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dani nero

Member Since 06 Feb 2012
Offline Last Active Nov 19 2014 08:23 PM
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#804161 DH Photo Bank

Posted by dani nero on 17 June 2012 - 02:19 PM

I thought that a thread containing a collection of the different shapes and forms of DH could be helpful to people looking for something to compare their own rashes with. So go ahead and post your rashes here to help others find a point of reference. Please add associated symptoms and a short history.

I am however doubtful of this idea being a good one because some people might add photos that are not related and confuse people who are new to all this. I hope it will be ok and if it's not then it's ok to delete this thread and I apologize in advance ;-)

Since I haven't seen a rash that is milder than mine I think that it's actually a proper coincidence that mine is the first one :-)

These images were taken when the rash was in it's mildest form. It has sadly developed since these photos were taking, and gets pink swollen bumpy areas under the blisters. It is also starting to spread to the next finger and on the webbing between my fingers.
The rash used wake me up at night with a blistery, throbbing, itching, and burning finger when I used to consume gluten. Now it mostly burns whenever it shows up with very mild itching. The water in the blisters is clear.

http://rainytown.se/...0524_065253.jpg
http://rainytown.se/...0524_065311.jpg
http://rainytown.se/...0524_065505.jpg

Important: Please note that I'm self-diagnosed, meaning this rash is based on my own speculations based on my symptoms all put together.
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#800625 How Did I Get Glutened!?!

Posted by dani nero on 04 June 2012 - 03:05 PM

ive been IFing. for very long time.

even muhammad says to eat one meal every other day.

you guys really are stepping outta your territory to come over and say all this stuff how its dumb and yadd yadda. when youve never heard it, researched it, etc etc.

you eat your 5 meals a day. eating is just self medication. a ritualized drug. gluten free or not.


What they're trying to tell you is that it doesn't matter if you're eating just once or a gazillion times a day. The problem isn't how many times you eat, but what you eat. If any meal you consume contains gluten, and you do have celiac, it will cause damage to your body.

Just a pointer though in case you decide to cut all gluten from your diet. If your dogs eat dry dog food, make sure to check the ingredients, since most brands contain wheat and have been a problem for some of us here.
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#799845 Oh, It's Just The New Thing!

Posted by dani nero on 01 June 2012 - 05:10 AM

Just give them a small history lesson in celiac. It was discovered ages ago. There's nothing new or "thingie" about it. It's just what it is. If people care less about educating themselves by actually reading rather than just watching silly shows, why should we bugger ourselves over it ;-)

My whole family except for my mom and hubs don't believe me, and I'm still in the process of making myself care less about what they thing.
We need to relax, care less about their "oh so insightful opinions" that come from daily shows, and enjoy our journeys to good health being gluten-free :-)
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#797890 New Member Newly Diagnosed

Posted by dani nero on 23 May 2012 - 04:18 PM

Changing the type of fuel (what you eat) that you run on, means your body's chemistry changes.. Or at least I believe so.. Hang in there :-)
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#797206 Spouses Who Suck

Posted by dani nero on 20 May 2012 - 11:31 PM

I'm sorry about this thread everyone... I posted it from my phone while we were sitting at the restaurant with our friends, because I really needed to blurp the vent out to someone who would understand how I was feeling at the time before I started crying or getting others aware of the situation. I didn't want to embarrass my hubs or myself and I knew our friends would have thought I was the type of woman who likes controlling her husband or something. He doesn't really suck, and I didn't really want to dump him.

Ranvenwoodglass, MitziG, and Bubba's Mom, your delicate way at putting it got me to re-evaluate the situation and be able to enjoy the rest of the day at the island with hubs and friends. Thanks for being frank, understanding and for the invaluable tip about the toothbrush! I probably would have spent most of the day sulking, but we ended up having a really fun day :-)

Jestgar, I read your response while we were in the car driving back home. It made me laugh out loud, so hubs asked what I was laughing about haha :-) He already knew I was upset earlier, but I explained to him about the post, and read your reply out loud, and he burst out laughing as well. Now being called stinky pizza breath will be one of our inside jokes!

GFinDC, that's ok.. Us women can be real hot-heads on the other side, but thank goodness for the men who are very understanding, regardless of how fast / slow they get used to things!! I really don't mind carrying the toothbrush for him, it'll fit in my handbag without problems :-)

bartfull, tuxedocat, and Motherbird7.. I'm not sure what to say. My hubs does get to indulge himself with gluteny things under normal circumstances, and I never read the story about a chef and his gluten free girlfriend. I set the bars as high as the expectations any woman would have when her hubs makes plans with her for a romantic day :0
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#795742 Deeply Frustrating LGBT Issue

Posted by dani nero on 15 May 2012 - 12:04 PM

Seriously - women are VERY picky.

