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Member Since 03 Mar 2012
Offline Last Active May 21 2015 07:47 AM

Posts I've Made

In Topic: Celiac And Now Ms. :(

07 May 2015 - 05:42 AM

Missy -

I was 34 with my first bout with optic neuritis (now 43).  I'm not sure I really missed anything in the 9 years as I don't have any significant symptoms and sure hope it stays that way as I hear some are symptom free for very long stretches.  The things the neurologist asked was any feeling of pins and needles, lack of balance/coordination, any bladder control issues.  I guess I do occasionally have the pins and needles in my feet but it's certainly not noteworthy and I've never noted any big issues with balance/coordination other than normal clumsiness.  I assume you had an MRI when you had optic neuritis? I wouldn't stress about it as I'm pretty darn convinced that stress is a huge trigger in auto-immune diseases and both episodes of optic neuritis were following stressful time periods for me.   Did your vision return after the optic neuritis?  My left eye was impacted the 1st time and it took several months but went back to normal.  My right eye was impacted this time and it's still not 100% back but holding out hope that it will improve more over time.   

In Topic: Celiac And Now Ms. :(

30 April 2015 - 05:27 PM

Understandably so. Are you getting a second opinion? Do you like your neurologist? Have they already started you on medications? I don't really understand when you say that they found inflammatory spots. Did they say they were lesions on the MRI? I can't imagine all that you are going through. Thinking of you.


I like the Neurologist ok but have had limited experience with him so I guess you could say the jury is out.  I got the impression that he didn't go into a great detail as an appointment with such a diagnosis is obviously overwhelming - what I know is that 8 years ago I didn't have spots and now I do although he said "a couple" so I didn't light up like a Xmas tree which is the way someone once described it to me.  I am starting medication because I want to feel like I have some control and know the current treatments have come a long way in preventing flare ups.  I'll go for a follow-up in a few weeks once I start so I'll have a chance to ask a lot of questions then.  My insurance (through husband's work) is with a major teaching hospital about an hour away with an MS center and I'm strongly considering making an appointment.  It's actually advantageous financially to see docs within the hospital system with a much lower co-pay but I tend to go local for the convenience factor. 


My Vitamin D was in the normal range on my last celiac lab but do plan to watch it and use it as an excuse to spend as much time in the sun as Spring has finally sprung.  I have read bits and pieces about celiac mimicking MS however I was on a rather strict gluten-free diet for 3 years before this episode (minus one oops with butterscotch chips back in December).  It makes me skeptical that I can blame this on the celiac unfortunately as much as I would like to.  I'm also trying to modify my diet to include more anti-inflammatory foods.  Open to other ideas if anyone has them.  Appreciate the supportive words!

In Topic: Celiac And Now Ms. :(

30 April 2015 - 02:39 PM

I was diagnosed with celiac just over 3 years ago at age 40 but had mild symptoms for years that I brushed off. Symptoms finally intensified and I got tired of bring told I had reflux, a bad gall bladder, hormone fluctuations and asked to be tested for celiac. So darn frustrated to have yet another condition to deal with.

In Topic: Home Ec/ Cooking Class With Middle Schoolers - Any Ideas?

09 April 2015 - 05:58 AM

My celiac daughter goes to middle school next year.  She does have a 504 but I need to schedule a meeting with the school and determine how to handle as she has some kind of "life skills" class that includes cooking.  Following this topic... great ideas.

In Topic: Which Vitamins/supplements/etc Do You Give To Your Child?

09 April 2015 - 05:55 AM

Gummy multi-vitamin and gummy probiotic.  Her labs were perfect when last checked with this combination. 

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