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GF Lover

Member Since 13 May 2012
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#945371 Longer Term Recovery - Neuro Setbacks

Posted by on 09 May 2015 - 09:30 AM

Here is an easy to read article that explains things better than I.  It's good for all of us to keep in mind.  New (a year or so) Celiacs can obsess about all kinds of things that really mean nothing due to Celiac.  Some people start cutting back foods they eat drastically thinking it is Celiac related when it's not.  

 

The best advice I can give any Celiac is to look at improvements as a whole and realize some things need a lot of time to improve and other things may never improve, but you will eventually find your new normal and work with it.

 

Stay positive girls  :D

 

Colleen

 

https://www.yahoo.co...8300620327.html


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#937772 Newbie - Any Advice Please?

Posted by on 03 January 2015 - 12:29 PM

As Bartfull said, do get your daughter tested.  An endoscope would be something to consider.  They look for damage and abnormal cells by taking biopsies.  Once you have a baseline on any damage, you can have follow up scopes to make sure he is healing if he is still having some issues.  His blood tests should be checked periodicallly also to look for reduction of anti-bodies, again, to make sure his is healing and not getting any gluten.  Another thing to consider is testing his thyroid function tested which is a simple blood test.  Autoimmune diseases often come in multiples and Thyroid Disease is very common with Celiac.  False Negatives for Celiac can be problematic, False Positives are rare.  

 

There is a lot of information on Celiac Disease to digest.  There is also a lot of crazy information about Celiac.  Always make sure your sources of information are credible.  

 

Colleen


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#937441 Is Makeup Or Medication Causing These Issues?

Posted by on 27 December 2014 - 03:38 PM

Clonazepam does not have any gluten in it.  See here : http://dailymed.nlm....65-D20D2350DF3E.

 

Your lipstick, liquid makeup or powder and face lotion would be the only items that should be of concern as far as gluten.  If you've been having these depression episodes regularly then you may need to look at other food related issues and preparation and if you eat out.  

 

Good luck :)

 

Colleen


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#936735 Cookie House (Rant)

Posted by on 12 December 2014 - 05:18 PM

I got it!.  Sprinkle Mirilax on the cookies and then proclaim...Welcome To My World  :lol:


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#933198 Gluten Withdrawal Symptoms

Posted by on 22 October 2014 - 01:57 PM

I'm not quite sure why you are taking charcoal pills as they are typically used for poisoning and such.  I would stop those.  Look into a good probiotic.  Glutenings can last up to a month or so.  Immodium should help with the D.  Give your body time to heal...lots of time.  Try to stay with whole foods and limit anything processed.  Try not to eat out for awhile as you learn more about living gluten-free.  I would not worry about other intolerances at this time as it is most likely to hard to tell at this point.  Be patient!

 

Colleen


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#932700 Addison's

Posted by on 15 October 2014 - 11:18 AM

Hi Beth,  Try not to worry about Addison's unless you get a diagnosis.  You may be low in potassium/sodium which will effect your muscles.  If you crave salt, eat it and lots of water to help your muscles.  You will most likely get a blood test for ACTH, potassium/sodium levels and cortisol level.  These tests will determine whether the pituitary is involved along with the adrenal glands.  

 

My husband has had Addison's for over 30 years and it is managed with lifelong medications and is monitored much like the thyroid with regluar blood work to check levels.  There are added concerns with Addison's but can still be managed to some degree.  

 

Let us know how the tests turn out.  If I can answer any other questions you might have, just ask away.

 

Colleen


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#930320 Tea Recommendations

Posted by on 11 September 2014 - 04:50 AM

Hey Jamie.  you can always put a dash of salt to cut the bitterness.  

 

Colleen


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#930032 How Did You Heal Your Gut? Besides Giving Up Gluten...

Posted by on 08 September 2014 - 04:12 PM

Ice Girl...

 

Gonna have to put the brakes on you  ;)  Remember no magic pill.  I'll give you a perfect example of how difficult multiple AI's can be.

 

You Ready?

 

In July my AI system went nuts due to a separate issue I have.  From July and still going on now....my Vitiligo when nuts, Thyroid upped a point and Sicca (Sjogrens) is killing me.  Have sore throats, headaches etc.  This is all from just one Autoimmune Trigger going off.  Will run its self out at some point but you just can't hurry it along.  You just have to manage it and be as healthy as you can.  Find something good in each day and concentrate on what you CAN do and not what you CAN'T.  You don't even what me coming up there and smacking you around a bit.  :lol:

 

Patience, Patience, Patience

 

Colleen


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#929822 Hotel Waffle Makers With gluten-free Waffle Mix?

