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GF Lover

Member Since 13 May 2012
Offline Last Active Private

#926908 The What's For Dinner Tonight Chat

Posted by on 09 August 2014 - 02:50 PM

ZOOM IN...when you take pics.  :lol:  :lol:  :lol: .  



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#926578 Are You Happy?

Posted by on 06 August 2014 - 07:21 AM

:o Horses  :D I love horses.  Of course I won't be able to walk right for a week but worth it  :D

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#926303 Are You Happy?

Posted by on 04 August 2014 - 04:59 AM

Thanks IH :wub: .  I made a special card just for you coastal friends  :D


Happy Happy

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#926207 Are You Happy?

Posted by on 03 August 2014 - 09:41 AM

Are You Happy?
Silly question, right?  Maybe not.
hap·py adjective \ˈha-pē\
1 feeling pleasure and enjoyment because of your life, situation, etc.
2 showing or causing feelings of pleasure and enjoyment
3 pleased or glad about a particular situation, event, etc.
I realized lately that I'm happy. I think I was just too busy complaining and feeling sorry for myself to see it before.  
1:  Yes.  I'm alive for one, I am able to enjoy the company of others, am able to walk and go places, can talk and express myself and help others and see beauty all around me.  I have a roof over my head, enough money to keep the roof and provide food and transportation to go where I want.
2:  Yes.  I can make others smile, empathize with others, offer sound advice, make other feel good about themselvs and take joy from all around me.
3:  Yes.  I'm alive works for this one too.  I can draw and paint.  Listen to music and dance.  Feel the wind on my face, feel the cool rain, be cozy in the winter in front of the fireplace and spend time with family and friends.  
You can't feel happy without the sad or there is nothing to compare it to.  
Take a long look at your life, are you happy?

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#926040 The What's For Dinner Tonight Chat

Posted by on 01 August 2014 - 11:28 AM

Our friends took us out for an early Indian Meal.  Was wonderful.  I have no idea what I ate :o but it sure did taste good.  Was our first time eating authentic Indian food.


Happy Happy

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#925905 Mast Cell Activation Syndrome (Mcas)

Posted by on 31 July 2014 - 11:38 AM

Just think.  The more time that goes by, the more you are healing and your body is constantly adjusting to the ongoing changes.  This is all good stuff.  It took us a long time to get this way...it takes a long time to heal from it.  Remember, each day is a step closer to the goal.


Your not alone hun.  We've been there and will help and encourage you through it.



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#925763 Of Course This Happens...

Posted by on 30 July 2014 - 06:22 AM

I know the test should be with active lesions.  The antibodies under the skin have to be sufficient to be reliable.  I don't know about the Iodine.  Still, I wouldn't think one day for a full blown breakout is gonna make it.  How long did it take to make the appt?  Maybe just call and tell them your basically clear except itching and you are having a biopsy specifically for DH and get their opinion.  Maybe they can get you back quicker knowing the situation.  Can't hurt to try.  


Good Luck.



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#924585 Ebay Scams

Posted by on 21 July 2014 - 06:25 AM

IMO, You should give ebay the information you have gathered in the Dispute Communication.  Also put concerns about your reputation.  If this is credit fraud, it should be handled properly to avoid future problems with the "buyer" and the other "buyer".  



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#924341 Peanut M&ms

Posted by on 18 July 2014 - 07:45 AM

No problem with M & M's here.  Probably just a stomach ache from all the sugar?

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#923649 Waiting For My Test Results

Posted by on 12 July 2014 - 04:56 AM

Last summer, it was discovered I had developed an anemia. Initially, my doctor framed the situation in grim terms -- I was a young male with anemia and anemia in young men is rare. I eat a regular diet and had not recently donated or lost any blood. He sent me to a hematologist who works in oncology. The hematologist reviewed my blood work and ordered iron tests. They showed I was severely iron deficient. I told her I run 50 miles a week, but was told that wouldn't be why I was iron deficient. She put me on 130mg of elemental iron per day and sent me back to my primary care physician.  He decided to take a wait and see approach and after a few weeks of taking the iron supplement, I began feeling better. At 3 months, my hematocrit and hemoglobin had shot up. I knew it, too. I felt fantastic. It seemed to be the end of the story.


Unfortunately, that good feeling didn't last. Fatigue began to return. I would go in for more blood tests, but my CBC and iron levels looked normal. At 9 months, the doctors told me I could stop taking the iron supplement. I did, but began to feel progressively worse. After a couple months, I restarted the iron supplement. At my most recent blood work, my levels were still normal, but had uniformly fallen. My doctor has now told me to take 65 mg of elemental iron daily to hold my levels steady.


