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Adalaide

Member Since 08 Jan 2012
Offline Last Active Yesterday, 08:13 PM
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#893719 Gluten Free Alternative To Zicam?

Posted by Adalaide on 29 October 2013 - 08:53 AM

Very few, if any manufacturers will come right out and say more than a CYA statement. It is nearly always "we don't use gluten but aren't making any promises" because just in case someone gets sick they don't want to get sued. It's just the way the industry works. With medications the cleaning practices that are in place are top-notch so the chances of CC from other products are so low they are almost nonexistent. If a drug manufacturer tells me the ingredients are gluten free, I'll take it.


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#892917 Holidays

Posted by Adalaide on 21 October 2013 - 09:45 AM

Because of the time of year you have received this diagnosis, how you choose to spend your holidays may shape your son's attitude toward his diseases for the rest of his life. The holidays are supposed to be full of love and joy, magic and wonder, especially for children. You can stay home and make it that for him, teach him how he can still truly enjoy it. Or, by forcing the visit and putting him in a situation where he will be surrounded hour after hour, day after day by people indulging in everything he can't have but remembers fondly he may very will end up with a heart full of resentment for not only his diseases, but the holidays as well. Not only that, but many adults here have fallen to lesser temptation. Don't expect to go and to have him actually stick to a gluten free, carb appropriate diet.

 

There are a lot of good ideas here on how you can still make the holidays wonderful and enjoyable for your son and the rest of your family. There are many ways to be together without putting your son so directly in the line of fire. Something that has been repeated here over and over is that if family doesn't understand that medical need absolutely has to outweigh their wants and whims and if they are willing to make no concessions to someone with such serious need, the family obligations may need to be rethought because they obviously don't value the person with need the way they should. Or, in other words, if your family gets all mad because you tell them you want to put your son's health first... they have some pretty messed up priorities of what "family" is.


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#892404 Elisa/act Lymphocyte Reactivity Testing- Anyone Heard Of This?

Posted by Adalaide on 17 October 2013 - 10:14 AM

The reason it isn't covered by insurance is because insurance companies consider it to be experimental/unproven. http://www.aetna.com.../1_99/0038.html

 

As pointed out, it is not a valid medical test for celiac and can not be used to diagnose. 

 

This is a fun website that I find has lots of interesting information about "medical" tests, practices and such. http://www.quackwatc...lergytests.html

 

If you feel you must have a diagnosis, you must eat gluten. You can also simply get a genetic test to see if you are at risk for the disease and passing the genes, regardless of whether or not you actually have the active disease. Many with celiac have children who don't have it (I have two) and many without celiac have children who do have it. (Where else would we have gotten the first celiac?) 


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#892115 Homemade Bagel Recipe?

Posted by Adalaide on 15 October 2013 - 06:53 PM

Hi everyone!

 

I'm looking for a good gluten free bagel recipe. I'm a good baker, so I think I'm up for the challenge! The recipe I have in my go-to book has a LOT of potato starch in it, and I'd like to make something a little more nutritious. Also, I prefer baking from scratch rather than using mixes. Anyone have a recipe they can share?

 

Also, I found this one online. Has anyone tried it? http://www.thebaking...ree-bagels.html

 

Thanks!

 

Everyone should make these bagels. I only needed prompting from one person saying they were awesome and I made some tonight. Well, they are in fact awesome. I've been eating Udi's bagels when I absolutely must have one because, well, they exist. I can't imagine any circumstance under which someone could induce me to touch an Udi's bagel again. Ugh...

 

At first bite you may even hear choirs of angels singing. Don't be alarmed as this is a normal reaction to amazing homemade gluten free baked goods. :)


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#892108 3 Year Old Acts "drunk" For Hours: Symptom?

Posted by Adalaide on 15 October 2013 - 06:22 PM

F he thinks its hypo- glycemia, what does he say to do about it? That sounds like a lot more than a mild response.

 

No kidding! That's pretty extreme for a hypoglycemic response. Did he recommend testing her during one of these phases to check for it? Hypoglycemia in a child that young would require medical monitoring and treatment for episodes, as well as lifestyle changes to prevent episodes. If your doctor is shrugging it off he's a moron and should be fired.


