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GF Lover

Member Since 13 May 2012
Offline Last Active Private

#922404 As For Other Foods, Do Tomatoes Or gluten-free Bacan Make Anyone Else React?

Posted by on 02 July 2014 - 03:02 PM

That's a loaded question...lol.  Don't eat the two foods together? 



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#922294 The What's For Dinner Tonight Chat

Posted by on 01 July 2014 - 04:58 PM

Pizza all around....


Went for a 2 hour drive to get the only gluten free pizza I can have, the ones I make myself are really not that good.  We got four pizzas all together.  One for daughter-in-law (taco pizza), one for me (ground beef and green olives) 1 for Hubs (pepperoni and green olives) and brought one home for my son.  

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#921978 I Think My Doctor Is Wrong?

Posted by on 29 June 2014 - 11:04 AM

I would suggest you contact your Doctor right away.  A Celiac does not typically develop leaky gut after 12 years, that can happen very early in diagnosis.  If you a still eating gluten free this probably has nothing to do with Celiac.  You should see a REAL Medical Doctor or Neurologist about your symptoms.


None of us here are doctors and should not help you with your current symptoms unless you want to talk about diet changes.


I would again stress calling your Medical Doctor.



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#921428 Dad Brought Home A Bag Of Wheat Gluten, Now I've Given Up.

Posted by on 24 June 2014 - 06:37 AM

Hi Mermaid.


You are definitely going through a difficult period right now.  A couple thoughts come to mind.  For the practical issues, how about an electric griddle, a crock pot and a toaster to keep in your room.  A toaster is about 10 bucks.  A griddle and crock pot can be purchased second hand since they can be easily cleaned.  Goodwill stores and Salvation Army Stores usually have these items available.  You could then get some hot meals with many more options.  Do you have "marked" gluten-free condiments in the fridge?  If your frozen items are packaged you don't have to worry about CC.  If the outer package has crumbs on it from the freezer then rinse it under water before opening it.  There are more things you can do, just give some specifics and we can brainstorm for you.


Now for the Family.  I'm assuming you are living with your parents, brothers/sisters?  I'm also assuming you are an adult?  Ok, think about this.  Call a family meeting.  Let them get a good look at you and how your fairing.  Tell them you are getting seriously sick again.  Tell them how it effects you mentally and emotionally.  Tell them how you feel they don't care about your well being.  Tell them you need some support at this time in your life.  Tell them everything bottled up inside.  Cry, yell, rage, plead, whatever you are feeling.  Ask them if THEY have any suggestions to help with CC.  


Lastly, you can't give up.  Seriously, it's not an option.  If there was ever a time in your life to advocate for yourself, it's now.  I know the feelings you are feeling.  It's very hard, yes.  You can get through this.  If you don't have your health you have nothing, trust me on this.  We can all help you with individual situations but your the one who has to do the work.  We are all in this Celiac thing together!



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#921323 Scared Of What Colonoscopy Might Find

Posted by on 23 June 2014 - 12:23 PM

Hi Beanie.  Turn your thinking around.  You FINALLY will find out if there is a serious problem "down there"  It is always better to know, then you can take appropriate actions.  Keep a positive attitude going and try to relax some.  This really is a good thing!!


Good Luck.



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#921295 The What's For Dinner Tonight Chat

Posted by on 23 June 2014 - 09:53 AM

Peacocks Rule  :wub:

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#920440 Has Anyone Found Anything That Helps With Memory Retrieval?

Posted by on 16 June 2014 - 04:06 AM

What were we talking about?


I thought that was funny.  :lol:   Being affected by CRS for the last 20 years I find humor wherever I can since I can't remember jokes.


Don't know what CRS is?  Can't Remember Shit   :P



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#920355 The Funny Pages - Tickle Me Elbow - The Sequel

Posted by on 15 June 2014 - 07:04 AM

Letters between son and dad

Dear Dad,
$chool i$ really great. I am making lot$ of friend$ and $tudying very hard. With all my $tuff, I $imply can't think of anything I need, $o if you would like, you can ju$t $end me a card, a$ I would love to hear from you.
Your $on

The Reply:
Dear Son,
I kNOw that astroNOmy, ecoNOmics, and oceaNOgraphy are eNOugh to keep even an hoNOr student busy. Do NOt forget that the pursuit of kNOwledge is a NOble task, and you can never study eNOugh.

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#919589 Disability

Posted by on 09 June 2014 - 12:46 PM

I know there are posts out there about this subject, but they all seem old. 


