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Member Since 16 Mar 2012
Offline Last Active May 21 2013 02:55 PM

Topics I've Started

Medications And Personal Care Products For Asymptomatic Child?

05 April 2013 - 02:11 PM

I've been dragging my feet on dealing with possible non-food sources of gluten. My daughter had chronic mild stomachaches, which have mostly cleared up since going gluten-free, and she has never had a noticeable gluten reaction since then.


Because she doesn't react (or at least not in a way we can clearly see), it's hard to know how careful we need to be. Do I need to worry about things like Children's Tylenol/Advil, shampoo, sunscreen, etc.? I know the official answer is "call the manufacturer," but did you really do that for every product your child uses? Is there a way to know which ones to be suspicious of?

Dairy-Free Rice Mac & Cheese?

08 February 2013 - 08:49 AM

My 7 year old DD was diagnosed last spring. She has been gluten free for ~7 months, and now may need to go off dairy and eggs too, at least for a few months. (Her immunologist said she doesn't have to be completely dairy- and egg-free, but to avoid eating them straight up or in large amounts.)

She subsists largely on Amy's boxed rice mac & cheese. The only dairy-free rice mac & cheese I've found is also Amy's, but frozen. Does anyone know of any alternatives?

I know we need to get her eating more foods, but we also need a reliable fallback food... Just about everything she eats contains cheese. :blink:

Which Iron Supplement?

26 January 2013 - 04:09 PM

My 7 year old DD has been gluten free for ~7 months. She just had her follow-up appt and her tTg was still high, so we obviously need to figure out where the gluten is coming from.

Her iron was also low (I don't know what the number was) and the doctor told us to give her a supplement. Any suggestions? I bought Floravital at Pharmaca today because that's what they suggested, but I worry that she's going to hate it. (If it does work out well, I see now that I can pay a lot less online...)

The only other thing I've found for kids is the Flintstones multi with iron. Are there other options?

Daughter's 6-Month Follow Up Testing, Confused

25 January 2013 - 03:47 PM

My 7 year old daughter was diagnosed with celiac (by bloodwork and biopsy) in the spring. She went gluten free in June. At her 6-month checkup last week, the doctor did two different gliadin tests (sorry, I can't find the link right now to tell me exactly what they were) as well as tTg.

Gliadin tests were both within the normal range (I don't know if they were elevated when she was initially tested) but the tTg was still high, 138. So obviously we need to be more careful. It's just tough to know when she's been exposed since she's nearly asymptomatic.

My question is, what's the difference between gliadin and tTg, and what does it mean if one is normal and the other is high?

I have searched the internet for a comprehensible answer to this question, but it's all too medical-ese for me. The doctor's nurse was no help -- she really didn't know the answer (despite him being a pediatric celiac specialist) and basically just told me that "We do them both to help us be sure."

Are You Super-Careful About Possible Cc In Packaged Foods

21 October 2012 - 09:17 PM

My almost-7-year-old daughter (dx celiac by antibodies and biopsy) has been gluten free for about 4 months now. The stomachaches are gone and she seems somewhat happier in general. We've been careful about gluten at home and in restaurants (not that we go to many). But I'm sure she must have had some incidental contact with gluten along the way (especially at camp and school), and we've never noticed any kind of reaction.

Her doctor (highly regarded pediatric celiac disease specialist) says that most kids do fine as long as they're not actually ingesting gluten, and since she doesn't seem to be sensitive to trace amounts, not to worry too much about trying to shield her from it completely.

Given this situation, would you let her eat packaged things that say "processed in a facility that also processed wheat"? I realize it's a risk every time -- one thing might not bother her while another might set her off -- but would you at least in principle be willing to do that?

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