mamajchis

When first diagnosed, I tried probiotic and it did not settle with me well.

My pro biotics had dairy. I stopped it for a month and found one which did not contain dairy and continued with no issue.

I assume you have checked you meds. Even generics change frequently.


But, as we all know, not all roads lead to gluten.

I started using align. Started having setbacks about the same time with no change in diet. I quit eating gluten March 12 2012 so still fairly new to this. I have most of the GI problems which are taking longer to improve on than I had hoped.

Try again. Something funny was set on your account and I think it's fixed now. If not, we will have to go above my access to the system.

I am too tired to try anything else tonight. I am an intelligent person who could add value to your forum if I was allwoed to do so.

It still tells me my post will need approval even tho the post that started this thread did show up. Maybe I have posted some of the same material on differeent threads, but when you are dealing with a disease and people ask for your experiences with the disease, there will be a lot of reitions in your answers. The content will be similar maybe to some of my other posts but how can I relate what I have been thru if my posts are removed? just doesn't make sense to me. I came here for help, not rejection.

I am a self-diagnosed Celiac sufferer. I have almost every symptom even mildly related to Celiac. I did have the blood test which was negative but I had already started cutting way back on the gluten(for me which means wheat because I do not eat any of the other grains nor drink any alcohol.)) I went gluten free March 19 2012. Even after the first day I saw marked improvement, but the most apparent improvement was in my brain function. I had basically become a mumbling idiot. I could not carry on an intelligent conversation. I would say the wrong things, wrong words,, my mind was totally confused. It was like there was a short circuit between my brain and my mouth. On the computer things were much better. I might make some mistakes but I could correct them without just making things worse. edema was also a problem. It got better but is worse again. My feet and legs are very swollen. I have pressure, pain and bloating in my stomach and chest. I have diabetes as well as heart and kidney problems. I take iron, potassium, magnesium, a multi-vitamin, mega red krill oil, and B12 shots. Along with other meds I take for blood pressure, heart, cholesterol, diuretics,etc I take between 30-35 pills a day. I felt so good the first few weeks then things started to go downhill again. I may be getting hidden wheat. I do eat rice and oatmeal. I want to get back to the way I felt the first few weeks of being gluten free. I had blood work today and will get the results next week at my next appointment. I also have colitis(4 pills a day for that, diverticulitis, chronic fatigue, of course the diarrhea which goes with celiac, colitis, etc. I have recurring muscle pains, intense pains with no apparent cause and no relief from meds. I had "colds" that lasted for months. Couldn't be colds, right? weight fluctuation, and it goes on and on. I read the labels. i prepare most of the meals myself from scratch. Where do these symptoms return? What can I do to help myself?

Skylark and Golden Girl, have either of you figured out what was causing the brain fog, lack of concentration, fatigue, and mood disturbances?

I've been gluten free for 10 months, since my diagnosis, and while my IBS-style symptoms have improved dramatically, I am still suffering from brain fog, difficulty concentrating, general fatigue, and irritability. My inability to concentrate is interfering with my ability to do my job at work. I just met with my gastroenterologist who wants to do a colonoscopy to check for lymphocytic colitis, and I'm going to meet with an allergist next week to see if there are any other food intolerances I'm missing. I did an elimination diet for a few months, but didn't notice any non-gluten food intolerances when I added foods back in one at a time, but I was pretty focused on the glutening symptoms, so maybe I just missed it.

I'd love to hear if anyone with these issues has figured it out.

Sara I had the brain fog, confusion, etc with the celiac but when I went off wheat, that was one of the main things that improved great, even the next day. Do not know why they would start after quitting gluten.
Gluten free since March 19 2012