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grodeylocks

Member Since 08 Mar 2012
Offline Last Active Jul 31 2014 09:38 PM
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#874809 Celiac Vaccine? Not For Me

Posted by grodeylocks on 15 June 2013 - 06:23 PM

Pharmaceutical companies pay doctors to promote their drugs. This is a fact which is supported through the fact that there is complete visibility of this. I have seen my (previous) doctor's kickbacks on this. When he made it clear that he was interested in prescribing only name brand drugs, not things there were even generics for, for a medical condition he couldn't diagnose, it was obvious there was a problem with the way things were working. Many here have similar stories. I see the same damn thing with my husband. High cholesterol? Did his doctor ever tell him to change his diet? No, they prescribed a pill. High blood pressure? Did they advise a lifestyle and diet change? Nope. THERE'S A PILL FOR THAT!

 

Why the hell should we take medication for things that don't need to be medicated? The idea is beyond preposterous. I've said before, but because you don't care to read that part of what I wrote, protection from occasional CC is a good thing. For dining out, for traveling, that sort of thing. But a day to day pill for something that is easily remedied by lifestyle change is, in plain English, complete bullshit and moneygrubbing.

 

Once a drug is on the market the pharmaceutical company has one interest alone, making back the money they invested developing it. They run a business, they aren't philanthropists. I don't give two craps what industry you're in, you can't change the simple fact that they're in it for the money. That is what running a business is all about. Otherwise it would be called a charity.

A vaccine wouldn't be something you take day to day. Oh yea pharmaceutical companies are horrible, why don't you tell that to all the cancer patients who are only alive today thanks to the development of modern drugs. Yup you're right. We secretly actually gather around in our labs and come up with ways to make you sick first. Then we purposely come up with drugs that don't cure you only keep you alive enough to keep you buying our product. Yup that's exactly how it works. This reminds me of a great saying, "never argue with an idiot, they'll drag you to their level and beat you with experience."


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#874771 Celiac Vaccine? Not For Me

Posted by grodeylocks on 15 June 2013 - 01:33 PM

Also, even years after being completely gluten free, as shown in this study by Dr. Fasano (http://www.ncbi.nlm....pubmed/16635908) zonulin levels remain remarkably more elevated when compared to normal healthy intestines. This may explain all of our secondary intolerances as macromolecules are more easily allowed to seep through the epithelial paracellular space. The drug being developed by Alba which is targeting the zonulin pathway could be beneficial for us in this way as well.


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#874770 Celiac Vaccine? Not For Me

Posted by grodeylocks on 15 June 2013 - 01:26 PM

http://jcp.bmj.com/c...t/55/6/424.full

 

From the "take home messages" of this study: "It is not uncommon to find a raised intraepithelial lymphocyte (IEL) count with normal villous architecture in the duodenum"

 

This means that of the "(65%) had 'remission' with persistent intraepithelial lymphocytosis" that saying that they aren't healed is clinically irrelevant and wrong.

There is a difference between saying the word healed and completely back to normal. There is clear evidence for the need for alternative therapies and that is the bottom line. We should be embracing the development of alternative therapies to be used in conjunction with a gluten free diet.


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#873741 Discrimination

Posted by grodeylocks on 10 June 2013 - 03:01 PM

Makes me wonder about Celiacs who are homeless. What about soup kitchens. God what a horrible situation. I'm sure there are some out there now that are forced to just gluten themselves.


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#873565 Discrimination

Posted by grodeylocks on 09 June 2013 - 05:36 PM

It's ok, I'll just be going to more giants games. They have gluten free beer there and then I dont have to go to Oakland. It's a win win situation.


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#873559 Discrimination

Posted by grodeylocks on 09 June 2013 - 05:21 PM

If we want to have exceptions to the rules for us, we need to make sure that we are making the appropriate effort needed to get those exceptions. As pointed out, the dude making barely over minimum wage isn't going to do (pardon my french) jack shit for you. Why? Because he was told in his training on day one that no exceptions, period, or he could lose his job. He doesn't give a crap if you have 500 diseases, unless you have a note from his boss saying you have an exception he isn't going to get fired for some Joe Shmoe throwing a hissy fit at the gate. Your lack of planning ahead isn't worth him risking his ability to pay his rent and feed his kids.

 

It is our responsibility to plan ahead. I rarely go out to eat, and while I don't do sporting events I indulge in the occasional movie in a theater. When I go to the movies I don't want anything special, I want the same thing everyone else wants. Popcorn and soda. Because of all the things I can't have, I can't even have fountain sodas or theater popcorn... not that I would trust a teenager in a theater that serves hotdogs to serve me popcorn anyway. When it was time to plan the most exciting movie night out of my life last month, I didn't take chances. I went in and spoke with the manager of the theater the day before I was seeing my movie to be sure I wouldn't have an issue bring my own popcorn and a type of soda I can have. Not because I feel that this disease should put extra work on us, but because it simply is what it is. I wanted to enjoy a fun evening without a hitch and knew that for one of the most anticipated movies of the year that the manager was not going to have time on opening night to deal with my BS.

 

With sporting events, I do know that a fair number of stadiums now have one or more gluten free vendors in their stadiums. If they have taken steps to meet our needs then there is no reason for them to allow in outside food for our special needs. If you spoke to managers and not just ticketing agents about the issue and they were truly firm about it then all I can recommend is finding out why this is their policy. It may be because they already have vendors in place. It may be ignorance. It may be they didn't really understand what you were asking. And, honestly, some people just come off as rather hostile and that is the reason they don't get an exception. They act self-entitled instead of politely explaining the health reasons for the request.

 

Frankly, your rights aren't being violated by being forced not to eat for the length of a baseball game.

There was a similar thing that happened at pizza hut where a woman brought in mcdonalds or something so one of her kids could eat. They were asked to leave. She ended up suing them and I believe she won. The fact of the matter is that it is a vilation of your rights under the Americans with Disabilities act.


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#873553 Discrimination

Posted by grodeylocks on 09 June 2013 - 04:51 PM

As you guys can tell I'm really fired up about this. lol. The way some places treat us is just wrong.


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#873548 Discrimination

Posted by grodeylocks on 09 June 2013 - 04:12 PM

We need to start taking a firm stance against this type of behavior. It is intolerable. I'm not sure what to do though aside from start suing the crap out of people.


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