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dani nero

Member Since 06 Feb 2012
Offline Last Active Aug 11 2013 11:49 PM

Topics I've Started

I Really Need Help :-(

17 July 2013 - 03:27 PM

I never had stomach pains before going gluten-free.  5 months after going gluten-free however, I experienced a severe pinch/ sting in the very bottom of my stomach (by the pelvis bone) either to the left or right for two days. I assumed the pain was due to being glutened (since others specified that cramps can develop once a person has gone gluten-free). My assumption seemed to be accurate since I would experience those cramps (together with constipation) whenever I ate packed foods, but would not get any symptoms if I simply stuck to dishes which I've made at home from raw ingredients. 


By packed foods I don't mean chips or tv-dinners, I mean plain nuts, peanut butter, tahini, gluten-free soya sauce, vanilla essence, and things like that.

I live in sweden by the way, and many (but not all) manufacturers are not very knowledgeable about cross-contamination. I have called many companies and most of them process wheat or gluten containing ingredients in factories which produce foods that are supposed to be gluten-free. In sweden, most people think that simply not adding gluten to a food is what makes it gluten-free.


The thing is, it just seems unrealistic that I'm getting these cramps from almost any packed foods I eat. I'm starting to think it might be something else which is causing them, and that I'm depriving myself from eating many things needlessly. I have already tried so many brands of different foods, and the cramps usually show up. I went to the doctor complaining about these pains, and the man didn't find (or do) anything. 


My diet is already extremely restricted. I avoid eating sugar, soy, corn, potato, rice, lactose or legumes. I avoid eating them but that doesn't mean that I don't use corn or potato flour/ starch in cooking however. 


The cramps are not constant. They come and go throughout the day. I would feel a sharp pinch /sting by my pelvis either to the left or right, and my back muscles would be sore as well. They usually last for two days, and I would also experience constipation. I don't know if this is related but I usually get hungry for days once the cramps stop.



I'm away visiting family in London right now. I had some marinated chicken from the store the first day I got here which was 10 days ago, and the cramps started the day after of course together with the constipation. They were severe and painful. I was so fatigued I could barely move. I had to use medicine to get my stomach going because nothing else usually works. 


I had already decided not to cook in someone else's kitchen before arriving here, but I ended up having to do so after what happened with the chicken. As a result, my family were regarding me as an obsessed crazy person because I kept wanting to wash everything before using it, and because I'm always worried about someone dropping something into my food while / before cooking. Just the other day, I found an open bag of wafers lying on top of my cooking things. Exactly why I didn't want to cook outside my own kitchen.

I decided as a result to eat only raw foods and spare myself from worrying about people's reactions and absent-mindedness, but I started feeling really faint, so I bought myself some smoked salmon. The cramps persisted. Ouch. I went to the store again and bought nut-oat cookies this time (which also contain corn, tapioca and rice flour).. Not compatible with my no carb or sugar diet but I was really, really starving and feeling lethargic. 

The cramps seem to be subsiding now, but I can still feel some faint ones in the morning or evening. 

I am really sorry for mentioning this so please don't read on if you'll get grossed out: I was finally able to get BM on my own without medicine today and yesterday, but it was undigested food. 


I decided this morning to read the label of the salsa which was the same brand as the one used on the chicken the other day, and I found that it contains wheat.. meaning that I didn't just get cc from the chicken, but a full good dose of wheat. That was 10 days ago however! These cramps could be caused by some other problem that isn't being addressed. 

My brother thought that they could be caused by irritated bowels, and gave me buscopan. I didn't notice any change after taking it however. 

I'm begging anyone who has experienced these cramps or might know what could be causing them, heeeelp :-( I need to know if it's possible to be THIS sensitive.. to react to almost anything or if this might be something else. 

I'm worried that I'm simply depriving myself from sooooo many foods for no reason.

3 Weeks In London

18 June 2013 - 12:03 AM

Hello forum dwellers. For the first time since going gluten free, I'll be away from home for more than 10 days. I'm extremely sensitive by the way.

For example, here in Sweden, I am yet to find a single swedish brand of nuts that will not cause a reaction. The only brands I don't react to are the imported american ones.


