Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Celiac.com Sponsor:                                    


Sara2200

Member Since 04 Apr 2012
Offline Last Active May 11 2012 09:26 AM
-----

Posts I've Made

In Topic: Does This Sound Like A Gluten Sensitivity? In Desperate Need Of Help.

02 May 2012 - 08:11 AM

Do get a copy of the tests. See if they even ran any Celiac tests. I remember someone who was told her Celiac tests were normal and they hadn't even run any. They didn't know what they were talking about.


Oh my gosh, wow. That's ridiculous. That has me wondering since I was mailed the results of a thyroid stimulating hormone and basic metabolic panel (both normal), but obviously not the celiac panel, and I had to call to get those results. I did leave a voicemail for the assistant requesting that she mail me the specific details of the result so hopefully I get those soon. The NP I saw (maybe a mistake to have seen a NP but I heard such great things about her helpfulness when it came to more untraditional methods of healing) mostly dismissed me having celiac since I didn't have frequent diarrhea or constipation, but she said she would run the test so I could know for sure. I'll really be irritated if in fact she didn't order the celiac panel as I am definitely NOT wanting to go through withdrawals again or put off feeling better any longer!!

In Topic: Does This Sound Like A Gluten Sensitivity? In Desperate Need Of Help.

01 May 2012 - 12:27 PM

Well they finally called me and left a voicemail this morning saying that my celiac panel is negative... However I've been gluten free since the 18th and after some miserable withdrawal days I think I'm finally starting to feel a little better, so I think I must have some sort of sensitivity.
What I was wondering is, and pardon my ignorance, but shouldn't there be different levels of things that could maybe be interpreted better by more of a specialist instead of just getting a negative or positive answer? Should I call back and request that they send me those details?
Thanks. :-)

In Topic: Does This Sound Like A Gluten Sensitivity? In Desperate Need Of Help.

18 April 2012 - 08:40 AM

Thanks for the responses!
I went in yesterday for a celiac panel, so hopefully I'll have those results back by the end of this week. As of today, I am going gluten free. Whew. It's gonna be tough, but I am SO ready to change my life.
Thanks again for all the thoughts and suggestions, I truly appreciate it.

In Topic: Does This Sound Like A Gluten Sensitivity? In Desperate Need Of Help.

05 April 2012 - 12:17 PM

Why bother "handling limited dairy"? Find out what happens w/ zero dairy.


I said that because I was entirely dairy free for almost 6 months and when I started to add a little back in I saw no difference. But you're right, I should just eliminate it completely again with gluten to be sure.

I hope you are taking a good multi-vitamin, fish oil, and D? If not, you should add them..and please do get some tests?


Yes, I take all of those supplements. I've been hearing things about the possibility of B12 deficiencies also lending a hand to brain fog though, so I am going to be adding that in to my daily supplements too.

Has anyone done a thyroid panel on you, especially one with more detail than just TSH?

It's worth trying gluten-free/dairy-free though it's ideal if you can get your Dr. to run a celiac panel before you go on the diet. You can't be tested for celiac gluten-free.


No, I have never had a thyroid panel done but I will look into it more.

I think I am going to have to try out the gluten free diet before getting tested... I am just a poor college student and I am assuming celiac panels are not covered by insurance? And anyways, if I'm feeling better after a few weeks of being gluten-free it must be working right? Regardless if I'm positive for celiac or not I'd want to stay on the diet that makes me feel better.

Thank you everyone for your responses. I am definitely going to look more into things that you suggested and I am encouraged that maybe by eliminating gluten I will start to feel better!