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bennl1

Member Since 07 May 2012
Offline Last Active Jul 25 2012 03:17 PM
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#807837 How Many People Self-Diagnose?

Posted by bennl1 on 02 July 2012 - 02:55 AM

In fact, in the US getting diagnosed can be detrimental because it becomes a pre-existing condition that can get you declined coverage or bumped into a more expensive insurance bracket.

Isn't that fraudulent, withholding information when applying for an insurance?
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#807813 How Many People Self-Diagnose?

Posted by bennl1 on 01 July 2012 - 07:14 PM

The topic is "How Many People Self-Diagnose". :D

On this forum it looks like there are many people self-diagnosed and that they are very active.
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#807811 How Many People Self-Diagnose?

Posted by bennl1 on 01 July 2012 - 07:09 PM

"As my body doesn't know if I'm glutened on purpose or by accident"

clearly the keyword is "body" and "my body doesn't know" has not the same meaning as "I don't know"
And it is about knowing the difference between "by accident or on purpose"
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#807731 How Many People Self-Diagnose?

Posted by bennl1 on 01 July 2012 - 12:10 PM

You mean, for YOU it's easier to stick to the diet....

Not only for me, for most. Just in human nature that life is easier without doubts. And there is a lot of positive power from doctors, employers, friends, family-members taking your celiac to be a fact.

Gluten challenges can be really dangerous. You got off easy. I was specifically instructed by my doctors not to challenge. In my case I risk serious psychiatric illness from the effects of gluten on my mind. You can also trigger autoimmune flare-ups and we had a board member who got so sick she needed hospitalization when she challenged. A gluten challenge isn't something to undergo lightly.

If a gluten challenge becomes life threatening or really unbearable, of course a person needs to contact his/her doctor and discuss how to go further. That is just common sense. There are many diagnosed celiacs out there who did the gluten challenge like me. For me it was not a nice thing to go through, but didn't kill me either. I'm happy now I did not quit. I feel lucky I had people supporting me and helped me through it.


You said you cannot tell when you have been glutened by accident, right? (I read this on the other thread "How bad is cheating")

You read wrong.
I said my body (nor anyone else's body for that matter) can tell the difference between an accidental glutening and a glutening on purpose (as for the body it's just a glutening). Hope with the additions you are better able to understand it.


I'm sorry to hear how some of you were not able to do the gluten challenge and therefore missed to be diagnosed and to find out the benefits of being properly diagnosed.
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#807631 DH Photo Bank

Posted by bennl1 on 01 July 2012 - 04:57 AM

So far none of the picture posters have been diagnosed DH, right?
It's a "probable DH photo bank" then...

How can you be 100% sure it is DH and use it as an example for other people?
There is still a (although maybe slight) chance it is something else
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#807616 How Many People Self-Diagnose?

Posted by bennl1 on 01 July 2012 - 01:07 AM

Should I just go with my gut feeling (the one I get when I don't have gluten in it!!) and just stop with it all? I've had enough now. Is an official diagnosis really worth the hassle that goes with it? I was adamant that it would be before today, but 6 more weeks is a big ask!! Advice please?!

Please don't listen to people encouraging you not to go for an official diagnosis.

For one, when officially diagnosed, it is so much easier to follow a lifetime diet and to convince the people around you about it.
Secondly, being diagnosed, you will get the necessary follow up tests for the possible effects of mal-absorption.
Thirdly, you might have some other auto-immune disease i.s.o. celiac, self diagnosing might put you on the wrong track.

I went on a 30g gluten/day challenge for 2 months (=40g gluten powder or 12 slices of bread) and yes, it was hell, but it was worth it .
Doctors do take me serious and I'm getting all the follow-up tests needed and help I want. Plus I'm super motivated to stay on the diet.

Hang in there, the gluten challenge will soon pass. Trust me, it's worth it.
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#807455 How Bad Is Cheating On The Gluten Free Diet Periodically

Posted by bennl1 on 30 June 2012 - 06:32 AM

Many doctors I've seen in my time seem to think it's ok for celiacs to cheat on the gluten free diet. Some say once every few months and others say once every year or couple of years.
How long would it take to heal? I've heard it's around 3-4 weeks from a single 5 gram dose of gluten.

This was the initial issue of this thread.
There is 100% consensus that it is not wise to knowingly gluten yourself.

As my body doesn't know if I'm glutened on purpose or by accident, I tried to extend the issue to when one is occasionally glutened accidentally.

My interpretation of the reactions in this thread is that: doctors are ignorant, death and irreversible villi destruction may occur and the person wondering about the extend of damage must be so ignorant he needs to buy a basic book on anatomy. And although denied, it all feels more emotional than factual into perspective to me.

To be diagnosed when already on a gluten free diet, a long and intensive gluten challenge is required. So apparently incidental glutening does not carry far enough to be diagnosed. Of course this does not mean it is ok to be careless, it only gives some comparison.

For those of us diagnosed celiac, staying gluten free is a way to heal. It's not a belief or a religion, we are not part of a cult.
There is nothing wrong or ignorant about wondering HOW MUCH you are set back by a single glutening.
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#794279 Is It Normal To Lose Weight When You First Go Gluten Free?

Posted by bennl1 on 09 May 2012 - 04:46 AM

...
Eating healthier means eating natural foods (that don't require a label in order to know what they contain), and not overdosing on sugar, saturated fats, chemicals, coloring, preservatives, salt and so on. In my opinion that is.
...


I fully agree.

What I noticed in the forum is that the majority of the people are just replacing the gluten-rich products for the gluten-free ones and continue their unhealthy eating habits. Thereby risking a lot of mistakes. And, let's face it, the gluten free specials are far more expensive too.

I believe that changing your eating habits completely by one that is originally gluten free is a far better option.

Going on Paleo, I think, would actually be, by far, the healthiest choice for us. Yet, it can come along with a lot of weight loss. I do believe, however, it is the best way to start the gluten free journey, as it clears up the gut flora first.
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