1desperateladysaved

If they are bits of food stuck to the utensils, rewash them for sure.  I carefully rinse mine before washing in hopes that the dishwater and dishwasher will not get gluten in them.  Then I wash them.  If they are not yet clean I rescrub them.  I believe even a little crumb or slime can be a problem.  Therefore, I think extreme caution is in order.

I would leave the histamines at the drugstore, but That's me.  I left prednisone at the store recently when I had an unknown rash.  The rash went away a few days later.  I would see if you can figure out which foods do cause a problem.

 

I have had my allergy tests and am glad for them.    I hope yours will help you out too.

 

Diana

" Now I've read a number of your stories about people not switching or supporting you. I couldn't imagine not supporting my better half with her interolance. It isn't like she woke up one morning and said "Oh today I think I will have a reaction to gluten." Or as I say "She didn't win the lotto from the food gods!" . Most people just don't understand and refuse to understand why someone who doesn't have celiacs or even an intolerance would give up "real food" as they say."

Ha, I like the way you put it.  Anyone here that volunteered for the job of battling celiac?

 

I am really enjoying the food also.  But I didn't volunteer.

Hi Kristin,

 

If I understood correctly you went gluten free before the biopsy.  Healing could have happened during that time of being gluten free.  Well, healing would be a good thing.  But your biopsy could have been false negative.  Two weeks of light gluten may have not been enough.  Here are some questions:

 

Do you have a reaction if you accidentally consume gluten?  I reread and yes is the answer.

 

Do you have any nutritional deficiencies?  Your weight loss could be a sign of it.

 

If you want to get a proper diagnosis you will have to do a gluten challenge and eat gluten for some time before checking.  You may decide to do that.  My diagnosis was by genetic testing and response to the diet.  I did the genetic test when I realized that I could never eat gluten again on purpose.  If this is your choice, it was a good choice for me.  IF your body is telling you that it does not like gluten you and your doctor should believe it.

 

I hope you get a definative diagnosis.  Most of all I hope that your GI problems will go away, and your belly won't be bloated.  Then I hope that you will get well.   ***  Those stars are the best flowers that I have learned how to make.

 

Diana

I take iron and don't understand about any pain associated with it.  I take a capsule of powder.  Mine is very natural, just meat.

 

At 3 months gluten free, part of the time I felt like I was dying.  Keep in my the goal of better health.  You are going toward it, but it isn't all up hill.  Often my lowest points were followed by the strongest ones yet, so I am hoping you're about due for one of those.

 

Diana

Fear of lectures and disapproval.

Wow!  Get your test results and figure it out.  It is so hard to go through confusion while you are sick.  .  You know that you can test negative and still have a gluten intolerance problem.  I hope you will get some definitive tests and Soon.

 

Diana

The age spots are falling off my neck!

I am hearing so many that are struggling with intolerances and having extreme difficulty.  They seem to need to avoid everything in their diet.

I am here to ask to hear from someone who has been there done that.  We need to know how you did it.


Sometimes I am feeling so well lately, I am wondering if I have done it, but I want someone gluten free longer than 7 months.

I hope all will get there one day:  Beyond intolerances.



If you are still in the process, you might describle how you are trying to overcome it.

Diana

I was relieved to find I had celiac.  I liked having an explanation for 30 years of fatigue and a way out.  Yeah, I would have been glad if I didn't have to follow the diet, but I would be back to square one of what to do next.  I just hope that you Razzle51 will find the keys to your health struggle and be able to do something about it.

Diana

.  You have already come through alot.  Perhaps cutting gluten will bring relief to you.  Probably the cheapest test is going gluten free, but then blood tests could false negative on you.  Hopefully, you can find a doctor to help.  I want for you to be able to get back to work and soon.  It is hard to feel not depressed and worthwhile without work.  PLease keep us up to date.

Diana

The enamel disappeared off my teeth when I was in High School.  I have been lectured ever since about how to care for my teeth.  I went home many times and did it all only to get the lectures all over the next time.  THERE had to be something else I kept thinking.  About 6 months ago I got the Celiac diagnosed.  I finally went back to the dentist having stayed away for 3 years.  The teeth were "good" under the circumstances with no cavities.

The teeth were covered with deposits, though.  The hygentist told me that sometimes if a person has mal-absorption their saliva contains minerals.  Then she said that my teeth had the deposits only where the saliva puddles.

I said, "Bingo"  that is the missing link.

A dentist long ago told me that I had allergies big time.  No explanation was given me, but the dentist called my MD.  The next time I went to the MD she estimated that I had 5 % of my bone mass left.  She gave no explanation for this determination and no way to detour it.  I was 25.

Five years back one dentist told me that he hadn't had anyone with so many teeth problems that didn't have an autoimmune disease.  OH, I didn't even know what an autoimmune disease was.  I was working on my health as I felt like my teeth were being destructed from the inside to out.

My gums don't bleed every time I brush and floss anymore, so I think there is some improvement.  Maybe one of these days I won't get the lectures.

Diana

Years ago I heard that spelt and Kamut were less modern than other wheat varieties.  I began to eat them instead.  I DID NOT KNOW I HAD CELIAC.  I did not get better until I cut those out of my diet.  I would say from my experience that it didn't help me.

Are you taking some B vitamins, or have you found you are deficient in anything?  My fatigue improves by better nutrition.  I haven't ever tried sleeping for as long as my body wanted ,, because I perceive I would still feel the fatigue if it was there.  I also have responsibilities to perform as most of us do.  The fatigue  goes  away and comes back spontaneously, so I don't think that more sleep would solve it.

I hope you will find a way to improve your energy level.

Diana

NicoleAshley " I hope we are close to an answer. "

I hope so too.

Diana