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Member Since 21 Feb 2012
Offline Last Active Dec 10 2012 05:46 PM

Posts I've Made

In Topic: Wheat + Sleep = No Pain?! I Think I Found My Cure! (Possibly?)

07 December 2012 - 02:01 AM

I know this sounds bizare, and it's very frustrating, maybe it's not a total "cure" but I found something at least.

I just know that if I force myself to sleep after eating wheat, there is considerably less pain. If I do not sleep much and eat wheat, then I have severe pain, thrashing, ER, etc, etc... (I don't feel particularly sleepy after eating danishes)

So that's all I know so far, and I'm just trying to figure out what could this be, I have to find an explaination to what I have.

In Topic: Why I Still Eat Bread...

10 October 2012 - 01:45 PM

Sandra, I think the point that everyone is trying to make here, but has not been clearly stated for you yet, is this. If gluten makes you feel sick, you stop eating it, and you feel better, then there is nothing else wrong with you.

I understand, I'm avoiding it now, I only ate it again for the two tests I had to do (the Carcinoid and redoing the Celiac profile)

What I don't know what to do now is how to handle things like, restaurants/eating out, and things like that. My mom asked me what do I do if I have to go to some social gathering and there is food there, and what if the world's food supply runs out and there is only bread left, then what do I do? (it's silly but she actually asked me that and I didn't know how to answer)

In Topic: Why I Still Eat Bread...

09 October 2012 - 09:02 PM

Thanks for the link, I have a question about the article, it says:

"The main histology characteristic of [wheat sensitive] patients was eosinophil infiltration of the duodenal and colon mucosa"

My GI said he didn't find any in the endoscopy biopsy he took back in Feb, also my CBC is quite normal (overall WBC was rather low).

Is there a specific test to check for eosinophil infiltration?

In Topic: Update, Survived 2 Weeks On Gluten For Test

09 October 2012 - 02:18 PM

I feel fairly confident about being on gluten for more than 2 weeks, but really, it was the most I could tolerate (pain wise).

I'm still waiting for the test results, I hope they find something because I really can't tolerate any more.

Since the tests I'm avoiding all breads for a while. It feels so good to be pain free for a while, I can finally sleep and think (slept for 14 hours last night).

In Topic: Why I Still Eat Bread...

09 October 2012 - 02:05 PM

Since my recently rounds of tests are over, I am avoiding gluten. Thanks everyone for helping me through this. :)

But I am still not 100% convinced byself what the problem is. I only tell my mom and my drs that if I eat certain breads/pastas, this happens. And they all say, well your tests are always negative so it means you have no problem.

I also don't want to pin it down to NCGI in case this is still something else, what if its endometriosis or some other abdominal injury I sustained while performing last Christmas (the same time this all suddenly started)?

I feel like I need a bit more time and to do absolutely every test possible to rule anything else out before I stick with NCGI.

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