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Sesara

Member Since 28 Apr 2012
Offline Last Active Aug 12 2012 07:15 PM
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Posts I've Made

In Topic: Need Help With What To Feed Toddler

25 July 2012 - 08:20 AM

Not the OP but *usually* an allergist will suggest staying away from all tree nuts because there is a high possibility of cross contamination unless you find nuts from a place that only processes on kind of nut.


What about sunflower seeds? Sunbutter is a popular substitute for peanuts.

In Topic: Need Help With What To Feed Toddler

24 July 2012 - 07:56 PM

Even if pecans are out, there are other nuts that you can do. My son (23 months) is a big fan of nut butters, so peanut butter on celery (with the strings removed) is always popular around here. As are lunchmeat and sausages of any sort. He's a huge fan of gluten-free waffles, coconut milk, baba ganoush, raw or cooked carrots, broccoli, and cauliflower, cooked green beans are a great snack...and ripe bananas are often compatible with fructose intolerance - something about the glucose fructose balance being ok. Small amounts of blueberries are also ok, just don't let them overdo. Look at paleo blogs for ideas - although they like eggs, there are plenty of eggless ideas for snacks that don't use gluten or dairy.

In Topic: An Update On Us...

19 July 2012 - 12:06 PM

Well, more news today...I'm not sure how I feel about it honestly. My son's fecal tests for malabsorption came back negative. Now, this was one of his better stools, so I'm sure a different stool might have yielded different results. But regardless, it does make me feel encouraged that healing is taking place, even if it is slower than I would have preferred.

The one test that the GI now wants to do, which makes me wonder if our new pediatrician has been in consultation with him, is a fecal elastase test, for pancreatic insufficiency. I've been reading, and there does seem to be a connection between pancreatitis and celiac disease, and it *could* explain our symptoms. I'm still researching, so I'm unsure exactly what this would mean for him if it's true - it may put him at higher risk for diabetes and pancreatic cancer, and he may have to be supplemented for life with pancreatic enzymes, or he may heal...I'm not clear yet. So off to do more research and hope that maybe this next test will finally yield some answers.

In Topic: Extended Breastfeeding & Celiac Diagnosis

18 July 2012 - 10:52 AM

Thank you, this is what I was thinking, too, about the protective effects of breastmilk. I've read the article that breastfeeding can delay the onset of celiac disease (or perhaps prevent it), but I wasn't sure if that was still the case after solid food introduction (though, I suppose even with a very young baby, there is still exposure via the milk). Also, I wasn't sure about whether the breastfeeding could affect the results of an endoscopy (by, perhaps, preventing actual damage from occurring).

Good luck with the rest of your pregnancy and tandem nursing!

Thank you so much. I guess I should add that my DS has no official diagnosis at present, as his intestines appeared "normal" in the endoscopy and only showed elevated lymphocytes, and his antibody tests have come back normal. I do think that the time frame for his damage to occur wasn't long enough for them to see any sort of villous atrophy like they were looking for in part because he only really stopped getting breastmilk altogether about 3 months ago, when my supply switched exclusively to colostrum...right before we started the testing.

We have the same growth curve issues as you seem to, though on a smaller scale. At 6 months, DS was in the 90th percentile for height and 80th percentile for weight. At 18 months, he was in the 50th percentile for height and 8th percentile for weight. Now, at almost 2, he is in the 25th percentile for height and the 2nd percentile for weight. I'm sure that his malaborption issues started between 6-9 months, but he also crawled and walked in that time frame, so it's harder to "prove". I desperately want to get him absorbing again so that he can do some catch up growth. The one thing that sustains me is knowing that his head growth has stayed on curve - even with fat malabsorption, his body is directing what fat he does get to where he needs it most. But it is very frustrating. I hope you get some answers soon.

In Topic: Extended Breastfeeding & Celiac Diagnosis

18 July 2012 - 04:41 AM

I would just like to add that I think the protective effects of breastmilk are probably capable of supressing some of the symptoms. My DS was virtually exclusively breastfed until his molars finally came in around 15 months, though he probably had wheat introduced close to 9 months in the form of a cracker or cheerio here or there. Gluten products in small amounts were some of the only foods I could get him to eat early on. Once his molars came in, he started eating a lot more food, and at the same time, I started producing a lot less milk as I had become pregnant, so he was eating a diet containing plenty of wheat foods and other food from 16-18 months. By 18 months, I had very little milk left and that is when his chronic diarrhea first appeared.

His sibling will be born in the next few weeks and as he has never weaned, we'll go back to tandem nursing. I'm hoping that we'll see a renewal in digestive benefits as he starts getting decent amounts of breastmilk, and that this will outweigh the secondary lactose intolerance that he's developed.