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Member Since 08 Apr 2012
Offline Last Active Jun 24 2012 07:41 AM

Posts I've Made

In Topic: Bloodwork Has Weak Positive

11 June 2012 - 06:14 AM

hello! i am no expert but i believe you can have celiac with the one positive test. i had the same mildly positive blood test. my endoscopy showed no signs of celiac according to my dr's. my dr is saying that i don't have celiac but IBS and that i'm lactose intolerant. which is bizarre because i have no problems with dairy. BUT i have seen all of my seemingly unrelated symptoms disappear once going gluten free. since being gluten free i've accidentally consumed it twice and had awful reactions. that's enough proof for me!

i believe that they consider the endoscopy/biopsy the "gold standard" for diagnosing celiac. but you may have negative biopsy results and they may not technically diagnose you as being celiac but it's possible that you should not be consuming gluten.

In Topic: What Else Could Be Going On?

08 June 2012 - 06:22 AM

i just want to second the idea that the endoscopy is not the final word.

i had a mildly positive blood test and a negative endoscopy yet it is CLEAR that i should not consume gluten. i am on my third month of being gluten free and have consumed gluten twice and have gotten so very ill. my dr. doesn't considered me celiac (i got the IBS diagnosis with a dairy intolerance - even though dairy does not bother me!) but i know for a fact that gluten is not my friend.

good luck!

In Topic: Do I Have Celiac Or Gluten Intolerance Or....?

07 June 2012 - 05:47 AM

hi. i don't have much to add in terms of advice but i wanted to say that one of my symptoms from consuming gluten was/is anxiety (i was taking xanax prior to stopping gluten and was told to start lexapro but never did). i'm starting my 3rd month of being gluten free and while it has taken some time to see a resolve of my anxiety (stomach issues, migraines, skin problems were the first to go) i feel like a different person. and when i am glutened - which has been twice - the anxiety comes back. it's almost like someone has given me a weird drug. it's like this awful buzzing feeling with brain fog. it starts within like 6-8 hours of consuming and it takes a few days to feel "normal" again.

i find it so interesting that anxiety and the like can be a symptom of consuming gluten. i've had anxiety for years and would have never put two and two together. so happy to have found relief and i hope you do as well. :)

In Topic: Should I Bother With Getting Tested?

06 June 2012 - 09:09 AM

hi there. i had the blood test panel done and it came back mildly positive but my endoscopy was negative. i have responded so well to being gluten free and have been glutened twice since going gluten-free and it is awful. my symptoms last about three days as well.

so basically for me i am not diagnosed as having celiac but i know that i simply cannot eat any gluten at all. i basically feel like i went through all of the testing for them to say that i don't have the disease but yet here i am thriving on being gluten free (and getting violently ill when i have eaten gluten) so that is enough for me to never eat it again.

in hindsight, i personally don't think i could handle going back on gluten just to get the testing done. but that is definitely something you have to decide for yourself. i would maybe opt for the genetic testing if possible instead of going through the trouble of eating gluten again for months on end.

good luck!

In Topic: Just Tested

27 April 2012 - 05:14 PM

thanks everyone. i guess i don't *need* a solid diagnosis. the only thing that concerns me is that celiac is genetic and i do have a son. although he eats a gluten full diet and has no problems that would warrant concern.

part of me wanted them to say yes, it's positive because then it makes it a little more real. but i am absolutely going to remain gluten-free for 3 months and see how i feel at the end of it.

the probably negative was based on the two samples they took from my small intestine. i haven't actually seen the report or even talked to my dr yet - the nurse (who didn't really seem to know much about it and just read the results off of a sheet of paper) let me know. so we will see what my dr says, i'm really curious as to why she is recommending no gluten or dairy if the test was negative?

also, with the blood tests - is it possible to have a complete zero of gluten antibodies? or does everyone have a little? i'm just wondering because my test was mild positive and maybe that's not that big of a deal?

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