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Member Since 11 Feb 2012
Offline Last Active May 08 2012 07:29 AM

Posts I've Made

In Topic: Non-Celiac Gluten Free Withdrawals?

01 May 2012 - 05:56 AM

Non-celiac people can still be gluten-sensitive and there are countless symptoms of gluten withdrawal. Everyone is unique so what you describe could be a withdrawal symptom. Your post however reminded me of something I went through when I changed my diet.

When I first went gluten-free, I still ate a ton of gluten-free carbs, such as quinoa pasta, rice bread, rice pasta, certified gluten-free oats (with honey), steamed rice. I would be hungry soon shortly thereafter. Eventually, I read up on refined carbs and how they can digest too rapidly and spike blood glucose levels. Insulin then spikes to bring down blood glucose levels but sometimes it overshoots and brings blood glucose down too much too fast. Low blood sugar can make you hungry quickly, sometimes sleepy, etc. I subsequently switched to a paleo diet (lean meat, fish, vegetables, some fruit, some nuts, no grains, no dairy) and found it to be much more satisfying, less in between meal hunger, no post-meal distress, although I do snack quite a bit on carrots, celery, cukes, etc.

Long story short, you might consider tracking your refined carb intake relative to the sensation you are experiencing. Good luck.


I think you are probably right. Funny thing is I knew all that. I guess my focus has been on not eating gluten, not so much what I am replacing the gluten with. A lot of the processed gluten free alternatives appear to be a healthy alternative. I do find myself grabbing more carb filled snacks then I would have before. I will try increasing my protein, vegetable and fruit intake and see how it works out.

Thank you for the feedback.

In Topic: 12 Year Old Son Diagnosed, No Symptoms

24 February 2012 - 07:53 PM

My DD was dx'd a year ago & had no GI symptoms but she hadn't grown since her prior checkup so "failure to thrive" was marked on her chart as she was sent to the endocrinologist for further eval. Anyway, it took me a while to digest it & she went gluten-free starting in jun & started to grow. She grew 2.5 inches & jumped 2 sizes in shoes in like 3 mths.

She just had her 1 yr blood tests & her levels were all in normal range as far as antibodies for gluten. So I am happy that we are doing something right. I know a few times she might've ingested gluten over the past 8 mths but had no reaction. I use a separate toaster, she brings lunch to school, & always asks if in doubt if she can have something at a friends.

Your son will most likely get glutened or cross contaminated until you get the hang of it. Everything must be separate, butter, condiments like mustard mayo as they can be contaminated from dipping glutened knife, stainless steel pots, or if using a coated pot--all new pots for him as gluten can get into the scratches, his own colander, etc.
Read the threads on cross contamination that is what you gotta get the hang of. Be prepared for mistakes, & learn from them. Teach your son how to read labels & if he is embarrassed around his friends there are plenty of gluten-free goodies he can eat around them & he won't feel different--popcorn, lays chips, snickers, hersheys & lots of other candy, (read labels) snyders gluten-free pretzels, gluten-free pizza, gluten-free cupcakes cookies & brownies, etc. He can have Mcd Fries & sundaes, (nothing added like oreos) grilled chicken & fries @ chickfila or chili & baked potato @ wendys.
No sit back & watch your son grow.

Good luck!

Thank you for the advice. Those are some very positive sounding results. Hoping my son has a similar experience.

In Topic: 12 Year Old Son Diagnosed, No Symptoms

24 February 2012 - 12:17 PM

When my daughter was diagnosed, all of us in the immediate family were screened. My son is on the small side and my daughter's pedGI was particularly concerned about him. Part of his testing included the gene testing. There are two common genes for Celiac, DQ2 and DQ8. The majority (but not all) of those people who are diagnosed carry one of those genes. However, about a third of the population carries one of those genes. Just because you carry the gene does not mean you will develop Celiac disease. It just means that the person may have a predisposition for developing Celiac at sometime in their life. In my son's case, he has one of the genes but no symptoms. Since he was on the small side and my daughter was already gluten free, it was not a hardship for us to put him on a six month trial diet, looking solely to see if he would have some sort of a growth spurt . . . he did not. At any point in his life, should he develop any kind of symptom, he'll be screened again.

The fact that my son has a DQ2 gene means that either his father or I (or possibly both) carry the gene as well. When we were screened by our GP, the gene test was not included so we don't know which side it is coming from. My daughter is the first one in the family to be diagnosed and there are a sprinkling of digestive issues on both sides of our two good-sized families.

Thank you. That actually answers a few other questions we have. My wife and I were tested, as well as our 9 year old daughter. We all tested negative. Is the gene testing recommended in this situation. I suspect that it may only tell us if one of us carries the gene and if our daughter is predisposed to Celiac.

In Topic: 12 Year Old Son Diagnosed, No Symptoms

24 February 2012 - 11:42 AM


Thank you for the quick response. I guess we are in a "wait and see" mode. He has been very good about the whole thing, which has made life a lot easier on all of us.

I do have one question off topic. From your signature. What is DQ2 Positive?

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