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#891942 3 Year Old Acts "drunk" For Hours: Symptom?

Posted by Adalaide on 14 October 2013 - 06:43 PM

I would certainly be concerned about slurred speech and would make an appointment with her pediatrician about that immediately.

 

As for saying things that don't make sense at all, repeating those things over and over and talking to herself? Sounds like normal 3 year old behavior to me. By itself it isn't a reason for concern. My kids frequently didn't make any sense to me, talked to themselves and were freakishly obsessed with repetition as most kids are.


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#891908 Do People Try To Make You Prove Your Intolerance?

Posted by Adalaide on 14 October 2013 - 02:45 PM

Last I checked having a kid make their own sandwich isn't some sick, twisted form of child abuse. By the time my daughter was 5 she had pushed and pushed me so far with wanting to be self-sufficient that I was letting her use the microwave a little with some supervision. And... not super sharp paring knives to cut things like strawberries and other not super hard things. Aren't kids supposed to learn their way around a kitchen?

 

If my husband is home and he wants something that is gluteny I make him touch it. I'm not going to touch it then have to wash my hands. I'm already surprised that I don't have cracked and bleeding hands from how often I have to wash them. Wipes won't magically get rid of gluten in a way that washing your hands wouldn't take care of about a million times better. The whole point is, why bother if someone better suited to the task is standing right there. Your MIL sounds like a real winner. (I may have a lot of pent up MIL hate atm and am willing to aim it at any moderately apt target.)


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#891815 Ridiculous Conversations

Posted by Adalaide on 13 October 2013 - 07:32 PM

I'll be the first to admit that I have the habit of calling the health food store the hippie store. (Which is confusing here because we have three health food stores so when I say I need to run to the hippie store my husband never knows where I'm going.) But I think the issue with people confusing gluten free and vegan is the general attitude of "hippie" that some people just apply to people who eat what they in their minds apply to a healthier way of eating. Vegans are hippies. Those gluten free people are hippies. Those weird paleo people are hippies. I'm not saying I agree with the sentiment, just saying I can see how it happens.

 

I've had some very painful conversations.

 

"Is that gluten free?"

"No, it has a ton of sugar."

:huh:

Please excuse me while I find the closest brick wall to slam my head against until I bleed because it will be less painful than the stupidity of the conversation I just endured.

 

And I think like everyone I get the "what can you eat?" question way too often. And they never ask with interest, it is always with the edge to it as if they think I'm on the brink of starving to death. "Oh you know... cupcakes, brownies, pizza, pasta, pie, crackers, cookies. It's a miracle I haven't starved to death yet!" :lol:


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#891716 My Experience At The Expo

Posted by Adalaide on 12 October 2013 - 04:14 PM

After I was diagnosed I considered what I went through for a while to be coping. At this point, I think I can say that day to day I simply live with celiac. Today though was all about therapy. Eight hours of gluten free therapy.

 

Anyone who knows me knows I was going to the Gluten Free Expo today because I haven't been able to shut up about it. It is the largest gluten free expo in the country, and I count myself very lucky that I don't have to travel to go. (Unless you count driving for 30 minutes mostly on the freeway traveling, and I don't.) There was something like 150 vendors there, the place was massive. Since they were doing a $1000 cash prize to one of the first 1000 people in the door, I got an early start and got there an hour before they opened the doors. I stood around in line, alone and bored mostly, and hungry. (Never eat before a food expo.)

 

Finally they let us in at 9. Instead of a pancake breakfast they had a change of plans and were doing a cereal breakfast. I was disappointed but decided that since it wasn't a hot breakfast I wouldn't spoil my day with pointless food I probably have at home in my pantry. I headed straight to an end aisle and started working my way up one side, down another. I did break some of my rules today, like screw my low histamine thing. I knew I'd be in unimaginable pain before the end of a long day no matter what I did so meh... So I had things like a banana popsicle for breakfast. And an entire small plate of cookie, brownie and cupcake samples from my favorite bakery. Which is when I noticed that they were actually selling red velvet cupcakes. Stop. The. Train. By 9:40 I was in a quiet corner in a chair enjoying a cupcake. It was heaven. :wub:

 

All day at the two separate stages there were various speakers and prize giveaways. I wanted to hear some of the speakers and hit all the prize giveaways so I had to take frequent breaks from my sampling. Which is good because by 10 I was sick from eating too much. :ph34r: It wasn't until a bit past 2 that I had been able to get up and down every aisle, sample everything I wanted to and see every vendor I wanted to.

