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GF Lover

Member Since 13 May 2012
Offline Last Active Private

#949250 Urinary Leakage

Posted by on 24 July 2015 - 03:52 AM

This is what Doctors told us to do (at your age) before there was a pill for everything.




My personal belief is it is not Celiac related.



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#947079 Petrified, Supraclavicular Node Enlargement & Gastric Symptoms... Cancer?

Posted by on 13 June 2015 - 03:35 AM

Hi, Stubble.  No one can speculate at this point and it would be irresponsible to try.  Try to stay off of Doctor Google.  Try and distract yourself until your Appointment.  Not knowing things is very hard, I know.  Just try and calm down.  The more you stress your body with this fear and stress the more your body has to work to stay healthy.  


Hang Tight .... Colleen

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#946772 Vomitting,diarrhea All Night-Was It Something I Ate?

Posted by on 08 June 2015 - 04:09 AM

Colleen,do/did you have cancer too?Your picture says melanoma awareness.You don't have to tell me I just hope you are better if you had it or get better if you have it now and yes the Hickman is better than the picc because I can hide it under my pjs.


Oh gosh, hun, I'm devastated with you.  I have Metastatic Melanoma, Stage 3b.  I have been stable for almost 2 years now, there is no cure yet for MM.  I completely understand the effects of Therapy and the Longer Term damage acquired.  Since my Immunotherapy, I developed another AI Disease and a scan just found a Lacunar Infarction in my brain.  The effects of Cancer seem to never stop.  I'm glad the Hickman is better.  I remember trying to hide a surgical drain coming out of the front of my thigh....lol.  I hope you'll get thru your therapies better than last time.  Hopefully knowing what you're up against will give you an advantage.  Make sure what's going in the NG is gluten-free.  Your body only needs one fight at a time.  Feel free to pm me if you want to talk or cry or even scream :)  


My thoughts and prayers are with you.  Please keep us posted when you can.  Colleen

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#945371 Longer Term Recovery - Neuro Setbacks

Posted by on 09 May 2015 - 09:30 AM

Here is an easy to read article that explains things better than I.  It's good for all of us to keep in mind.  New (a year or so) Celiacs can obsess about all kinds of things that really mean nothing due to Celiac.  Some people start cutting back foods they eat drastically thinking it is Celiac related when it's not.  


The best advice I can give any Celiac is to look at improvements as a whole and realize some things need a lot of time to improve and other things may never improve, but you will eventually find your new normal and work with it.


Stay positive girls  :D





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#937772 Newbie - Any Advice Please?

Posted by on 03 January 2015 - 12:29 PM

As Bartfull said, do get your daughter tested.  An endoscope would be something to consider.  They look for damage and abnormal cells by taking biopsies.  Once you have a baseline on any damage, you can have follow up scopes to make sure he is healing if he is still having some issues.  His blood tests should be checked periodicallly also to look for reduction of anti-bodies, again, to make sure his is healing and not getting any gluten.  Another thing to consider is testing his thyroid function tested which is a simple blood test.  Autoimmune diseases often come in multiples and Thyroid Disease is very common with Celiac.  False Negatives for Celiac can be problematic, False Positives are rare.  


There is a lot of information on Celiac Disease to digest.  There is also a lot of crazy information about Celiac.  Always make sure your sources of information are credible.  



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#937441 Is Makeup Or Medication Causing These Issues?

Posted by on 27 December 2014 - 03:38 PM

Clonazepam does not have any gluten in it.  See here : http://dailymed.nlm....65-D20D2350DF3E.


Your lipstick, liquid makeup or powder and face lotion would be the only items that should be of concern as far as gluten.  If you've been having these depression episodes regularly then you may need to look at other food related issues and preparation and if you eat out.  


Good luck :)



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#936735 Cookie House (Rant)

Posted by on 12 December 2014 - 05:18 PM

I got it!.  Sprinkle Mirilax on the cookies and then proclaim...Welcome To My World  :lol:

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#933198 Gluten Withdrawal Symptoms

Posted by on 22 October 2014 - 01:57 PM

I'm not quite sure why you are taking charcoal pills as they are typically used for poisoning and such.  I would stop those.  Look into a good probiotic.  Glutenings can last up to a month or so.  Immodium should help with the D.  Give your body time to heal...lots of time.  Try to stay with whole foods and limit anything processed.  Try not to eat out for awhile as you learn more about living gluten-free.  I would not worry about other intolerances at this time as it is most likely to hard to tell at this point.  Be patient!



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#932700 Addison's

Posted by on 15 October 2014 - 11:18 AM

Hi Beth,  Try not to worry about Addison's unless you get a diagnosis.  You may be low in potassium/sodium which will effect your muscles.  If you crave salt, eat it and lots of water to help your muscles.  You will most likely get a blood test for ACTH, potassium/sodium levels and cortisol level.  These tests will determine whether the pituitary is involved along with the adrenal glands.  


My husband has had Addison's for over 30 years and it is managed with lifelong medications and is monitored much like the thyroid with regluar blood work to check levels.  There are added concerns with Addison's but can still be managed to some degree.  


Let us know how the tests turn out.  If I can answer any other questions you might have, just ask away.



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#930320 Tea Recommendations

Posted by on 11 September 2014 - 04:50 AM

Hey Jamie.  you can always put a dash of salt to cut the bitterness.  



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#930032 How Did You Heal Your Gut? Besides Giving Up Gluten...

Posted by on 08 September 2014 - 04:12 PM

Ice Girl...


Gonna have to put the brakes on you  ;)  Remember no magic pill.  I'll give you a perfect example of how difficult multiple AI's can be.


You Ready?


In July my AI system went nuts due to a separate issue I have.  From July and still going on now....my Vitiligo when nuts, Thyroid upped a point and Sicca (Sjogrens) is killing me.  Have sore throats, headaches etc.  This is all from just one Autoimmune Trigger going off.  Will run its self out at some point but you just can't hurry it along.  You just have to manage it and be as healthy as you can.  Find something good in each day and concentrate on what you CAN do and not what you CAN'T.  You don't even what me coming up there and smacking you around a bit.  :lol:


Patience, Patience, Patience



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#929822 Hotel Waffle Makers With gluten-free Waffle Mix?

Posted by on 07 September 2014 - 04:54 AM

Personally, I would not use it.  The waffle mix leaks out so badly and that stuff really sticks.  I think the one I bought was from Walmart and around $15.00.   Does two at a time and works fine and will travel easily.  



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#929720 The What's For Dinner Tonight Chat

Posted by on 05 September 2014 - 01:25 PM

Had a wonder lunch at Buffalo Wild Wings.  Kitchen staff was excellent as was the meal.  


Breaking out some Wine tonight also.  Plan to seriously relax.

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#929109 How Far Will Ya Go?

Posted by on 01 September 2014 - 02:06 PM

I would go to my Kitchen.

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#928830 The What's For Dinner Tonight Chat

Posted by on 29 August 2014 - 06:08 PM

Hubs picked up a pound of beautiful thick cut BACON yesterday.  BRING IT ON  :D  :D


Pizza and Wine for dinner.....was celebrating  :D

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