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kvanrens1

Member Since 12 Mar 2012
Offline Last Active May 08 2013 10:42 AM
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Posts I've Made

In Topic: Pf Changs - Gluten Or Other Ingredient

17 April 2013 - 05:48 PM

Her stomach was still hurting this afternoon so it was probably gluten.  Just disappointed for her because we are so limited in our small town that we usually take food for her when we eat out.  We have a PF Chang's and Mellow Mushroom around an hour drive from us.  She does fine at Mellow Mushroom so guess we will have to stick to Mellow Mushroom.  Hate to see her in pain and miserable. 

 

Thanks!


In Topic: Pf Changs - Gluten Or Other Ingredient

17 April 2013 - 07:01 AM

Her plates did not have tofu (soy) and she is not sensitive to soy that I am aware of.  I requested gluten free soy sauce and like last time they brought it out separate, in its own container.


In Topic: Pf Changs - Gluten Or Other Ingredient

17 April 2013 - 07:00 AM

Yes, it was the same PF Chang's both times.  I told the server that she had gotten sick the last time we ate there and he said his wife eats gluten free too.  He was sure to point out the signature plates when he brought out the food.  Just a puzzle because I know PF Chang's is one of the "good guys" that really try with the gluten-free preparation.  I was just wondering if it could be something else.  She eats egg all the time so that should not be it.  Anyone know what types of oil they use?  Do they use MSG? 


In Topic: Enterolab Gene Test

13 February 2013 - 06:36 AM

We have had the gene testing for our daughter through Enterolab.  It was helpful for us to know that she does not have the main celiac genes and fits with her negative celiac tests.  Her official diagnosis is non celiac gluten intolerance.

The test is a quick swab of the inside of the cheek and not invasive.  Enterolab does not provide subunit info.  Our daughter is DQ7 and DQ9.  Some research indicates that DQ7.5 may be a celiac gene but we did not get that level of information from Enterolab.

In Topic: 6-Month Follow Up Test Results

07 February 2013 - 09:48 AM

Wonderful news about the test results.  My daughter grew around 4 inches on her first year of growth hormone injections and this was prior to going gluten free.

Kristy

 

 

 


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