 

I ate every imaginable sweet. Crackers and chips and meats and sauces quesadillas and grilled cheese and breads and cheeses and drinks... I can't even remember half of the things I found. At the concession stand they had Redbridge on tap. I didn't have any, but it was cool that they had it. :D I think one of the ones I was most excited about honestly was the Pillsbury cookie, I just wanted to know what it tasted like. (At $5 a tub it's more likely it'll snow in hell than someone will catch me buying it.) It's good.

 

Finally around 3:30 I scored an entire reusable shopping bag stuffed with food. I kept sticking around because they were giving away two grand prizes at 4:30, which I didn't manage to win. I still had a blast. They had a nutritionist with a really impressive degree (I can't remember the details but I remember being impressed at the time) who did a Q & A with the audience. Drs who did talks. For some reason the Fit2Fat2Fit guy... I didn't go listen to him because I still can't figure out what getting fat on purpose to understand fat people has to do with celiac. *shrug*

 

At the end of the day my favorite bakery was selling everything they had left for $1. I scored a bunch of cookies and cinnamon rolls. (They were out of cupcakes and I almost cried.) I was so burdened with stuff I was lucky I could walk at all. I am exhausted. I am in unimaginable pain. I still look as fantabulous as I did when I left the house this morning. And I would do it all again because tired and in pain it was a day like I never knew I could have.

 

If it weren't for a few extra intolerances that affect my vision and therefore my ability to drive home I could have eaten everything there with wild abandon without ever looking at a label. I got to talk to people who understand. I got to try so many new things, some awesome, some not so much. I can't say enough how much I think people should seek out similar events in their areas, even if it means a bit of traveling and go to them. It is enlightening and empowering in a way that is difficult to put into words.


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#891539 "no Shampoo"

Posted by Adalaide on 10 October 2013 - 07:43 PM

I don't mean to be a downer or anything, but the entire point of doing the baking soda thing for washing hair is to not use chemicals. The lack of a foaming agent makes no difference when the entire point of making this change is to simply strip chemicals from an entire aspect of your life.

 

As a matter of fact, I don't even use soap at all any more. I use completely homemade scrubs in the shower. If it weren't for the fact that I use lotions on my hands and feet I would be completely chemical free with my personal care.


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#888843 Gold Standard Vs. Feeling Human

Posted by Adalaide on 18 September 2013 - 06:22 AM

I would find out how long it will take you go get in before you make any decisions. Do some homework. Research GIs who accept your insurance in your area who are well versed in celiac. Contact them about waiting times and such. Go in to your next appointment armed with this information and tell your doctor you know who you want to be referred to. This can help shorten your waiting time and make sure you see someone who isn't a complete moron as well.


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#888705 Does Unilever Make Gluten-Free Sidekicks?

Posted by Adalaide on 16 September 2013 - 09:28 PM

Not only are those things not healthy, but to the best of my knowledge no company makes any such thing that is gluten free at a reasonable price. Rather than eating pasta, rice or potatoes out of a pouch that are full of fat and crap that is bad, or going gluten free when it isn't necessary, eating a healthy and well balanced diet may be the most effective step to good weight management.

 

Of course, it would help to have a good support system in place as well and frankly you come off as kind of mean about it. If that's how you're going to be about it, no wonder she eats crap to feel good because her family isn't making her warm and fuzzy inside. Nothing is more detrimental to a weight loss plan than having your family call you fat and lazy and shit rather than being supportive about your choice to change your life.


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#888226 The What's For Dinner Tonight Chat

Posted by Adalaide on 12 September 2013 - 04:15 PM

I feel like a human freaking being today! :D Sore and tender all over my leg and lower back but after the last week I'll take it. Sore and tender trumps actual pain every day of the week.

