I hope it's ok to brag and not ask a question. I'm one proud momma and other parents of kids without celiac don't understand. My son was diagnosed 5 weeks ago by biopsy. We have been gluten free for 4 weeks and 3 days. In that time he has gained 4 lbs - he had not gained a pound in a year and a half prior to this. He has also grown 1 full inch in ONE MONTH. I'm beyond thrilled. He has not had a tummy ache in 3.5 weeks. I just want to cry because I'm so happy. He has moved from the 20 percentile for both weight and height to the 50 percentile in one month. I'm so happy my child is now a typical 4 yr old. He runs and plays all day and he's not a TV junkie any more. He never asks to watch TV. Yesterday he went swimming TWICE!!!!! Thanks for all the support and tips on this site. I know I'm not alone in all this.
My 4 yr old son was diagnosed with celiac 3 weeks ago. Our whole house has been gluten free for almost 3 weeks. Two weeks ago we received the call from the GI stating we needed to eliminate lactose and sucrose due to damage in sm intestine. I've since received clarity from GI to eliminate lactose and then we would assess if we needed to take out sugar later. My understanding is this is all until his gut heals.
My question is... I've completely eliminated gluten (since I know his is harmful for my 4 yr old). How picky do I need to be about lactose? Am I eliminating lactose because it is causing his stomach to hurt since his body cannot process OR am I damaging his gut more? I have switched to lactose free milk and yogurt, but I see some products have sm amount of milk product. I've had to tell him "no" so often that I'm trying to make the switch as easy as possible.
I really need help. I'm overwhelmed and don't know where to start. We have been gluten free for almost a week since my almost 4 yr old was diagnosed by endoscopy last week. I just got a call from the ped GI's nurse that told me we need to stop lactose and sucrose. I'm ok with lactose. I know they have many options out there for lactose free dairy products. I'm overwhelmed though when I put it all together. For the past week, I have been giving him coco pebbles, yopait yogurt, sting cheese, lots of fresh fruit, pb and j sandwiches, and other grilled meats. I have been using one meal a day (typically dinner) to experiment with new gluten free breads, attempting gluten free bisquick breaded chicken, and other gluten free recipes.
When I asked the nurse questions such as "can he have fresh fruit? Artificial sweeteners? How long do we need to do this?" She had to get off the phone and ask someone else all of my questions and was not very educated on the matter. I was told no fruit (which I figured) and we could have artificial sweeteners just not splenda. My son's 4 yr old birthday party is in 2 weeks - I'm guessing no cake. Also, I have recently got him to swallow his Prevacid capsule in a spoonful of applesauce - ideas on this now. We have the pill form because evidently the chewable tablet is not covered by insurance.
I just received the call that we expected. The endoscopy biopsies revealed Celiac, but also Eosinophilic Esophagitis. I was expecting the first diagnosis, but the second was not expected. We have been referred back to the allergist for more testing due to the EoE. So, I'm a little confused???? If they find that he is allergic to other things, what will I be able to give my child? We are also still waiting on results for the lactose and sucrose tests to see if we need to restrict those things as well. Does anyone have experience with the EoE diagnosis???