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GF Lover

Member Since 13 May 2012
Offline Last Active Private

#919589 Disability

Posted by GF Lover on 09 June 2014 - 12:46 PM

I know there are posts out there about this subject, but they all seem old. 


Has anyone had any luck filing for disability benefits?  I am getting a copy of my eleventeen gazillion page medical report and trying to figure out which information is going to be the most relevant or if I should just give it all to them.  Do I need my doctor involved or is that only if I need to appeal?  I am hoping to at least get the whole application process started and maybe ( not holding my breath) a preliminary answer from SSI before I go see my doc July 8th.


Any thoughts or experiences would be appreciated.  Thanks in advance.


If you don't have any debilitating issues aside from Celiac, it is highly unlikely that you will qualify.  Most people have a 1 to 2 year wait until a final decision is made by Social Security.  As Gemini said, you should be right as rain by then and be living a healthy life.



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#918074 How Bad Is Sugar?

Posted by GF Lover on 28 May 2014 - 02:41 AM

Hi Colleen, you asked to see some research…


From the CNN Health website:


(CNN) March 2014 -- The World Health Organization wants you to stop eating so much sugar. Seriously. The WHO is encouraging people to consume less than 5% of their total daily calories from sugars. Most Americans still consume much more. For an adult at a normal body mass index, or BMI, eating 5% would be around 25 grams of sugar -- or six teaspoons. That's less than is typically found in a single can of regular soda, which contains about 40 grams of sugar.


From Dr Weil's website:


"It is becoming increasingly clear that chronic inflammation is the root cause of many serious illnesses - including heart disease, many cancers, and Alzheimer's disease. Inflammation is the body's way of getting more nourishment and more immune activity into an area that needs to fend off infection or heal. But when inflammation persists or serves no purpose, it damages the body and causes illness, which we see when the immune system mistakenly targets the body's own tissues in (autoimmune) diseases".


"Learning how specific foods influence the inflammatory process is the best strategy for containing it and reducing long-term disease risks. As part of an Anti-Inflammatory Diet, reduce your consumption of foods made with wheat flour and sugar".


Hi FruitE,


Like Dr. Weil's site, most of what I read when researching the subject is opinion and the ol' "research shows" line without providing sources for the information.  In the time I spent looking I could not find any peer reviewed studies or legit research on the good/bad effects of consumption of sugar.  All that I read was about how over consumption of highly refined carbs (sugars) lead to obesity to diabetes and heart disease and they were talking about excessive amount of refined sugar added to processed foods and blood sugar levels.


I think with all the "recommendations" on appropriate sugar consumption and how "bad" it is for you drives many people to cut sugar out all together, which "they" say is not good for you either as the body does need some sugars to function (I read that in my search but don't have the source at hand but I think it was Webmd.)  I also read some info from a couple of Pediatricians that newborns will choose a sweet taste over other tastes.


I would imagine that the natural sugars in fruits is plenty to sustain us.   I also believe that moderation is the key to everything.  As for myself, I try to maintain a "low" sugar diet per my Oncologist but that is deceiving because "low" is really just the recommended amounts.  


I guess in the end it all boils down to not cutting out all sugars but choosing natural ones over processed and limiting "sweets" to a reasonable level.  That said, I do make brownies on occasion, have some ice cream here and there, enjoy a candy bar once in awhile and I am a sucker for Cherry 7Up.  I don't over indulge in sweets, I think of them as "something special" to have.  



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#917555 Advocating For Yourself

Posted by GF Lover on 24 May 2014 - 12:55 PM

In my case, no advocating was needed.  I went from a disabled miserable in pain shadow of my self and in 2 years I am healthy and happier than I have ever been.  Everytime I saw someone that I hadn't seen for awhile was like OMG.  You look Great?  Then I explain what happened and my diagnosis.  They are shocked.



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#917350 What Can I Trust?

Posted by GF Lover on 23 May 2014 - 10:16 AM

Ok girl.   You have to stop this.  If it says gluten free, you have to assume it is safe.  If you have a problem with that particular food, don't eat it again.  Try to avoid processed foods as they are not healthy, celiac or not.  Avoid eating out until you have a good grip on the diet and can maneuver the restaurant scene successfully if at all.   You do not need to worry about your antibodies unless at a checkup they are high.  You will heal without eating gluten.  You will keep yourself nuts and stressed out if you don't calm down and eat correctly.  