Part of it is that women are picky and part of it is that our subculture also has its own issues... the lesbian community has a particular ideal that IMO is probably hard for a lot of women to live up to - we have to be healthy and fit and badass and independent and professional; you have to be "equal" and I'm really only equal to someone who has a history of being sick as well, or has other issues. I found that men pretty much took me as I was and also, my body type (very retro curvy; I'm built like Joan from "Mad Men") was attractive to many men, whereas it doesn't really fit the skinny or athletic androgynous lesbian ideal. I dress femininely not because I'm "femme" but because skirts and dresses are the best look for my body type and I feel confident this way.

I'm kind of discouraged with regard to dating, because all I really seem to attract are people whose lives are even more of a mess than mine is. At least I'm trying to fix my mess. The reason I'm NOT professional is because I've literally spent most of my life being sick (in ways that manifested via neuro issues). I'm in school right now with the idea of becoming a therapist, but I've had a lot of setbacks on the way to discovering I had a gluten problem.

I am so tired of the snootiness I encounter from women who "have it all together" that it's almost preferable to me to be with someone who has had some kind of challenge to surmount.


You might be happier focusing on the things you like to do and who you like to be rather than what others would accept you as. Wear a pretty dress and go out for a big juicy steak. You actually need someone who will like who you are in your life, so do what makes you happy, and if someone likes it, they're very welcome to share that life with you.
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#795206 More Restaurants Refusing To Accommodate

Posted by dani nero on 13 May 2012 - 11:47 AM

I actually don't eat out anymore .. I got glutened too many times, and now I don't bother anymore because people aren't aware enough about celiac safety, and I'm usually too hungry or too embarrassed to have to explain to them why they have to change their gloves or wash their hands.. but I still have to say that suing the restaurants for making mistakes is just silly. If the staff members don't have celiac, then their minds aren't trained to be able to prevent themselves from making mistakes, specifically when they are doing things that they do 100 times a day and their brains are on autodrive. They don't live with it, and therefor not used to it, and making these mistakes is so easy in in a stressful and rushed restaurant environment.

I'm sorry to say this (I have been sortof a pessimist lately), but it's not possible for restaurants to offer a 100% safe service, and not all people are as understanding as we are.. they are going to sue, and I therefor conclude that less and less businesses will bother with providing us with their services. We're too expensive and risky to accommodate!
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#794273 Is It Normal To Lose Weight When You First Go Gluten Free?

Posted by dani nero on 09 May 2012 - 03:25 AM

I lost 2 pants sizes when I went gluten free a few weeks ago. I have recently started eating more chocolate and sweets, so my weight lose has slowed but if you notice cutting out gluten, usually means eating altogether healthier, no matter if you are gluten intolerant or not.


I'm afraid I can't agree with that. In my opinion, eating gluten-free doesn't necessary mean you're eating healthier. Gluten-free bread and pasta, as well as any gluten-free processed foods are still.. processed and will have the same toll on the body as any wheat-based processed foods.

Eating healthier means eating natural foods (that don't require a label in order to know what they contain), and not overdosing on sugar, saturated fats, chemicals, coloring, preservatives, salt and so on. In my opinion that is.

There are people who have a cola and snickers for breakfast, yet are slim because their body type can handle it. That doesn't make them healthy people. I just don't measure health by weight alone.
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#792716 When Someone Asks, "how Can I Get That [Celiac]?"

Posted by dani nero on 02 May 2012 - 07:19 AM

Face it guys and gals.. Those who are fatter want to get thinner, and those thinner want to get fatter! Those who are neither thin nor fat probably don't like their bodies either haha :-)
I would say "let's all just be happy about our looks and be thankful of what we have", but then I would be a hypocrite!
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#791297 Weird Looking "object" In Gluten-Free Mall Banner

Posted by dani nero on 27 April 2012 - 12:11 AM

What a thread lol :-P Can't believe I missed it!

The very simple answer is overexposed lighting (because she's in direct sunlight) together with lots of contrast, and missing links (the lines are not connected) :-)

The lollipop in the center of her head is creating a line-gap in the object behind it (her head), and our minds are usually programmed to be able to connect gaps in lines, but in this case the lighting of the image is really overexposed (making the light areas very light, and the dark areas very dark with a lot of missing tones in between), so some brains might not be able to make the connection between the lines due to the humongous difference in lights and shadows (the amount of contrast).

