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ryebaby0

Member Since 17 Jan 2004
Offline Last Active Apr 29 2013 10:41 AM
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Posts I've Made

In Topic: College Search: Which Colleges Really Do A Good Job W/gluten-free?

29 April 2013 - 08:58 AM

My son is finishing up his freshman year, living on campus and eating in the dining halls, at Penn State UP. He has a frig and microwave in his room, for starters. I was really skeptical at first (and we had visited Ithaca, and it is impressive) but he has had a great year. All the dining halls have a gluten free station that is stocked with pasta, chicken, etc. and desserts, sides....there is also a nutrition intern who codes the main menu for gluten-free options and that is emailed to gluten-free students (who self-identify, there's no need for documentation). There's not a lot in the main menu that's gluten-free, but the station has been more than adequate for him. His dining hall of choice knows him on sight (this is a big deal on a big campus) and is very cooperative about tweaking things to suit him. The commons convenience store, for example, at his dorm started stocking yogurt and KIND bars for him when he kept buying those. There's a tasting session each semester for new products, and the dh manager contacts him regularly to see how he's doing. It's not perfect (we're local, so I bring him a stash of gluten-free homemades to supplement) but it's very good. You don't have to order ahead, either (this used to be the case apparently, but that was changed when the students kept complaining it wasn't practical)


In Topic: Broke Hungry College Kid

09 September 2012 - 10:00 AM

Your school really is required by law to offer you food. Did you pay for a contract, or are you living off campus? It's not okay to have salad forever. My son is a freshman, in his room he has: peanut butter,gluten-free pretzels, minute rice, raisins, yogurt, almonds, nachos, pasta (we freeze cooked pasta in single-serve microwaveable bowls), sauce (for the pasta), cheese, UDIs bagels (but those are expensive)

Anyway. Go talk to food service at your school. Go. Now. I have visions of you starving :)

In Topic: My Son's Health Continues To Decline!

07 September 2012 - 11:55 PM

This is similar to my son's course of diagnosis -- first dx with juvenile rheumatoid arthritis, then celiac. The gluten free diet did not improve his health, but people told us to be patient and wait. It was a dietician who insisted he be hospitalized and there he was dx additionally with something called autoimmune enteropathy. Basically, an misguided attack on his gi tract, launched by his immune system in error. We got a second opinion at Johns Hopkins. AE is treated with the same drugs they use for transplant patients -- there is no cure. Another thought is that he may need zinc supplements. Unchecked celiac will deplete zinc, and you need that to absorb nutrients and cells need it to grow.

Anyway. Get yourselves to a doctor as soon as you can. Get a blood test and check his basic nutrient uptake. Start a food diary, because they will be sure you are just missing the gluten in his diet. Post what he eats here, and maybe someone will see something. But make an appointment at any major medical teaching hospital.

In Topic: My 2 Year Old's Endoscopy Is Next Week -Very Nervous

07 July 2012 - 07:27 PM

The scope is scarier for you than her. The biggest thing is for you to be calm. Completely calm. At 2, she's not gonna understand a lot and she might not like all these strangers bugging her. Bring things to distract her (I used to bring Pokemon cards and we'd get engrossed in unwrapping them and seeing what we got). Stay calm. The scope itself is pretty unremarkable and routine from a medical point of view. They'll have you sign a bunch of scary stuff but try to not worry. If this is her first sedation, she may come out of it yelling --- that's a weird thing kids do the first time, also, sometimes they throw up. The doctors/nurses will be expecting that sort of thing. Remember that hospital time is very slowwwwwwwww so just make an adventure of it. Distract, distract, distract.

She'll be groggy and sleepy. That's a good thing. Don't let her have anything to eat or drink prior to the scope within whatever guidelines they give you -- usually 12 hours for us. Don't try to bend the rules. She's not going to remember very much, if anything, about the day.

Good luck, and be well. My son is now almost 19 and hasn't had a scope in years. He's a happy, healthy, well-adjusted and well-liked person who went to lots of parties, lots of trips, and was never once seriously teased about his celiac status. Your daughter will be fine, and so will you. ((hugs)) to you both

In Topic: Story Land Nh Area Restaurants

07 July 2012 - 07:19 PM

Rafferty's in North Conway: http://www.raffspub.com/ which is not really near Storyland at all, but well worth the trip. It's like a regular restaurant, only with it's own gluten free menu. With actual choices. We have family in Rye and always drive the whole stinkin' way up to Conway just to eat lunch there!