I'm looking for some advice. Brief history for those who do not know it: I went to see a N.D./M.D. in October 2011 after realizing that my constant illness, fatigue and intestinal issues were not normal. At that time I was on an anti-inflammatory and nasal steroid. The doc ordered a full Celiac panel which came back negative. I went gluten free in February of 2012 and the results were incredible. Saw a GI doctor in March 2012 who wanted me to go back on gluten for an endoscopy and colonoscopy. I refused.
I went for a check-up this past February with the same GI doctor and he was so amazed with my progress that he was ready to call it Celiac right there and then. We ordered the genetic test to confirm, but it was negative. I have not seen him since receiving those results so I have no idea what is actually written on my chart.
For the past month or two I have been declining. I've gone back to getting (to a lesser extent) frequent "D", GI pain, mild reflux, bloating and gas, joint pain, brain fog and fatigue. I am exhausted. At first I blamed it on stress, and it very well could be as I have been juggling a lot lately... but I guess it goes back to me doubting whether my problems were magically solved – as they appeared to be – with the gluten-free diet.
I could just go back to the doctor, that would be the logical step, but I am afraid of being brushed off as just another IBS patient (I don't think anyone should be!). So, crazy as it sounds, here I am contemplating whether or not to head to Mayo in MN (about 4 hours away) even though I haven't exhausted the tests that my current doctor is probably still wiling to run (SIBO, endo/colonoscopy)!
My vitamin D was also tested last Feb. and turned out to be very low. I tapered off the supplementation for that and I'm wondering if I shouldn't have... It could very well be a nutrient issue... but I wouldn't know because the doctors aren't willing to run the necessary tests! I could say it was CC based on the rash, but I've been battling with iodine lately so.... I don't know. I'm pretty sure all of the symptoms are caused by an increase in inflammation I'm just not sure why there is an increase in inflammation.
So yea, I've boxed myself into a corner and I'm not sure what to do next. The brain fog is not helping. I know this is probably kinda vague and difficult to answer, but does anyone have any thoughts or ideas?