Posted by on 07 September 2014 - 04:54 AM

Personally, I would not use it.  The waffle mix leaks out so badly and that stuff really sticks.  I think the one I bought was from Walmart and around $15.00.   Does two at a time and works fine and will travel easily.  

 

Colleen


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#929720 The What's For Dinner Tonight Chat

Posted by on 05 September 2014 - 01:25 PM

Had a wonder lunch at Buffalo Wild Wings.  Kitchen staff was excellent as was the meal.  

 

Breaking out some Wine tonight also.  Plan to seriously relax.


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#929109 How Far Will Ya Go?

Posted by on 01 September 2014 - 02:06 PM

I would go to my Kitchen.


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#928830 The What's For Dinner Tonight Chat

Posted by on 29 August 2014 - 06:08 PM

Hubs picked up a pound of beautiful thick cut BACON yesterday.  BRING IT ON  :D  :D

 

Pizza and Wine for dinner.....was celebrating  :D


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#928691 How To Wait & Not Be Miserable

Posted by on 28 August 2014 - 10:59 AM

Hi jddh.

 

I'll tell you about my last 3 years and how I got thru it.  Almost 3 years ago I got my Celiac diagnosis.  Before that I had around 15 years of very poor health, lots of meds and lots of Dr. appts.  and lots of lost time just trying to survive day to day.   I was feeling pretty decent after I went gluten-free and was completely thrilled to know what was wrong and it made the healing time so much better because I was getting healthy and not getting worse.  Then six months after going gluten-free I was diagnosed with Cancer.  Of course, I was crushed.  I was finally getting a grip on my health and then wham.  This is when I learned some serious coping skills.  First thing I did was accept that this is what I have to work with so no use bitching about it.  Only I can make (informed) appropriate decisions for ME.  I really dug into "Mindfullness" and I suggest you look into this too.  There is alot of info on the net about it.  Basically, it makes you pay attention to the here and now, focuses you.  I also use bi-neural beats.  This can help you get into different states of consciousness, it brings you brain into a theta pattern or other patterns as you choose.  It can induce relaxation, focus, sleep, etc.  I also learned about CBT (Cognitive Behavioral Thinking)  You can also learn about this on the web but I did this with my Therapist.  I have Bi-Polar Disorder so I am very prone to deep depressions.  I had to get permission from my Psychiatrist to start a Clinical Trial for the cancer treatment.  We were extremely careful to keep me stable thru the whole process.  I have also relied heavily on my friends to vent, share news (good and bad) and that can never be replaced.  I have also learned a very valuable lesson.  Each day gives you the opportunity to live it the way you choose!  If you feel miserable, Be thankful your not dead.  If you feel great, hold on to that feeling and be grateful for a good day.  Pretty soon you will have more good days then bad.  After some time you will realize that you are actually living life again and not worrying about the small stuff.  Every Morning I go out on my porch and listen to the sounds of the birds, feel the breeze on my skin and enjoy the sun on my face !  THAT is living !  Remember, all that your going thru now is temporary.  

 

Good Luck to you.

 

Colleen


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#928678 What Is The Strangest Place That You've Seen Gluten?

Posted by on 28 August 2014 - 07:41 AM

In our bed.  Hubs not allowed to eat late night snacks in the bed anymore  :D

 

Colleen


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#928234 Even gluten-free Foods Triggering Reaction After Initial Glutening?

Posted by on 23 August 2014 - 06:43 AM

Hi jddh.  You asked : I wonder if omeprazole could make things worse? Perhaps decreased stomach acid causes my digestive process to slow down, lengthening the autoimmune reaction In my small gut. 

 

Years ago I was given this med also.  I was doubled over in pain every time I ate a meal.  I was also having acid come up my throat.  For these two symptoms I was prescribed it.  I took as directed and I stopped it within 10 days.  It made me feel nauseous through the entire day and my stomach would be tender to the touch.  It certainly made things worse for me.  It also never even touched the pain with a meal.

 

I know not everyone reacts this way and I'm sure the med has helped many but this is how it effected me.  These two issues slowly resolved years later with a gluten free diet.

 

Good luck,

 

Colleen


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