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Mrs. M.

Member Since 20 Feb 2012
Offline Last Active Oct 23 2012 04:09 PM

Posts I've Made

In Topic: Doctor Questioning My Diagnosis Of Celiac

23 October 2012 - 04:12 PM

Thank you all very much for your responses to my questions. It is helpful to know that I am not way off track here. I will hope for a useful conversation tomorrow with the GI doc.

In Topic: Genetic Testing-Laboratory Recommendations?

20 April 2012 - 11:14 AM

Thank you. Kimball is the lab I spoke with. I like them because they have certified genetic counselors and I know I can trust their results and quality of service. I just don't think my husband will fork out that kind of money for a test he doesn't understand (and a disease he doesn't understand). I will check out the My Celiac ID as well.

You might want to call Kimball for the latest. Their toll-free number is 800-320-1807.

You can do My Celiac ID for $329, it is a saliva test. They do not mail your results to you, you get them at an online link. They do not bill insurance or help you bill your insurance.

In Topic: How Long After Eating Gluten Do Symptoms Appear?

16 April 2012 - 09:01 PM

they were corn tortillas (I know enough to request them instead of flour)... but afterward I realized the tortilla chips could have been contaminated if the restaurant also makes tostada shells.

In Topic: Newly Diagnosed And Concerned About My Kids

12 March 2012 - 10:00 AM

Thank you for the advice. This fits with what I am thinking.

My daughter was the one who was diagnosed first, because of the itchy rash on her elbows and knees. The blood tests are notoriously inaccurate for children. I would ask for a referral to a dermatologist and have the rash looked at. It may be awhile before you can get in, so many derms are booked way out, but don't have her go gluten free before then, so the testing will be more accurate. The derm will need to test right next to a fresh breakout area. The skin biopsy is so much less invasive than the endoscopy, and anyway, your regular doc is unlikely to refer you to a gastroenterologist since her blood was negative.

After my oldest was diagnosed, we had blood tests on the younger two, and they were sorta positive and really positive, but we decided not to get them scoped.

Good luck!

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