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Krystal K.

Member Since 23 Feb 2012
Offline Last Active Oct 30 2012 06:48 PM
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Posts I've Made

In Topic: We Need To Start A Thread On Stupid Stuff Doctors Say!

24 October 2012 - 10:21 PM

8 months pre-diagnosis dr says "what do you think it could be?".......ummmm if i had a clue i wouldnt be here.....6 months pre-diagnosis "hmmm I wonder if you have celiacs?" .....but didn't test me for it instead ordered a nerve conduction test & a brain mri... man if only she went with her gut and actually tested me for celiacs back then, I would've suffered a few months less and that would've been awesome!!

In Topic: Gluten Nightmares- Literally!

24 October 2012 - 10:01 PM

ugh yea i dream sometimes of eating oreos with my husband and then I say oh no why am i eating these? ... then theres the occasional taco bell and chinese take out dream..only if I smelt it that day or someone was talking bout it though! hopefully they stop soon its weird how food can haunt us!

In Topic: Old Hag Syndrome / Sleep Paralysis

24 October 2012 - 09:51 PM

wow I forgot about this ..This happened to me at my peek of symptoms of gluten ataxia.. It never happened in my life before that though, but once the ataxia got to the point of wobbly knees and difficulty. reading and writing, I kept having these and I remember trying to explain it, was frightening!! ...it does sound like a sepearate sleep disorder ..but I believe ceiliacs causes all sorts of seperate conditions ..so personally I havn't had one since going Gluten-Free...to me feels like it was related.

In Topic: Adrenal Problems?

24 October 2012 - 09:43 PM

Three months post diagnosis, going well. But some weeks ago I went deep sea fishing, fought some really big fish, came home and was flat for a week, all the fatigue returning. Endo Doc says it might be adrenal problems as well, suggested "polyendocrine syndrome". Any body else have experience of this? I suppose it stands to reason, all of the hormones work together(I heave Type 1 diabetes too).
Incidently, this week did a challenge test with 2 tecate beers...the next day got a raging HD lesion in the same place on my thigh, have not had it for weeks before!



All I know is when I first got diagnosed I was seeing so many dr. and they had told me my adrenals were on there way to being a "burnt out" ..I never fully understood it but once I was eating gluten free for a while and I also took...a lot of different natural supplements the glands got stronger...I remember them saying things like "when they are hyper active" maybe the gluten makes them kick into overdrive and then they get tired....the only reason they discovered that was bc my blood pressure was dropping an extreme amount each time I went from laying down to sitting to standing..I would often faint... I hope you are taking probiotics and watch out for Cross contamination! Good luck I'm still working on it myself!

In Topic: College Advise From Students

24 October 2012 - 08:14 PM

I'd try and get your hands on some deli meats roll it up in some romane lettuce (cheaper than the gfreebread) put some tomato or whatever else veggies you want in it for a sandwich.. you can pack some tunafish in a Tupperware (although not supposed to eat that often!) there are cheap gluten free things not going to say they are the healthiest ..but for cheap quick emergency food lol dentimoore stew has a microvable beef stew...minute rice has a few micro. (spanish and yellow)...hot dogs are cheap and most brands are Gluten-Free...hebrew national...umm there are canned soups by progresso that say gluten free on them like mushroom and clam chowder broc. chowder... these are all quick cheap college equivlants to ramen and speggeti...not the healthiest but better than cheating and eating gluten getting sick! ALWAYS CHECK INGREDIANTS incase the things I've listed are the same where you live!
Krystal