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carriej82

Member Since 28 Feb 2012
Offline Last Active Mar 22 2012 07:59 PM
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Topics I've Started

Vegetarian, Gluten-Free And Dairy-Free - Can It Be Done?

10 March 2012 - 12:53 PM

I have many adverse symptoms to gluten and am ready to give the gluten-free diet a good long-term run. The thing is, before making this discovery I was mostly vegetarian... I say mostly because my family only eats chicken in a meal maybe two or three times a month. I just try to stay away from animal proteins because of genetic predisposition to high cholesterol, heart disease, etc. Wheat honestly has been my staple food. I made all my own breads, muffins, etc by grinding my own wheat, to be as nutritional as possible with no preservatives or anything... lol... funny now I find all that grain wheat likely accounted for my declining mental health over the past year.

I also read many of you going gluten-free suggest to also be dairy free at the start and stay away from processed foods. So... it seems all gluten, processed gluten-free foods, dairy, and most meat is out for me. What the heck am I going to eat? That is 3 major food groups right there. I feel like this is too impossible and I will surely starve. If I don't replace my grains with more meat (don't think I'm willing to do that), I would have to replace them with gluten-free substitutes, but I don't want the processed stuff. So I need to make my own, which is very daunting to me, plus it seems pretty clear there is no true subtitute for whole wheat bread.

Anyone in a similar situation? Oh, the bigger challenge is that I have to feed my gluten-free skeptical husband, and 3 children ages 1, 3, and 5 who LOVE wheat bread and are used to all of my homemade wheat products at every meal, and very stubborn about new foods. *sigh*...

Can Those With Milk Protein Allergy Drink Kefir?

05 March 2012 - 03:49 PM

My 18 month old reacts to all dairy with a skin rash (eczema). Someone told me he could most likely tolerate milk fermented with kefir grains, that it changes the composition of the milk or something and most with lactose or milk protein allergies can tolerate kefir? Does anyone know anything about this? I really want to start using this in our green smoothies as a base since it is supposed to have excellent health benefits and help heal leaky gut (which I think we all have to some degree).

Thanks!

Is A Celiac Reflexive Panel Adequate?

05 March 2012 - 07:55 AM

My doctor originally ordered a Comprehensive Celiac Panel from LabCorps. I found out that would cost me over $500 on my high deductible family plan, and I couldn't swing it, so I've been desperately searching for less expensive options. All the time still eating gluten and feeling pretty miserable.

I was looking at INeedLabs.Com, but when I called my doctor's nurse to ask about it, she'd never heard of it. That didn't necessarily turn me away from the online route, they actually sounded completely legit when I talked to them on the phone. But my nurse did mention something I wasn't aware of: Regional Lab Outreach through my local hospital.

Regional Lab offers discounted tests for private pay patients. I called and they quote me 2 different tests. One was a Celiac Reflexive Panel. As I understand, they run an IgA an depending on that result they do one of two things. Here is the description: If IgA is less than 7 mg/dL, then tTG IgG and Gliadin Peptide IgG will be added. If IgA is greater than or equal to 7 mg/dL, then tTG IgA and Gliadin Peptide IgA will be added .

So apparently this is more cost effective than the other option, which is a Celiac Serology test which includes these values: Anti-gliadin IgG ELISA
Anti-gliadin IgA ELISA
Anti-human tTG IgA ELISA
Anti-endomysial(EMA) IgA IFA
Total serum IgA

Do I really need the comprehensive test? Can the relflexive test be enough to diagnose celiac disease? Will it tell me what I need to know? What would be the benefit of having the additional values in the comprehensive serology panel?

Any input appreciated! Thanks so much.

If Celiac Blood Panel Is So Inaccurate- Should I Spend My Money On It?

28 February 2012 - 08:45 PM

I am new to the gluten-free/ celiac world.

I very recently stumbled upon the idea that gluten intolerance could be the the cause of an 18 year long personal hell in which I experienced depression, anxiety, panic attacks, brain fog, confusion, headaches, chronic constipation, obsessive cyclical thinking, negative voices in my head, irritability, anger, fatigue, wanting to die, not able to function, not wanting to get out of bed, etc. It was horrible, and the worst part was not being able to explain to anyone why I was sad and depressed all the time. No one believes you can be sad without cause or knowing why you are!!! I tried so hard and wanted so much to be a normal, happy person. I do and always have had so many blessings/reasons to be a happy person. But I could not will myself to be happy. I could not take control of my brain. I came to really dislike myself because I believed I was a pathetic mentally unstable person.

Fast-forward to last fall. I am a mother of 3, and my third son was born with severe eczema. After 9 months watching him suffer, I got fed up with the doctor telling me steroid cream and antibiotics were the only answer. It had to be diet-related, I watched him break out almost every day at mealtimes. I just felt that inside. So i did some research, and decided to go dairy and gluten-free for him and me because I was breastfeeding. I did this solely for his skin.

Amazingly, after 3 days of gluten and dairy free, all of the above mentioned symptoms that I experienced DAILY for 18 years vanished into thin air and I experienced for the first time a CLEAR HEAD, a content and HAPPY feeling, the ability to function, energy to get through the day, joy in my children... etc. I could no believe it. I thought, oh my gosh, this is WHO I REALLY AM! I CAN'T LOSE THIS FEELING! I was just freaking out inside with excitement over such a MIRACLE. I had gone dairy free before so I immediately thought of gluten and ate a rye cracker. Within an hour, brain fog and headache and depression settled upon me and lasted for 12 hours, then lifted. I ingested a small piece of wheat bread after that, same result. Symptoms eased up after 12 to 24 hours.

I did not want to ever eat gluten again but when I told my husband about this he was more than skeptical and though it was in my head, and when I made gluten-free meals for my family, nobody would eat them, and I got so discouraged. It was almost impossible to do by myself, so I tried to eat gluten-lite, just sparingly, through the fall, at times going strictly gluten-free for maybe a week at a time when I felt the worst, always challenging back in to "be sure" in case I'd imagined it all.

Now I am ready to be tested. I know this is real. In my family history, my mother had the same disordered personality traits as me, plus Diabetes and Hashimoto's. My grandmother and great-grandmother both had diabetes I and multiple cancers, great-aunt on same side had schizophrenia and other mental issues. I just know I have to go gluten-free for life, but I need validation of a positive test result for my husband and family to support me. However I keep reading online there are so many false negatives, and testing is not very accurate. I read somewhere that celiac is misdiagnosed 80% of the time. I fear if I get back a negative result, that will just cement my husband's skepticism. I don't think he will accept that gluten-sensitivity is just as real and damaging as diagnosed celiac disease.

Also, this test is costing me over $500 dollars, insurance won't cover at all. Is it even worth it if so many people who have a similar experience to mine get a negative result? What is the point of this expensive test if its not even accurate!!

Please advise. I don't know what to do. We are a young family and this is a real sacrifice to spend this money.