You will be fine!  start your diet and go live your life.  If, by chance, another health issue pops up, deal with that and then go live life again.  This is not hard to do if you just accept your diet change and realize you will continue to heal and feel better.  A diagnosis of Celiac is a GOOD thing!  You have found an issue and are now dealing with it to avoid possible problems in the future.  Some of us went 15 - 20 years undiagnosed and were on our way to the grave at the time of diagnosis.  


Cheer up, eat well and be happy.



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#917313 So Frustrated Not Better Yet

Posted by GF Lover on 23 May 2014 - 07:52 AM

My downfall is Snickers Bars.  In my defense, I do make one bar last 3 days  :D  I remember as a kid I would have cinnamon and sugar toast all the time.  It was total yummies then but now it would make me Urp.... :ph34r:


Thank you for your kind words and I wish you and your MIL and your family well also.



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#917296 So Frustrated Not Better Yet

Posted by GF Lover on 23 May 2014 - 07:23 AM

I see you guys here giving sugar a bad rap.  I think you mean High Fructose Corn Syrup and other sugary concoctions may be troubling you.  Everything in moderation.  If I happen to eat a piece of cake with frosting, my stomach will complain and I will get C.  For me, that does not mean I am intolerant to it, it just means I ate to much at one time.  I eat a very low sugar diet anyway because I have cancer but I don't avoid it completely.  Like one of you said, if you don't eat sweets for a length of time you won't crave sweets any more.


Carry on with the sugar bashing... :P



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#917291 How Do You Emotionally Deal With Setbacks?

Posted by GF Lover on 23 May 2014 - 07:09 AM

I haven't.  I've never actually made acorn squash...as much as I cook.  I think it intimidates me.  LOL!  How do you cook it? I would love to have something else to try.  Thanks!


Wow.  Squash are the bomb.  Ok.  Get a nice Acorn Squash, they are orange and green, I like some good orange color on the rind.  Knock on it.  Should sound a bit hollow, it has seeds.  Wash it good, cut it long ways thru the center.  put about a 1/4 - 1/2 inch of filtered water in a baking pan.  put the two halves, cut side down, in the pan and bake at 350 or so for about an hour.  When done the squash will be nice and soft.  I eat mine plain but some people put some butter and cinnamon or brown sugar sprinkled on theirs.  I think they taste great by themselves.  Another one is Spegetti Squash.  This one you cook and then you can use a fork and run it down the sides to make a linguini type string.  Season to taste.  Over on the "What's for Dinner" thread, they make Zoodles.  I think its zucchini made into noodles.  The members on the dinner thread know how to make any kind of food into all kinds of different ways.  You should check it out.



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#916146 Mushroom (Neroli) Memorial Thread

Posted by GF Lover on 15 May 2014 - 10:51 AM

She also touched my life...I remain grateful for that.  

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#914652 Dh On Chest Only?

Posted by GF Lover on 01 May 2014 - 04:12 AM

NCGI can also present with a variety of rashes, not including DH.



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#914564 "spices"

Posted by GF Lover on 30 April 2014 - 11:03 AM

Your dietician was most likely referring to "seasonings".  They contain blends of spices and other stuff.  Always read the label on seasonings.



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#913934 The What's For Dinner Tonight Chat

Posted by GF Lover on 25 April 2014 - 09:37 AM

Tonight we take my step-daughter out to eat, her pick of restaurant.  I will be having a meatloaf sammy before we leave and a large Margarita for dinner.   :D



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#913746 My Histamine Journey

Posted by GF Lover on 24 April 2014 - 04:49 AM

I really don't feel (in my gut) ha ha, that I have a Mast Cell issue. The symptoms are way off.


Think positive with me, pleeease GS! :)


Have you eaten low/no histamine for at least a couple weeks to see how you feel?  It seems your going down a road of alot of what if's when you could just be healing and weeding out a couple intolerances.  That's just my opinion, but I would work of a clean diet, stay out of restaurants, and getting back to physical activity, if you haven't already.  Not everything we eat will always agree with us, really doesn't mean it's a problem food, just don't eat itl



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#913130 Genetic Test For Celiac, How To Interpret Results?

Posted by GF Lover on 19 April 2014 - 03:40 AM

:D Props to Ninja for tackling that one.  Good Job.



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#913085 Labcorp Stool Test Results And Questions

Posted by GF Lover on 18 April 2014 - 10:39 AM

What a perfect start to the weekend.  Congrats on all the testing.  



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#912908 Safe Wines For Super- Sensitive People?

Posted by GF Lover on 17 April 2014 - 04:34 AM

You never mentioned flavorings.  Always check the label if flavor is added to wine/grain alcohol.  The straight product is gluten free.



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