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Member Since 19 Jun 2005
Offline Last Active Jan 06 2014 09:42 AM

Posts I've Made

In Topic: Newly Diagnosed Osteopenia

29 July 2007 - 05:15 PM

Miacalcin is for women past menopause that have osteopenia or osteoporosis, not younger women still in menses. After questioning my doctor about it, she told me that this medication is not very effective and it's the delivery system that's the problem.

Here's another view of Miacalcin. I'm a 62 yr old male dx'ed w/ osteoporosis when I was 55. For the first year my dr prescribed Miacalcin and I had outstanding results - 5% improvement in the spine in 12 months! (3% with Fosamax is considered good.) Then along came Fosamax and he was convinced by the Pharma salesman that Fosamax was a better deal, so I was switched. For the next 4 years I had hardly any improvement in bone density. Plus I subsequently learned that Fosamax is incorporated into your bones for life, so if any of the "rare" side effects such as jaw bone death (osteonecrosis) becomes a problem, you are stuck. There is no antidote.

I stopped taking Fosamax 2 yrs ago partially because I was planning some dental work but mainly because I was not comfortable with the risk (Vioxx comes to mind).

Recently I had my regular DEXA bone density scan and my results had declined. So I asked my (different)dr to prescribe Miacalcin again, and I got the same story about it not being very effective, etc. It sounded like a sales pitch for Fosamax; however, since I had a previous history of good results with Miacalcin I did some research on Pubmed and lo and behold there are lots of published papers on good results with calcitonin treatment(Miacalcin). I gave my dr a stack of these papers and I think have her convinced to rx Miacalcin. From one of her comments it sounds like she may be under significant constraint against rx'ing Miacalcin; my guess due to Pharma influence. I think the manufacturer of Miacalcin just doesn't have as good of marketing as the Fosamax folks.

For the record, Miacalcin (calcitonin) is a natural hormone with no known major side effects (minor side effects include drippy nose [it's a nose spray] and has performed favorably in many studies, particularly on the spine. Fosamax has several significant side effects (gastro problems, jaw bone death) and is with you for life.

In Topic: Thyroid Results Back

08 June 2007 - 08:33 PM

:lol: Have you signed the Petitions yet ? If you google search International Hormone Society you should find it.


In Topic: Thyroid Results Back

08 June 2007 - 05:11 PM

I second&third all the recommendations on far in this thread, particularly the stopthethyroidmaddness website. I've just discovered that I am, and probably have been for years, hypothyroid. Here's my case history in case it helps anyone else deal with this problem.

I first became aware when last Fall I started feeling cold all the time and my hair started thinning significantly. When I Googled these symptoms fortuanately I found the STTM website and after looking at the hypothyroid symptoms list discovered a few more that I had had for years (e.g. dry itchy skin around my ankles, constipation, osteoporosis). I checked my body temp and found that I was running around 96F instead of 98.6F. I trooped off to my family doctor and told him what I had found - he proceeded to take one look at my TSH (0.9) and almost laughed at the idea I could be hypothyroid even though my total T3 (not free T3) was at the very lower boundary of the normal range.

Next stop was another dr who was much more interested in how I felt instead of what my labs said. He agreed that my labs didn't look too hypo-like, but agreed that the symptoms sure sounded like hypoT, so he agreed to prescribe a very small dose of Armour Thyroid (my request) to see if anything improved. Within a week my body temp had increased at least 1 degree, so he continued to increase the dose very slowly (15mg/month) until now I'm at 90 mg with my body temp consistently in the lower 98F range and many of the symptoms resolved. My great hope is that the calcitonin in the Armour Thyroid meds will improve my bone density.

After researching the heck out of hypoT, I've concluded that I probably have a rather rare form of hypoT caused by pituitary insufficiency which accounts for the low'ish TSH and low T3.

The moral of my story is do as much research as you can, do as much self-dx'ing as you can, don't give up, be willing to change dr's, and don't rely on TSH. TSH may work for many people, but it sure doesn't work for all.

I hope someone finds this helpful.

In Topic: Worried About Cholesterol?

16 April 2007 - 05:06 PM

The key to statins is understanding how many people would have died if they hadn't been placed on statins. I don't recall the number any longer, but you have to put a whole lot of people on statin therapy to prevent one cardiac related death. And if death from all other mortalities goes up, are they actually a good thing? Maybe Dan has the figures at hand since he just read a book about it.

There is some discussion of this on Uffe Ravnskov's website (he wrote "The Cholesterol Myth"). Take a look at http://www.ravnskov.nu/myth6.htm Be sure to scoll down about halfway to the section titled "Costs". You can click on the reference numbers which will take you to the references section where you can click again and often be taken directly to the article or at least a PubMed abstract.

Another fact I picked up from these books is that one of the recognized side effects of statins is a reduction in your body's generation of COQ10, an enzyme used in every body cell, and one whose lack has been implicated in congestive heart failure. It turns out that most of the cholesterol studies have not counted congestive heart failure in their results. According to the National Center for Health Statistics there has been a significant increase in the incidence of congestive heart failure since the early 90's, a few years after the widespread introduction of statins. At this point this is nothing more than an association - no cause and effect has been proven, in fact it has hardly been studied. It's stuff like this that may explain why the mortality rates including all causes have not shown much improvement with the use of statins and in some cases have decreased.

By the way, I am not personally advocating that anyone stop taking their statins, I'm just recommending that each person should do their own homework and these books I've mentioned seem to be worth including in that homework. Clearly the use of statins is a much more complicated and controversial issue than I've ever read or heard from either a doctor or the drug adverts.

In Topic: Worried About Cholesterol?

16 April 2007 - 11:39 AM

I'm a true sceptic when it comes to medical claims, but as a career scientist in a non-medical field I have a lot of experience with decyphering scientific studies and papers. I was particularly impressed with the quality of this book after checking into some of the many references quoted. You are right that statins have been shown to help some high risk people, but there are a lot of other people for whom there appear to be no scientific evidence that statins help them (e.g. women in general, healthy men over about 55, and more). And there are several studies in which the mortality rate increased significantly within the subgroups taking statins. You would have to read the book and draw your own conclusions.

I did find that the author has a website at http://www.thegreatcholesterolcon.com/ where you can purchase an online access to the book for $9.95.

Also another book I've subsequently been reading is "The Cholesterol Myths" by Uffe Ravnskov. This book also discusses fats, cholesterol, statins, etc and generally comes to similiar conclusions as in the first book. This second book in not nearly as comprehensive in discussing other causes for heart disease. This author also has a website where you can view a pretty detailed summary of the material in the book. For this website scroll down the home page and click on the paragraph numbers to access the details. http://www.ravnskov.nu/cholesterol.htm

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