I'll be staying with my brother in London for 3 weeks. They offered to buy me a dedicated pot for cooking, but I'm not so keen on cooking in a gluten-containing kitchen to begin with, so my plan so far is to live on fruits and vegetables.. but 3 weeks is a bit long :-(

To make things worse, I avoid eating rice, corn, potato, soya, salt, sugar or any product which contains these foods since I'm always struggling with my weight.. and I'm also lactose intolerant. 


Can any UK residents who happen to be as sensitive as I am help me figure this out? I need to know of any safe nut brands which are preferably low on salt. What would really be a dream come true, is if one of the supermarkets offers ready made gluten-free foods such as grilled chicken or salads. 


I think that Nando's offers gluten free chicken, but I'm worried that living off a restaurant would be costly. 


Please rescue me :-)

Lost A Parent To Celiac

19 May 2013 - 11:27 PM

Hello everyone! Many of you might not remember me. I was very active on these forums about a year ago. I then decided that it was time to change the habbit of eating, sleeping and breathing celiac disease, because I was doing nothing else but reading and writing about it.

I am feeling much better now that I have been on the diet for over a year, and it's all thanks to the people here. I'm not sure if you are still around but thank you!


I have sadly lost my mother back in february, and I have reason to believe it's due to an undiagnosed celiac condition, but I can't be sure because they did not do a biopsy on her. I'm wondering if I'm right about this so I'm wondering if anyone else knows someone who passed with similar symptoms.


I would firstly like to say however that this is a painful subject for me, so I beg that everyone would  not use this topic as an example or evidence to proving that celiac disease takes lives if untreated just to feel better about being confirmed and right about taking it seriously.


In any case, my mother passed away quickly in her sleep. She had been complaining about nausia  for a long time. Her blood tests showed that her potassium levels have been way too high due to kidney failure, and the amounts of potassium had caused her heart to stop, they also concluded that she had a minor clot traveling through her body which landed in her brain. They never said which came first however, the clot or the heart attack. She used to be a heavy smoker, but was on her way to quitting for about a year prior to her passing. I don't know if it's the smoking, or the kidney failur, or if it's both. I'm wondering if anyone knows of celiacs who developed clots?


I forgot to mention that she was just over 60 years old

L'oreal Kérastase (Oléo Relax: Nutritive + Anti-Frizz Serum)

09 August 2012 - 11:47 AM

Got gluten-symptoms two days ago, and can't figure out why for the life of me. I was careful about what I put in my mouth, the house is 100% gluten-free, and yet here they are.

The only thing that is new is this leave-in conditioning serum which I used for the first time.
I did check the ingredients and nothing indicated that it could contain gluten. It only has sals which I thought would be ok since it's only applied to hair-tips. There is very limited information about it on the product's website and they don't even provide an email address. I'll have to call them, but thought I'd ask if anyone here knows in the meantime.

The Ingredients include:
Cyclopentasiloxane, Dimethiconol, C12-15 Alkyl Benzoate, Benzyl Salicylate, Linalool, Citronellol, Geraniol, Elaeis Guineesis oil/Palm Oil, Shorea Robusta butter/Shorea Robusta Seed Butter, Benzyl Alchohol, Eugenol, Perfume/Fragrance.

So anyone ever used this serum before and know if it's safe? Here's a picture of the product.

Gluten-Caused Cramps

06 August 2012 - 11:16 AM

It would be great to get as many to share their cramp-symptoms as possible. I have constant crams nowadays and it got me thinking, what if they're something else?
For those of you who get constipation, please join in too.

1. Do you get C or D?
2. How long before the cramps begin?
3. Does the pain occur in the same place or can it vary? (upper/lower abdomen and left/right)
4. How many days do the cramps last, and for how long each day?
5. Do you get back-pain? If yes, what type (location, is it movement-induced or constant and stingy?) and for how long?
5. Does muscle and joint soreness occur at the same time, before, after, or throughout?
6. Any specific signs that help you differentiate the cramps from other types of problems? (reflux/ indigestion/ period/ kidney/ gallbladder/ pancreas/ IBS)

I might add more questions later.
Thanks so much for those of you who take the time to share.