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Carebear

Member Since 02 Feb 2012
Offline Last Active Nov 20 2013 09:21 AM
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Posts I've Made

In Topic: Moving To France, Very Gluten Sensitive - Help!

15 November 2013 - 10:49 PM

Thanks so much for all the great responses! I haven't been on iherb.com, but it looks fantastic and will likely be a lifesaver.  BelleVie, thank you for the reminder that anyone who doesn't take the time to understand truly isn't worth the trouble.  It will be a tough adjustment with multiple likely slip ups in the beginning, but I think it will be a truly rewarding experience.  Survivormom and luvs2eat - I wish I could bring you with me! :)

 

Please keep any advice coming - this forum is so incredible!

 

<3


In Topic: Moving To France, Very Gluten Sensitive - Help!

14 November 2013 - 08:46 AM

Nobody out there with any advice?


In Topic: Newbie Adjusting The Changes In Socializing

04 November 2013 - 10:42 PM

I'm new at the gluten free diet too - just passed the one month mark.  I went out to a restaurant for the first time since my diagnosis this last Friday night - it was a Halloween party and they had a buffet.  The wait staff could not have been nicer.  I spoke to one of the waitresses on the side, told her I was gluten intolerant (people seem to be more familiar with that than Celiac Disease - and assume they're the same thing) - anyhow... she actually knew what that was and quizzed the chef about what had been thickened with flour, etc.  She even brought me out the jar of BBQ sauce they had put on the ribs so I could read the label and make sure I could eat it.  I had gone prepared with some of my own food in case there wasn't anything there that I could eat but my point in all of this is that it IS possible to have a decent experience at a restaurant.

 

 

 

 

A friendly warning - when I was at the one month mark, I could handle all kinds of CC and gluten traces.  As my diet became cleaner, however, I became much more sensitive.  Please be careful!


In Topic: Did Anyone See Friday's Ellen Show?

04 November 2013 - 10:36 PM

I agree, that is sad!!! I feel truly blessed to have a husband who has a digestive disease as well.  He totally gets it, as do any friends who were around when I was diagnosed (I was sooooo sick, and very very pale and thin).  Both my husband and I see media in this vein, and it's so disappointing.  Ignorant people sure can be jerks!  I've had ex boyfriends tell me I should "suck it up", it's just a little diarrhea!!!


In Topic: Endurance Issues And Exercise Intolerance

31 January 2013 - 11:45 PM

I definitely had problems like this when I was first diagnosed and when glutened now - even if it was only a small amount. It was AWFUL! I mountaineer, so I went from 20+ mile and crazy elevation gain hiking/climbing trips to barely being able to move around my apartment. Do you have edema? Bad edema days make me feel weighty and sluggish (and I am weighty with edema - I lost 15lbs of water weight within 4 days of going gluten free - seriously not kidding!). Stick to the diet, especially if your IgG level is super elevated. I had a positive biopsy but my only positive blood test was the IgG which was 4x higher than the normal level. IgG's are not specific, meaning they can bind to other similar proteins in addition to gluten. I started out on the SCD diet when I was first diagnosed because I was reacting to all grains and some other proteins that are supposedly similar to gluten, but now that my antibody levels are normalizing I've been able to start eating more. Sorry that was a bit rambly - it's getting late over here!