I also recently began having bowel disturbances. I do not typically eat a lot of bread, pasta, or cereal and began noticing the two events seemed correlated. I mentioned this to my doctor on Monday and he ordered blood tests for celiac, which are pending. Also, I'm on an anti-depressant.


Has anyone else had iron deficiency anemia, that responded to oral iron, who was then diagnosed with celiac? I don't have other symptoms of malabsorption. I had b12 and folate tested and they were fine. I don't have any of the other symptoms of celiac that seem commonplace. I have no rashes. I haven't had excessive diarrhea, though have had loose and pale stools. Recently, they did seem correlated to when I would eat bread or cereal.


Still, I don't think I have celiac. I think the iron deficiency comes from my running, even though the hematologist said it wasn't. I'm interested in knowing if anyone else had iron deficiency as their primary symptom and was then diagnosed with celiac.


I should get my test results back next week.


Hi Cookies... and Welcome to the Forum.


Iron Deficiency/Anemia is very common to undiagnosed Celiacs.  I agree with your Doctor that running would not cause this.  Some Celiacs have no symptoms, very few symptoms, or a boat load of symptoms.  Depression at any level is also associated with Celiac.  Here is a list of symptoms.




Here is information for proper testing.




Keep eating gluten until all testing is complete, including Endoscope.  



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#923106 Boston- Four Thumbs Up!

Posted by on 08 July 2014 - 03:31 AM

Awesome Stephanie.  Your son looks very happy. and the pic with Dr. Fasano, The Celiac God, is awesome.



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#922404 As For Other Foods, Do Tomatoes Or gluten-free Bacan Make Anyone Else React?

Posted by on 02 July 2014 - 03:02 PM

That's a loaded question...lol.  Don't eat the two foods together? 



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#922294 The What's For Dinner Tonight Chat

Posted by on 01 July 2014 - 04:58 PM

Pizza all around....


Went for a 2 hour drive to get the only gluten free pizza I can have, the ones I make myself are really not that good.  We got four pizzas all together.  One for daughter-in-law (taco pizza), one for me (ground beef and green olives) 1 for Hubs (pepperoni and green olives) and brought one home for my son.  

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#921978 I Think My Doctor Is Wrong?

Posted by on 29 June 2014 - 11:04 AM

I would suggest you contact your Doctor right away.  A Celiac does not typically develop leaky gut after 12 years, that can happen very early in diagnosis.  If you a still eating gluten free this probably has nothing to do with Celiac.  You should see a REAL Medical Doctor or Neurologist about your symptoms.


None of us here are doctors and should not help you with your current symptoms unless you want to talk about diet changes.


I would again stress calling your Medical Doctor.



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#921428 Dad Brought Home A Bag Of Wheat Gluten, Now I've Given Up.

Posted by on 24 June 2014 - 06:37 AM

Hi Mermaid.


You are definitely going through a difficult period right now.  A couple thoughts come to mind.  For the practical issues, how about an electric griddle, a crock pot and a toaster to keep in your room.  A toaster is about 10 bucks.  A griddle and crock pot can be purchased second hand since they can be easily cleaned.  Goodwill stores and Salvation Army Stores usually have these items available.  You could then get some hot meals with many more options.  Do you have "marked" gluten-free condiments in the fridge?  If your frozen items are packaged you don't have to worry about CC.  If the outer package has crumbs on it from the freezer then rinse it under water before opening it.  There are more things you can do, just give some specifics and we can brainstorm for you.


Now for the Family.  I'm assuming you are living with your parents, brothers/sisters?  I'm also assuming you are an adult?  Ok, think about this.  Call a family meeting.  Let them get a good look at you and how your fairing.  Tell them you are getting seriously sick again.  Tell them how it effects you mentally and emotionally.  Tell them how you feel they don't care about your well being.  Tell them you need some support at this time in your life.  Tell them everything bottled up inside.  Cry, yell, rage, plead, whatever you are feeling.  Ask them if THEY have any suggestions to help with CC.  


Lastly, you can't give up.  Seriously, it's not an option.  If there was ever a time in your life to advocate for yourself, it's now.  I know the feelings you are feeling.  It's very hard, yes.  You can get through this.  If you don't have your health you have nothing, trust me on this.  We can all help you with individual situations but your the one who has to do the work.  We are all in this Celiac thing together!



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