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Mom2Will

Member Since 17 Feb 2012
Offline Last Active Jun 15 2013 07:10 AM
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Topics I've Started

15 Months gluten-free Ttg Still Slightly Elevated

13 June 2013 - 01:46 PM

My 9 year old was diagnosed with celiac in March of 2012 by blood tests and a positive biopsy.  We put him on a gluten-free diet the day he had his biopsy done.  His original ttg was 168.  After 6 months gluten-free it went down to 31.  We got his blood results back today (15 months after original diagnosis, 8 months after the last blood test) and his ttg was 23. (0-19 is considered normal)

 

The dr. was pleased with this and said we can basically consider him to be in the normal range since he is so close and is pretty much symptom free at this point.  He is growing great - is in the 75% for height for his age and I'm pretty pleased with his overall health but I thought his numbers would be better by this point.  I've read through the forums a little and I'm seeing posts that ttg isn't the right test for dietary compliance?  That is the only follow up the dr. ordered this time - he did not order the full panel.  Should he have done something different?  Should I be satisfied with the 23 since that is only slightly over normal?  Can I ever expect him to be in the normal range?  The dr. said he doesn't need to be retested for a year.

 

Thanks for reading and for any insight you can give.  His numbers went down so dramatically in the first 6 months that I guess I was just expecting another 8 months to give him a normal reading.

 

Melissa


Ttg Follow Up!

11 September 2012 - 01:01 PM

My 8 year old son was diagnosed with celiac disease 6 months ago by blood test and biopsy. His ttg test result was 168 when he was diagnosed. After 6 months on a gluten free diet his ttg came back at 31! I am so happy and impressed that it came down so much. I've been so worried about cross contamination that it is nice to know that we are on the right track. So now I guess we just keep doing what we're doing and hope it keeps coming down.

One question - he still has loose stools. The dr. is going to do a stool test on him to check for other things but since he added height and weight and is otherwise doing well he doesn't think it is anything else and is just that his intestines need more time to heal. Has anybody else had the loose stools stick around this long? How long did it take to get a "normal" bm?

Thanks!
Melissa