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Member Since 15 Feb 2012
Offline Last Active Today, 05:47 PM

#908289 Acid Reflux And Ppi's

Posted by Ninja on 07 March 2014 - 07:14 PM

Yes, I think I need to try some of these.  I know it sounds silly, but the name of them puts me off.  It sounds like something that would make your acidity worse.  :unsure:. I understand though, that the older you get the less acid you have naturally present in your stomach.

I totally understand! I was hesitant to try the Betaine HCL myself out of fear that it would make the pain and symptoms worse. Thankfully that has not been the case! I started off taking just one tablet even though the bottle said to take two; eventually I worked up to two, which has been helpful for me. :) Keep us posted!

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#852684 I'm Done

Posted by Ninja on 07 February 2013 - 10:33 AM

Hi Razzle,

Have you looked into/been tested for SIBO? I've heard that many people who continue to develop food intolerances, to the point of losing many whole, good, and nutritious foods, have had SIBO. Abdominal bloating, cramps, pain, "fullness" and weight loss are just some of the symptoms.

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#849644 Well, Results Of Genetic Testing In...

Posted by Ninja on 21 January 2013 - 06:30 PM

I completely agree! If celiac meant taking 1 pill everyday I'm sure we'd have been diagnosed ages ago! Running the tests is easy, but diagnosing without them is the true test, IMO.

I wish it weren't so hard to fight for what we need amongst those who are supposed to fight with us. However, we can ban together and wait and wait and wait for the doctors to tell us that we were right all along (like you've mentioned). :)

I'm so sorry to hear about the gluten challenge. I guess if you weren't convinced, you are now. :ph34r:
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#843057 Nearing A Year :-)

Posted by Ninja on 14 December 2012 - 05:30 PM

I can't believe it, but in about one month it'll be my one-year gluten-free anniversary. :-) Quick update:

- I'm still growing, though it's slowing down. I started at 5'4" and I'm now about a half an inch shy of 5'7". I didn't think that was possible at my age!
- GI symptoms totally gone, 'cept the occasional glutening.
- The rash (which I'm almost certain is DH) is relatively under control. It is very sensitive to iodine in addition to gluten.
- No headaches, migraines, nerve pain or tingling, exhaustion, weird "illnesses" (I've gotten sick once in the past 11 months and it was just a cold!), nausea, brain fog, everything is GONE! I was actually diagnosed with sensory processing disorder when I was little and even that has gotten much better! I'm in awe of how amazing I feel! 11 months ago I never would have believed it.
- I can tolerate lactose (in moderation). :-)

I was blood tested in October 2011 which was negative, but at that time I was gluten-lite and my doctor did not inform me that I needed to stay on gluten. Therefore, my primary doctor has told me not to go back on gluten, saying that she thinks it sounds like celiac, and we should wait until better testing comes out. I have a GI doctor appointment in January just to see if I should be doing anything else and/or getting his opinion.

I'm thrilled: I can live my life, handle stress and stay healthy and on top of things. Thank you to everyone who helped me through this. The vitamin, probiotic and digestive enzyme suggestions were invaluable and made such a huge difference. I'm so grateful. I wish I could give everyone hugs! THANK YOU!


P.S. For those of you struggling right now: things do get better! It is slow, but persistence and patience will both be your friends through the healing process. And questions! Ask lots of questions!
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#822360 Anyone Know About Orthodontic Molds?

Posted by Ninja on 08 September 2012 - 05:24 PM


Beware of the flavorings you can choose! I got hit from orthodontic molds a little while ago and found out that wheat was hiding in the flavorings they added to the mold (if you choose a flavor, that is). Of course, every facility is different.

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#807772 Something I Did Not Expect (!)

Posted by Ninja on 01 July 2012 - 04:31 PM

I was so hoping to grow once going gluten free, growing yes.......just wider, no height. At 43 i can still dream though!

Yes! Like I said, I did *not* expect to grow after going gluten-free. In fact, I never would have thought of myself as being "malnourished." It just goes to show you that a) it is a spectrum (malnourishment) and b ) people have an uncanny ability to adjust to various "normals" even though what they might be experiencing may not in fact be normal!
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#804235 DH Photo Bank

Posted by Ninja on 17 June 2012 - 07:58 PM

Great idea!