 

Tonight is BBQ pork loin, garlic tater wedges and a salad. Later tonight is the late late late show at the second run theater. Heading out to finally go see Lone Ranger. My daughter says its awesome, but she may be biased by her crush on Johnny. Although I think I sort of grossed her out when I told her his age (which is almost old enough to be MY father if he had become a parent at the age I did) and that I've had a crush on him since I was younger than her. :lol: Sometimes being a parent is hilariously fun in a really twisted way that involves warping young minds.


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#887550 Diagnosis Final Now

Posted by Adalaide on 07 September 2013 - 07:01 AM

bliss-smiley-emoticon.gif  Look at me!!! I'm outta bed!

 

So. I live with a wheat eater. Actually I live with 3 of them which makes things complicated for me but proves that no matter the ineptitude or lack of understanding of other people in the house, living safely with them can be done. One of the people is my husband, he is generally awesome and after these last few days I know I can even trust him to make me food. It was the first time in 1 1/2 years I trusted anyone to cook for me besides eating out. The other two people are his mother and her husband. After all this time I they really don't have any true understanding of what gluten is, or how little it takes to cause CC. They aren't bad people, they just don't get it no matter how many times I explain it.

 

I have a special circumstance because of living with people who simply don't understand the risks, or CC. Due to this I do not share any kitchen stuff. Not my dishes, pots and pans, utensils, appliances, nothing. At first I only bought new pans because every pan in the house was non-stick and crappy, old and damaged at that. I also bought all new utensils since all of the ones in the house were plastic or wooden and most of the plastic ones were pretty seriously heat damaged. I got cutting boards and a few other things and thought I was set. Most people should be. Definitely do not share a can opener, it has too many nooks and crannies to be shared unless it goes through a dishwasher every time your wheat eater uses it. I just use a simple hand one, it isn't a big deal. (I had almost talked my husband into a Gizmo can opener but failed. :()

 

I do have my own microwave because not everything I nuke needs to be covered and no one else ever covers anything. Just eewwww. I got a clearance one for $20 but a better solution? Cover things or keep it clean. The one installed is an over the stove so I can't reach to clean it without a stool and frankly... screw that when it is rarely my mess in it. A cleaning step I would recommend would be emptying your silverware drawer because I found that ours was full of crumbs. Than ban your wheat eater from opening it with unwashed hands and just make sure it is always closed all the way. Ours here have a habit of closing just enough so that crumbs can fall in from the counter. I swear this happens everywhere I live, can people not design a drawer that closes properly?

 

I keep a couple dozen dishcloths in the house. I don't use sponges because they're nasty, dirty, germ-ridden things for one. Secondly, once they are CC'd they're CC'd forever. Waste of money. That is why I simply use dishcloths and do my laundry fairly often. When I need to cook I wash the counter, twice for my own comfort. If your counters are of a porous material you'll want to buy a package of parchment paper sheets to put down also, or simply seal the counters.

 

Anywho, these steps should be enough for someone with a considerate wheat eater in the house. Talk to your wheat eater and set up rules that work for you. There are as many sets of rules as there are houses that are shared by celiacs and wheat eaters. It all depends on what is comfortable for everyone involved and what works for everyone in the house. Some will carve out a tiny gluten free space, some will carve out a tiny gluten space. The rules will probably need to be amended several times over the first few months while you get the hang of things. That is fine. You'll probably get gotten a few times, and probably because of your wheat eater. So here is my most important piece of advice. Never get mad at your wheat eater for it. They didn't do it to you on purpose. It is okay to be mad, but make sure they understand it isn't at them. Then if needed, amend your rules and keep going. The beginning is a learning process for everyone in the house and it'll take time.


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#887544 Why Is The Main Stream Media, Tennis Stars And Others Trying To Destroy The G...

Posted by Adalaide on 07 September 2013 - 06:31 AM

FWIW my most serious and only real concern about CC in spices and herbs was from myself having them before diagnosis. I baked a lot and simply replaced all of them because I would simply use the same spoons without washing or getting clean ones and would double dip from one spice to the next, or from flour to spices. A lot of my spices are McCormick, I also buy spices at Costco and a few other brands when McCormick doesn't have what I want which isn't often.


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