. Most other things fall somewhere in between. I balance my preservatives, other cheeses (A POX UPON... SOMETHING!) and pretty much everything else I eat very carefully. Most of the time. And when I don't, I end up with days like today and remember why I'm doing this.

 

I do the whole allergic to heat thing over this too which is darn inconvenient in the summer. I have to plan my whole life around the weather, plan what I'm doing at certain times of day. I almost can't leave home between certain hours at all and even in the evenings in summer and into fall I don't leave home without a sack of ice packs. (Thank you Lisa, saved my butt more than once last year!)

 

The whole thing is annoying, but manageable and life gets better following an appropriate diet. And, for some of us if necessary, we need to follow additional plans to minimize exposure through means other than diet but I'm not sure how many other people that bothers. Even with what seemed at first to be micromanagement of my entire life over this, it's as much second nature now as being gluten free and I'm so much better off. I'll review before hitting farmers markets and roadside stands in the spring (because I have SO MANY things I can't eat, personally), throw a sack of ice packs in my backpack and not give any of this a second thought.


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#901775 The What's For Dinner Tonight Chat

Posted by Adalaide on 06 January 2014 - 08:26 PM

I thought I'd share a little food porn. It's been a while since any of us did and I'm super proud of myself because my dinner was AMAZING! I was getting scared because the rice was tasting okay, but not awesome as I was checking it for doneness but once it was all together I almost died of pleasure. I've never made anything so good in my life. Irish, you are forever my hero.

foodporn_zpsfe7450aa.jpg


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#900351 Do You "display" Your Diagnoses?

Posted by Adalaide on 20 December 2013 - 07:41 PM

I have celiac. It is part of who I am, it does not define who I am. I have toyed with the idea of jewelry, but what I want far exceeds my income level and so I don't get it. (Pandora bracelets are expensive!) When I wear clothes (mostly tshirts) that identify who I am to the world, I am first and foremost a geek/gamer and after that a brony. I am far more comfortable having a conversation with a random stranger in Wal-Mart (or 5 random strangers in Hot Topic on Black Friday morning at 6:30) about video games or My Little Pony than some disease I'd rather forget I have for 2 freaking hours. Squeals of delight from small children "look it's Rainbow Dash!!!" pointing at me are far more likely to make my day than someone starting some conversation about celiac or gluten just to prove they have about as much knowledge as a Kardashian.

 

My opinions have evolved over the last 2 years, and I don't expect everyone, or frankly anyone to agree with me. But that's my 2 cents.


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#899708 Having Trouble With The Grocery Bill

Posted by Adalaide on 14 December 2013 - 10:01 PM

Some stores (most in my area) will discount fresh meats when they are "near" to their sell by dates. If you find out what time of day this gets done you can stop in and make some really great scores. I do this frequently, and can afford to stop in 2 or 3 times a week as 2 of these stores are within a mile of my house.

 

The other major thing I did for my grocery budget was to realize after it exploded that the reason that happened was the packaged foods. They cost a fortune! So I cut most of them out and cook nearly everything from fresh or frozen foods that are naturally gluten free.

 

I have a lot of family that does something like meatless Mondays or something like that. They do things with lentils or beans or... idk something like that. I can't really do much in the way of beans or lentils so that isn't in my immediate future but it's a great way to save money and keep to a budget.

 

I personally also love the breakfast for dinner idea. Even with a large family, a dozen eggs for under $2 will be more than enough for everyone. Add veggies in an omelet or some such and hashbrowns and you've got a whole meal.

 

Also, make sure you have checked for digital coupons for your local stores you shop at and have signed up for any rewards. Make a list before you go, check sales flyers online and then look for coupons you can print or check what coupons you got in Sunday's paper. There are plenty of coupons available that we can still use.


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#899146 Cold Snowy Winter Comin'............ Git Ready

Posted by Adalaide on 10 December 2013 - 07:11 PM

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