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Member Since 30 Apr 2012
Offline Last Active Jan 31 2013 08:26 PM

Topics I've Started

Why Has My Gliadin Igg Raised After 7 Months Gluten-Free?

31 January 2013 - 04:46 PM

I was diagnosed with Celiac after blood and biopsy in May 2012. I keep mulling over my December results after being obsessively gluten free. My whole family and household is gluten free, I cook from scratch and rarely ever eat out unless I have spoken to manager and chef. I'm very aware of hidden gluten and believe I am doing a great job but my Gliadin IgG has raised...

TT IgA went from 129.6 to 4.5
Gliadin IgA went from 113.8 to 22.1
Gliadin IgG went from 57.7 to 131.9

My doctor didn't say much about it but I don't think she is that familiar with these tests either.

Can anyone help me figutre out what this means?

Thank you!

Informational Video?

30 May 2012 - 09:43 PM

I am looking for an informational video to email to my friends and family. I was recently diagnosed Celiac. The videos I see on YouTube are mostly about symptoms and very little information about living with Celiac Disease, etc. I am hoping to explain what the disease is, how important it is for me to not have gluten in my diet and how dangerous cross contamination is (people just don't get it!). I would like it to address WHY Celiac affects us the way it does (villi, absorption, malnutrition, etc). I'm so tired. Some seem to think I'm going to jump up with energy right away and that just hasn't been the case for me.

Additionally, I would like it to explain how the disease can progress to other things (Lymphoma, etc). I need them to not undermine my efforts to be gluten free. They would never intentionally hurt me, I just think they need to know how serious it is.

Maybe one day I will make my own but for now can anyone point me in the right direction?

I'm Celiac... What To Have Son Tested For?

07 May 2012 - 12:24 PM

I just found out last week that I have Celiac Disease. I am taking my son into the Doctor here shortly to get him tested. I am afraid that the doctor will not run all the tests necessary though. I would take my son to my Naturopath but she is booked out weeks and I am impatient to know.

Is it reasonable for me to demand a test for the gene? If so, what is that test called?

The appointment is in an hour so whoever can respond by then, it would be appreciated. Otherwise, the info is still good to have.

Help Me With My Initial Blood Tests Please!

30 April 2012 - 11:32 AM

I'm 99% sure I have Celiacs but I need some confirmation help because I know it is easy to misread tests. You see, my new naturopath is out of town for a week and I kind of pressured the receptionist to fax me my bloodwork from my initial appointment a week ago because I didn't want to wait 2 weeks to find out if my anemia is better and how my thyroid is doing. I worked for years in a naturopathic practice as a medical assistant so I am familiar with basic test results.

I was shocked to see these high and positive numbers on the Celiac tests! I don't know much about Celiacs other than my research today and the obvious gluten-free diets that are connected to the disease. But now that I read about symptoms it describes me SO well.

Here are my results if anyone can help confirm.

Celiac Serology-
TT IgA- 129.6 H U/mL (>10.0 is positive)

Gliadin (Deamidated Peptide) IgA- 113.8 H Index (>30 mod to strong positive)

Gliadin IgG- 57.5 (>30 mod to strong positive)

Reticulin IGA antibody screen with reflex to titer= POSITIVE 1:40

Endomysial antibody screen with reflex to titer= POSITIVE 1:160

I also have low platelets, low vitamin D (I take 10,000IU a day!), low thyroid, low iron

Thank you for any interpretation/advice you can provide!

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