Here's some of mine:

http://s1023.photobu...1at100910PM.png (emerging)
http://s1023.photobucket.com/albums/af355/pinkgiraffe5/?action=view&current=ScreenShot2012-05-31at100910PM.png#!oZZ3QQcurrentZZhttp%3A%2F%2Fs1023.photobucket.com%2Falbums%2Faf355%2Fpinkgiraffe5%2F%3Faction%3Dview%26current%3DScreenShot2012-05-31at101025PM.png (older part of rash)
http://s1023.photobu...17at55008PM.png (this is what it looks like when it's 'inflamed')
http://s1023.photobucket.com/albums/af355/pinkgiraffe5/?action=view&current=ScreenShot2012-06-17at55008PM.png#!oZZ2QQcurrentZZhttp%3A%2F%2Fs1023.photobucket.com%2Falbums%2Faf355%2Fpinkgiraffe5%2F%3Faction%3Dview%26current%3DScreenShot2012-06-17at54924PM.png (deflated and healing. sorry about the quality)

Brief history: I went gluten free Feb. '12 in an attempt to help relieve my GI 'issues'. Through the process I have discovered that being gluten-free has resolved *many* seemingly unrelated symptoms for me. I developed this rash after my first exposure to gluten (while gluten-free, approx. March '12). I get the rash in 3 different areas - it seems to be symmetrical. Responds well to low iodine and gluten-free.

I am not formally diagnosed as I am still searching for a competent doctor. I've got a lead on one (yay!) and plan to get the genetic testing done sometime in the near future. :)

Edited to add associated symptoms: the rash is *extremely* itchy - wakes me up! It tends to appear all at once - like a volcano eruption. Triggers that I am aware of: gluten, gluten cc, iodine, nighttime, hot water and hot weather.
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#793680 Annoyed!

Posted by Ninja on 06 May 2012 - 03:55 PM

I'm not annoyed with you either! In fact, I admire your resiliency. :) I just wish you didn't have to deal with them – they seem like complete idiots! I'd like to slap some sense into some of them... :blink:

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#792614 When Someone Asks, "how Can I Get That [Celiac]?"

Posted by Ninja on 01 May 2012 - 07:12 PM

I don't think a lot of people "get it"... even those who are aware of Celiac. Honestly, when people say things like that I think it has more to do with them and less to do with you; they just don't feel comfortable with the way they look. It's unfortunate that they cannot get over themselves for a moment to admire the way you look instead of being self-depreciating, but it is what it is (and we all have our moments). I guess I would just focus on which symptoms of yours have improved and pick a few of them to mention to those who just want to focus on the weight. It is very frustrating though I've had to stop myself from going off on a few people more than once. :P

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#792050 Donating Blood

Posted by Ninja on 29 April 2012 - 02:44 PM

Gluten, or any food for that matter, does not necessarily get digested and metabolized before entering the blood stream. That is only what is supposed to happen. I have been shown partially digested fragments of food in my blood, under a microscope. That's from a leaky gut, with a lot of damage. People can have a leaky gut from other things, like a medication, I've been told. I've also been told, by a doctor addressing a local Gluten Intolerance Group meeting, that people don't fully digest wheat, barley, rye or oats, because some of the proteins are just too large and complex. It only takes a small fraction of a gluten molecule to cause a celiac reaction. There are multiple short chain peptides of gliadin, sequences of only 4 or 5 amino acids that can cause a reaction. There are multiple instances of each of these several peptides in one gliadin molecule. Partial digestion can make these peptides more available for our immune system to react to.:unsure:

Do you have any articles you could direct me to, to substantiate these statements? This thread indirectly deals with the digestion of gluten proteins...if you are interested. :)

As far as donation and the above logic – I don't know many newly or un-dx'ed Celiac's who would be up to giving blood (presumably the less recently dx'ed ones would have less damage due to the healing). :P

My 3 cents (inflation!). B)
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#789586 Beware B Vitamin Toxicity!

Posted by Ninja on 21 April 2012 - 06:43 AM

I may just point out that the serum B12 test is not the best at identifying a B12 deficiency. Most of the ranges (in the U.S.) are too low given that many people with higher LEVELS still have the symptoms of a deficiency. So, while having testing done should be helpful... make sure it's the right kind because not all doctors are clued in on vitamins and minerals. :)

Thanks for making us aware of this.
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#788743 Bored Of What I Eat.. Going Crazy

Posted by Ninja on 18 April 2012 - 12:38 PM

I can completely relate! *hugs*

The chocolate and cheesecake and pie and cookies and and and....

You'll get there. :)
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#787491 Supervisor Problem

Posted by Ninja on 13 April 2012 - 06:31 PM

I would just bring your own food regardless. If you feel comfortable eating at the restaurant then go ahead... but if you don't, at least you know you've got a back-up. It's good that your supervisor is trying to be aware of your dietary needs but you are the one that suffers the consequences... not him.
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#787246 Bad Timing

Posted by Ninja on 12 April 2012 - 07:42 PM

Well, I guess I should mention: it wasn't the oven... it could have been the maltose I ate not realizing it may not have been safe (the maltodextrin always throws me). Strangely enough, I distinctly remember reading it on one of the labels and being concerned but then the fact that maltodextrin is safe occurred to me and I thought nothing of it and ate it. Yes, yes, I need to start a food diary...
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#786517 Dating Frustration

Posted by Ninja on 10 April 2012 - 12:52 PM

Built in jerk detector! - :lol: :lol: :lol:
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