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Member Since 13 Apr 2012
Offline Last Active Nov 16 2013 02:58 PM

Posts I've Made

In Topic: Afraid Things Getting Worse

12 November 2013 - 12:27 PM

Just an update that I do not feel any better.  I  had the small bowel follow through which was normal.  Said they didn't see anything.  My ANA test was normal.  My CRP Rate was normal.  It used to be high so that is good.  My Celiac Panel was in normal range, both IGA and IGG.  Woohoo!  As stated previously, my Sed Rate was high both times taken.  That's the only thing abnormal so far.  


The rheumatologist ended up with the flu and had to cancel.  I rescheduled and he was still sick with the flu.  I then just went in to see my GP because I was in so much pain that I could not wait.  My GP looks at my labs and did a tender test on me again poking me everywhere and diagnosed me with fibromyalgia.  I was given Cymbalta, but I couldn't take it.  It really weirded me out.  My pupils dilated like an alien and I was knocked out within 2 hours of taking it for 8 hours, slept the night, and then back to a nap when I woke up again - among some other symptoms.  I was then given Gabapentin, but I stopped taking that now, too.  It does seem to help with the pain some for the few days I took it - toward the end anyway, but it seems to bring me down into the dumps.  Makes me feel really not like myself, again, and wanting to be impatient and pull my hair and cry and mopey - just depressed, so I stopped it.  I did some research and went to Walgreens and got myself some Sam-e, Magnesium, Garlic, to couple with the multi-vitamin I already take with 1000 IU of D3 to keep my vitamin D up, plus the probiotic I take.  I seem to be doing ok on this so far.  It's not the best and I'm still in a lot of pain, but at least I have my head about me.  I read I would need 800mg a day and I'm only at 400mg starting, we we'll see.  


Right now I am battling a severe stomach upset for the last 2 days.  I don't know if it's something I ate, got a bug, or the Sam-e doesn't agree with me and I have to go back to the drawing board.  At any rate, I'm trying to get through it.  Hope I don't need to call the Dr. back.


My biggest concern right now is just the Sed Rate being high for almost 2 years now and fibro doesn't show an elevated sed rate.  My GP said I wouldn't have to go back to the rheumotologist now, but I'm wondering if I really need to in order to find out what the cause of that inflammation is and to get it treated as I feel masking the pain doesn't really resolve the underlying issue.  GP said I could have inflammation anywhere in the body because of all my issues.  Not sure what to do.  Keep trying different meds or go back to the rheumy...

In Topic: Afraid Things Getting Worse

27 September 2013 - 02:38 PM

Nightshades are tomatoes, potatoes, peppers and eggplant. They are known in many folks to induce joint pain. It sounds like your pain isn't just in the joints, but it couldn't hurt to give them up for a while.

Sure.  I'll get through Monday and try cutting some things out of my diet and see if it helps.

In Topic: Afraid Things Getting Worse

27 September 2013 - 01:39 PM

I notice your sig line says gluten-free 5/12, but your post says 5/13. I'm assuming the 13 was a mistake and you have actually been gluten-free since your diagnosis in 2012?


But I also notice you also say, "Normally if I accidentally ingest gluten, which I do sometimes because I still don't think about things on accident or whatever the case may be, all symptoms back - headache, the runs, cramps, anxiety, irritable, swollen abdomen, for about 10 days and back to normal."


It sounds like you have been getting "accidentally" glutened on a regular basis. If that is the case, you are still doing damage and thus have not healed. Your symptoms will naturally get worse over time. I'm not saying that ALL your current symptoms are gluten related, but they might be. Once the doctors have cleared you of all these other possibilities, it's time to get strict with yourself so you don't keep suffering like this.


Yes, I've been gluten free since 5/12.

Accidental gluten ingestion is not something I do on a daily basis or try to do. I am strict as all heck.  I have changed my soap, shampoo, toothpaste, foods, vitamins, etc.  I guess to me "sometimes" means, I've accidentally gotten bit by the gluten bug by something once in a great while over the course of the last 1.5 years.  A lot initially as I was brand new and made my mistakes.  Then, I made more eliminations and restrictions so that I don't even walk down the bread isle at the store.  And I quit wearing make-up.   I do know when I do ingest, what the symptoms are like and how long they last.  Saying it's not typical for me to be in so much pain and different pain for over 6 weeks. I can't even turn over in bed without wincing.  The tender spots all over my body are just crazy.  Totally agree -I also do notice the more I'm gluten-free, the worse symptoms are when you get them.  I tried explaining that to the rheumatologist yesterday.  I totally get what you're trying to say, though.

In Topic: Afraid Things Getting Worse

27 September 2013 - 01:31 PM

Have you tried removing possible food intolerences? Dairy, Soy, and nightshades are some of the intolerences i see on this site.


Keep a food diary, it will help track down any possible food issues.

Have only removed dairy and it didn't make any difference.  I did not try soy.  I don't know what nightshades are.

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