To help put your mind at ease.. I connected the lines for you :-)
But I really hope that my rushed drawing won't create even more confusion! :-O

Posted Image

Here's another example I borrowed off the net to show you what I mean with overexposed lighting + contrast

Posted Image
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#791179 Undiagnosed Celiacs 98%

Posted by dani nero on 26 April 2012 - 01:31 PM

I don't feel that it is a rediculous attachment to food. There are food "memories". Jesus even said "I am the bread of life" because their life revolved around bread at that time and they would relate! It's grandma's biscuits and sitting around eating pancakes after sleepovers. It is birthday cupcakes from a bakery and sharing a family meal at the local pizza parlor. It is only drinking the juice at communion but pretending to take the bread so noone would know (yes grandma cried when she saw that!). There are memories in food that she has to get over not just the gluten. It is also more "social" for an 11 year old and I have to hold her when she cries because she feels left out of things. She has to take her own food to church every single Sunday because they have snacks there. She feels "odd". And does anyone rememeber middle school? You don't need a reason to feel "odd". Once she cried because everyone was eating Dunkin Donuts but she waited until night to cry so no one saw her. Yes, we have her gluten-free donuts to take but she still remembers 4 months ago what those real ones taste like. She offered me all of her birthday money ($85) if I'd get her a real donut. She asked me about dating down the road (wayyy down the road) and where could she go on a date.
I just read here where people's symptoms go away almost immediately after starting a gluten-free diet so I guess sometimes I want to wait until her first stomache ache caused by gluten. Then I'd start. But like I said I am not. I dont' want to risk other auto-immune disorders. I have switched shampoos, bought new appliances, and cleaned all cabinets like someone with OCD. But it is still hard. It would be much easier if it had happened to me and not my child. I am just talking it out....out loud.


Also, getting stomach aches might not be one of her symptoms, so she might be developing other serious issues but not know about them because she's not getting tummy aches. I've never been diagnosed because I never developed the classic symptoms, but look at me now.. I can't work out without getting weak, I never got a period without medication and if I hadn't found out about gluten I would have still been thinking I was infertile. My point before and now are that a lifestyle revolving around food can be adapted, it's never easy because no one can see it at first, but it eventually does because we're adaptable creatures. A lifestyle with painful symptoms is harder to adapt to though.
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#791171 Undiagnosed Celiacs 98%

Posted by dani nero on 26 April 2012 - 01:19 PM

I don't feel that it is a rediculous attachment to food. There are food "memories". Jesus even said "I am the bread of life" because their life revolved around bread at that time and they would relate! It's grandma's biscuits and sitting around eating pancakes after sleepovers. It is birthday cupcakes from a bakery and sharing a family meal at the local pizza parlor. It is only drinking the juice at communion but pretending to take the bread so noone would know (yes grandma cried when she saw that!). There are memories in food that she has to get over not just the gluten. It is also more "social" for an 11 year old and I have to hold her when she cries because she feels left out of things. She has to take her own food to church every single Sunday because they have snacks there. She feels "odd". And does anyone rememeber middle school? You don't need a reason to feel "odd". Once she cried because everyone was eating Dunkin Donuts but she waited until night to cry so no one saw her. Yes, we have her gluten-free donuts to take but she still remembers 4 months ago what those real ones taste like. She offered me all of her birthday money ($85) if I'd get her a real donut. She asked me about dating down the road (wayyy down the road) and where could she go on a date.
I just read here where people's symptoms go away almost immediately after starting a gluten-free diet so I guess sometimes I want to wait until her first stomache ache caused by gluten. Then I'd start. But like I said I am not. I dont' want to risk other auto-immune disorders. I have switched shampoos, bought new appliances, and cleaned all cabinets like someone with OCD. But it is still hard. It would be much easier if it had happened to me and not my child. I am just talking it out....out loud.


I understand you're speaking from frustration because you hate seeing your daughter deprived, but I still can't understand why all that you've mentioned outweigh someone being able to escape a lifetime of symptoms.
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#791139 Help! Please!

Posted by dani nero on 26 April 2012 - 12:42 PM

I am emailing my teacher now to let him know my situation. My other teacher is already aware. I have a bunch of chicken and rice! But I cant eat that all day! I need something I can take with me on the go. I usually eat bananas when I'm on the run and I eat kale and broccoli for greens. I guess I can finish up the last of bananas and buy a few pears instead. However bananas don't cause we to break out no matter how many I eat.


