Maybe it is something simple to fix, or a temporary situation Krypto. Anyway, I hope so. Let us know what develops with the new doctor if you don't mind.
Welcome Colleen. Good to have you here. Your story of a slow diagnosis is unfortunately pretty common. Maybe that will change someday.
A good way to start the gluten-free diet is with a simple whole foods diet. That means no processed foods, mostly whole foods like fruits, veggies, and meats. Limited spices is a good idea too. The whole foods diet also reduces the chance of cross-contamination and making mistakes in the beginning. Plus the labels are much shorter and quicker to read. Another thing to avoid is sugar and sodas. But add pro-biotics and maybe some digestive enzymes too.
It is not unusual for people to alternate between good and bad days for a while as their intestines heal and begin to stabilize. If you get gassy peppermint tea with stevia may help. Plus it tastes good.
Did your docs check you for nutrient shortages? Sometimes we are low on vitamins and minerals due to mal-absorption in the intestines. It's good to know about that early on so you can focus some effort on correcting it.
I am glad the Lord led you to the site and thanks for your wishes that we heal. I don't know if that's possible after seeing those glasses you wear though. eek! :Just kidding. )
GFinDC; Those glasses keep me sane!!!! Thank you for your knowledge, you hit the nail on the head with it! I working on my vitamins and minerals. I am now reading a book called Fiber Menance-best $20 I've spent in a long time!!! You are a Godsend!
Hang in there Kryptonite, news sounds good so far! But please keep us posted!