trayne91

I know you all have probably been asked this a million times, but I am hoping to gain some insight from your knowledge and experience having been through this before (some of you, anyway).

I received my results from my endoscopy this month that confirmed I have Celiac Disease. From reading this forum, I requested my son to be tested. No one suggested that I have this done and I am so glad for this forum to actually learn some things.

I received his tests back today, although I asked for a list of tests to be done (I sent them a lengthy email with info I copied elsewhere about what tests he needed performed in his Celiac Panel), it looks like they at least did 4 - all were negative.

They did:
Gliadin IGA Deamidated: 4 (<20 normal)
Gliadin IGG Deamidated: 6 (<20 normal)
Tissue Transglutaminase AB IgA: 4 (<20 normal)
Tissue Transglutaminase AB IgG: 6 (<20 normal)

Here's what we have going on:

- Me (mom) has confirmed Celiac.
- He has had stomach trouble as far back as I can remember and had an endoscopy about 4 years ago because of it. They found gastritis and put him on Prevacid (does that sound right?) for a little while.
- He has asthma.
- He had a migraine that put him in the ER at about age 12.
- He now has cluster migraines. I had him in the Dr. office for these a couple months ago. He said his brain was getting sharp pain on one side and it felt cold, lasting a couple minutes and then gone. Dr. said cluster migraines.
- He has some eczema by his right eye right now.
- He has joint pain and was put on vitamin B to help with that. He wrestles so the asthma and joins hurting are a pain in his butt. He's not taking the vitamin B anymore. He just took it for a while in the winter with an elbow or something. I honestly can't even remember... (Lucky I can remember yesterday - memory going downhill last couple years, sorry!)
- Was in the 90 percentiles during his childhood and was a big baby boy 9 lbs. 3 oz. His dad is 6' 2" and was over 10 lbs when he was born. I was told he'd be over 6 foot tall, too. He's currently 16, going on 17 in June now and 5' 8" and very, very skinny! He's like a twig, but eats me out of house and home!
- He has had fainting spells in the past.

I guess with his history, but test coming back negative, what would you do? Dr. put a note on his test results saying this doesn't mean he doesn't have it, he could still go have a biopsy. Would you just go gluten-free with all these symptoms and not go through the endoscopy to avoid putting him through all that, again? Would you go get the endoscopy done? What if it's too soon to tell? Are there other tests you would have or I could have run to help figure things out? Just need a little advice from someone who has been here. Lord knows I do not want him to have it, but I do not want him to gain a new problem every year of his life either.

Thank you in advance for any suggestions or knowledge you can provide to help me make the right decision.

Hello all. Was wondering what to expect going gluten free right away. I've been gluten free about a week and can say I don't feel as tired as I did just a week ago. However, today about lunch time, I all of the sudden felt tired. Right now I literally feel exhausted and my legs tingle. I don't know if I can expect to feel periods of highs and lows until healed or on diet a while or if I might have accidentally glutened myself, maybe?

My GI clinic just called and said my biopsies confirmed the Celiac Sprue. I am sure I will have a million questions once the initial shock wears off. I guess I just thought it would end up that I didn't have it after all. I had them fax me a copy of my reports. Looks like I got some problems in there:

I have increased intraepithelial lymphocytes of the duodenum. Endoscopicly, the folds did seem flat in the post-bulbar area.
In my stomach I have non-neoplastic gastric mucosa with minimal chronic inflammation of the lamina propria. GI did tell husband he noted stomach inflammation endoscopicly.
There was some tortuosity of the sigmoid.
Moderate sized hemorrhoids internally and within the anal canal.

I was told to continue my gluten-free diet, which I'm not even on. LOL
So, I guess I have to start that when I get money for new groceries.
I'm new to all this so guess I need to start looking into what I can have and can't have now and make a list of things I can't have anymore. Does anyone have a good resource for this?

I didn't get to talk to the gi in the hospital. If I did, i dont remember. They gave me a folder with four pictures in it. what are they taking pictures of? Ggod stuff? Only bad stuff? Is there a place to compare photos? I haven't received my results yet. I can't stand waiting, but am really curious about the photos since no explanation was given to me or my husband about them. We didn't even know we had them until we looked inside the folder they gave us on the way out. Was hoping someone with experience would know what's up with the photos.

Iv was a sinch. My veins are tiny and it is usually a chore for me.
I don't remember a thing.
Prep sucked for colonoscopy. The Miralax drink was not bad, but before that I was to take four docolax and I ended up with cramps and vomiting.
Dr. Seen me before procedure. Reminded me he could get rid of stomach and bowl issues and make those feel better but not my migraines and other issues. "okay?" he said. And he would be taking multiple samples from intestine, colon.
I only remember being in my room after that.
Husband says dr. Said did see inflammation in stomach and he bopsied that, also
Have to wait a week for results, maybe Friday if lucky, possibly Monday.
Rested for the rest of the day.
I have pics labeled egd colon. I have four of them

Anyone else have stomach inflammation?