Here is a list of fruits that are ok (ranging from none to low amount of sals):

Banana
Pealed Pear
Lime
Apple – golden delicious
Nashi Pears
Papaya
Paw Paw
Tamarillo

Broccoli is sadly high on sals so you don't want to buy that anymore.
As for veggies (also from none to low amount of sals):

Bamboo Shoots
Beans (dried – not borlotti)
Cabbage (green or white)
Celery
Green Split peas
Lentils (brown)
Lentils (red)
Lettuce (iceberg)
Peas (dried)
Potato (old/white and peeled)
Swede
Bean Sprouts
Borlotti beans
Brussels sprouts
Cabbage – red
Cauliflower
Chickpeas
Chives
Choko
Fresh Asparagus
Green Beans
Green Peas
Leek
Mung bean sprouts
Onion
Potato (white with peel)
Shallots
Yellow split peas

and veggies with medium sals, meaning you have to eat them in moderation:

Asparagus – tinned
Aubergine – peeled
Beetroot
Black Olives
Canned Asparagus
Carrot
Fresh Tomato
Frozen Spinach
Lettuce (other than iceberg)
Marrow
Mushrooms
Parsnips
Potato (new and red Pontiac)
Pumpkin
Snow Peas
Sprout
Sweet corn
Turnip

Beware though that you should avoid any beans, mushrooms, and cauliflower if you want to go on candida diet as well as sals.

As for the rice, you can have rice one day, potato another day, and so on. You can even try brown rice as a third alternative since it has a different flavor and consistency from white rice so it won't feel the same. Just make sure that the rice you're buying isn't mixed with barely or some glutenous grain.

If you're short on time make a large batch and then pack a small lunch every day with a fork. I know repeating what you eat is tedious, believe me I've gotten so sick of what I eat because I can count the things I eat on my fingers, but it's something you might have to put up with for a short while for the sake of feeling better.
If you get really bored of the repetitive foods, just post all the things you can eat on a forum post and ask for recipe suggestions. You'll get flooded with amazing ideas :-) and I speak from experience!
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#791089 Undiagnosed Celiacs 98%

Posted by dani nero on 26 April 2012 - 11:19 AM

I'm sorry if I'm going to sound harsh, but I don't get this ridiculous attachment to food. There is more to living than eating. Yes there is a chance she will never get symptomatic, but what if she will? Let me tell you that I WISH my family knew about celiac when I was 11 and had no symptoms yet, then I wouldn't have to be going through what I'm going through now. It's always hard at first, but once you're used to it you stop understanding what the big deal was about. Being "normal" depends on each person's perspective, not the majority's.
I'm speaking for many of us not just myself. What will you tell your daughter if one day she ends up unable to workout from being too weak, or if her body gets covered with itchy watery blisters? "Sorry hun but I couldn't bare the thought of you not enjoying your bread"?

I know I'm sounding insensitive, but I can't understand why you let food dictate the quality of your life. Simply read around the forum and see what some of the these people are going through, and the solutions they have come up with be able to blend in and live happy lives without feeling too sorry for themselves. It would be really nice to avoid living a life with countless unexplained symptoms that have a mind of their own.
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#787713 Appetite Changes?

Posted by dani nero on 15 April 2012 - 01:06 AM

Hi guys –

I'm still getting over being glutened while on vacation and then cc'd by 2 dogs I was pet-sitting for last week. One huge thing I noticed after going gluten-free was my appetite! Things finally seemed to satisfy my insatiable hunger... which was fantastic. Well, it came back and I feel just ravenous; I'm hungry now, but I ate part of an apple 15 min ago and a very decent sized dinner 3 hrs ago. I know it will probably take some time to regulate again (it didn't immediately resolve after going gluten-free)... but it's frustrating/confusing: do I follow the signals my body is giving me or no?? Anybody else get this after being glutened?? Have you found anything that helps?

Thank you,
~Laura


Hi Aerial! I'm sorry I don't have a definitive answer for you, but I'm in the same boat. I've been gluten free for four months or so and I'm still always hungry and overeating. If I dare do some speculation of my own, I would guess that this doesn't only have to do with gluten and healing.. It might have to do with our body's previous programming and what we made it used to getting.. which were foods we're not allowed to touch anymore. Deprivation could be causing a mental reaction.. so the body might think it's being starved, and as a result urges us to eat more of what we're eating now. Maybe this is a simple case of mental rebelling due to deprivation, or maybe it's just the glutenation's side effect. I don't really know ;-)
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