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abaker521

Member Since 10 Jan 2012
Offline Last Active Private
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Topics I've Started

Celiac Disease And Hereditary Hemochromatosis

04 June 2012 - 03:17 PM

I was diagnosed with celiac disease last September and immediately eliminated gluten from all aspects of my life. I wouldn't even let my husband bring it in the house! I started to feel better.. but then I noticed weird symptoms began surfacing again about three months into the diet. Of course I thought it was CC or other food sensitivities so I became even stricter (stopped eating all grains and dairy). Still didn't feel any better. I had all my bloodwork retested and discovered I was vitamin D deficient so I started taking supplements everyday and didn't notice much difference there either. Aside from that the only lead I had was that I had very high ANA, macrocytosis (enlarged red blood cells, which wasn't from the obvious causes of alcohol, folate of B-12 deficiency) and I had high iron (my primary care doctor didn't even blink at that).

From February until now my hair has gotten extremely thin, my nails look totally wacky (the white part extends way down into my nail bed. They are also very brittle) my menstrual cycle isn't regular, I have constant brain fog, my skin looks orange (even though I rarely go in the sun), my joint hurts (especially in my hands and feet) and on any given day I'm an emotional mess. I had a colonoscopy and endoscopy done and my GI doctor said my villi are all healed from celiac. He also removed some benign polyps. Other than that I was fine. I went to an RA for the high ANA and he tested for every autoimmune disorder under the sun - including lupus - all came back negative. I was literally at my wits end!

My GI doctor mentioned that it was unusual that I had an elevated iron level considering I don't take supplements, I don't eat much red meat, and I menstruate. I didn't consider the high iron, because as a female you are always told you're going to be anemic and you always need iron. He ordered the test for hemochromatosis and come to find out I have the genes from BOTH parents (I'm C282Y Homozygous). Hemochromatosis matches almost all of my symptoms so I'm going to go to a hematologist soon for treatment. I REALLY hope that resolves everything.

I find it so strange that I developed celiac disease and hemachromatosis almost at the same time. Does anyone else have the same thing? I am also curious is this has caused my unexplained macrocytosis since iron plays a large roll in red blood cells. Still not sure why my ANA is so high, but hopefully that will resolve on it's own eventually. I want to he healthy again! :(

High Ana & Plastic Surgery Regrets

16 March 2012 - 07:19 PM

Hi Everyone,

Not sure where this post belongs but I wanted to reach out for some advise/opinions. :huh:

Two years ago I decided to have a breast augmentation. This decision took years to make and after I found a very reputable doctor I decided I should just go for it. I was 25. Fast forward two years, and I have full blown celiac disease, HIGH ANA levels, elevated liver enzymes, thinning hair, jaw pain, and my chest is just always uncomfortable. I thought when I was diagnosed with celiac, that was the answer to my health problems. I've been strict gluten-free for 6 months (recent bloodwork still shows elevated tranglut levels but normal gliadin levels).. but now I'm wondering if it's my implants. I'm sure autoimmune issues is in my genes, but now I'm concerned I just added fuel to the fire. In the next few weeks I'm going to run some more bloodwork and meet with a new GI doctor.. but I'm seriously regretting getting the surgery. Looks mean nothing if you're unhealthy and unhappy. My husband thinks I'm over-thinking it too much, but I just have this "gut" feeling that I can't shake. Any advise or opinions are appreciated. I know this sounds like a very "first world" problem.. but it's a big decision to get them removed. :blink:

Blood Test Still Positive

02 February 2012 - 10:04 AM

Hi Everyone -

I've been feeling crummy all week so it was no surprise that after my bloodwork was done on on Tuesday the nurse told me I still had elevated celiac antibody levels. All she said was back in September before I was gluten-free, I was at 80 and now (5 months gluten-free) I'm at 61. I have been soo strict.. not only with food, but with CC and also beauty products. Does anyone know if antibody levels can spike from foods other than wheat, barley and rye? Can corn or oats cause this? I recently cut out dairy and coffee too, just in case. I'm going to find a specialized, even if I have to go out of state. I never had a biopsy done because my doctor didn't think I needed it. Also, they only tested 2 out of the 6 things on the celiac panel. Not sure why. Lately, I'm just been super bummed. I'm trying so hard but getting nowhere. ..blah <_<

Going To Start Trying Soon!

13 January 2012 - 09:42 AM

Hi Everyone. I'm so happy I found this forum! :)

I'm 27 and have been married to my husband for 8 months (we've been together for 5 years though). I was diagnosed with Celiac 4 months after our wedding (in September). I'm so happy I finally discovered why I was withering away and always in the bathroom... but I'm definitely still recovering. I stopped taking birth control back in July and finally got my period in September (first 'real' one since going off birth control, and exactly two weeks after going gluten free). My husband and I really want to start trying in the next few months to have a baby, but I'm still terrified that I'm not completely healed. My OBGYN said everything looks good with my reproductive organs, but I want to make sure my vitamin levels and antibody levels are in check. I'm seeing my primary doctor next week (although he specializes in GI he knows little about celiac unfortunately). I think I've been getting CC'ed a lot lately so I'm a little discouraged about that. I actually just read in a previous forum the prenatal vitamins I've been taking (Rainbow Light Prenatal One) contain trace amounts of gluten, although labeled 'gluten-free'! Maybe that's why I've still been getting sick? Crazy. Anyways, I just wanted to reach out and see if anyone had any tips to prepare my body for a (potential) pregnancy. Vitamins you recommend? Best foods to eat? Tips for fertility? I'm open to anything! :P

Favorite Gluten Free Haircare Products?

12 January 2012 - 06:10 PM

Hi Everyone! I haven't had much time to really look into various gluten free haircare products, so I was curious to know what everyone uses or recommends? I've resorted to some of the cheaper products that don't really work well on my hair. Right now I'm using L'Oreal's EverStrong shampoo and conditioner. I also use Garnier Fructis mousse and sometimes Pantene's detangler spray (which I'm not 100% sure is gluten free). Any suggestions would be appreciated! I'm willing to buy expensive brands as long as they work! :rolleyes:

 

 

 


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