Has anyone had any luck filing for disability benefits?  I am getting a copy of my eleventeen gazillion page medical report and trying to figure out which information is going to be the most relevant or if I should just give it all to them.  Do I need my doctor involved or is that only if I need to appeal?  I am hoping to at least get the whole application process started and maybe ( not holding my breath) a preliminary answer from SSI before I go see my doc July 8th.


Any thoughts or experiences would be appreciated.  Thanks in advance.


If you don't have any debilitating issues aside from Celiac, it is highly unlikely that you will qualify.  Most people have a 1 to 2 year wait until a final decision is made by Social Security.  As Gemini said, you should be right as rain by then and be living a healthy life.



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#918074 How Bad Is Sugar?

Posted by on 28 May 2014 - 02:41 AM

Hi Colleen, you asked to see some research…


From the CNN Health website:


(CNN) March 2014 -- The World Health Organization wants you to stop eating so much sugar. Seriously. The WHO is encouraging people to consume less than 5% of their total daily calories from sugars. Most Americans still consume much more. For an adult at a normal body mass index, or BMI, eating 5% would be around 25 grams of sugar -- or six teaspoons. That's less than is typically found in a single can of regular soda, which contains about 40 grams of sugar.


From Dr Weil's website:


"It is becoming increasingly clear that chronic inflammation is the root cause of many serious illnesses - including heart disease, many cancers, and Alzheimer's disease. Inflammation is the body's way of getting more nourishment and more immune activity into an area that needs to fend off infection or heal. But when inflammation persists or serves no purpose, it damages the body and causes illness, which we see when the immune system mistakenly targets the body's own tissues in (autoimmune) diseases".


"Learning how specific foods influence the inflammatory process is the best strategy for containing it and reducing long-term disease risks. As part of an Anti-Inflammatory Diet, reduce your consumption of foods made with wheat flour and sugar".


Hi FruitE,


Like Dr. Weil's site, most of what I read when researching the subject is opinion and the ol' "research shows" line without providing sources for the information.  In the time I spent looking I could not find any peer reviewed studies or legit research on the good/bad effects of consumption of sugar.  All that I read was about how over consumption of highly refined carbs (sugars) lead to obesity to diabetes and heart disease and they were talking about excessive amount of refined sugar added to processed foods and blood sugar levels.


I think with all the "recommendations" on appropriate sugar consumption and how "bad" it is for you drives many people to cut sugar out all together, which "they" say is not good for you either as the body does need some sugars to function (I read that in my search but don't have the source at hand but I think it was Webmd.)  I also read some info from a couple of Pediatricians that newborns will choose a sweet taste over other tastes.


I would imagine that the natural sugars in fruits is plenty to sustain us.   I also believe that moderation is the key to everything.  As for myself, I try to maintain a "low" sugar diet per my Oncologist but that is deceiving because "low" is really just the recommended amounts.  


I guess in the end it all boils down to not cutting out all sugars but choosing natural ones over processed and limiting "sweets" to a reasonable level.  That said, I do make brownies on occasion, have some ice cream here and there, enjoy a candy bar once in awhile and I am a sucker for Cherry 7Up.  I don't over indulge in sweets, I think of them as "something special" to have.  



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#917555 Advocating For Yourself

Posted by on 24 May 2014 - 12:55 PM

In my case, no advocating was needed.  I went from a disabled miserable in pain shadow of my self and in 2 years I am healthy and happier than I have ever been.  Everytime I saw someone that I hadn't seen for awhile was like OMG.  You look Great?  Then I explain what happened and my diagnosis.  They are shocked.



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#917350 What Can I Trust?

Posted by on 23 May 2014 - 10:16 AM

Ok girl.   You have to stop this.  If it says gluten free, you have to assume it is safe.  If you have a problem with that particular food, don't eat it again.  Try to avoid processed foods as they are not healthy, celiac or not.  Avoid eating out until you have a good grip on the diet and can maneuver the restaurant scene successfully if at all.   You do not need to worry about your antibodies unless at a checkup they are high.  You will heal without eating gluten.  You will keep yourself nuts and stressed out if you don't calm down and eat correctly.  


You will be fine!  start your diet and go live your life.  If, by chance, another health issue pops up, deal with that and then go live life again.  This is not hard to do if you just accept your diet change and realize you will continue to heal and feel better.  A diagnosis of Celiac is a GOOD thing!  You have found an issue and are now dealing with it to avoid possible problems in the future.  Some of us went 15 - 20 years undiagnosed and were on our way to the grave at the time of diagnosis.  


Cheer up, eat well and be happy.



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#917313 So Frustrated Not Better Yet

Posted by on 23 May 2014 - 07:52 AM

My downfall is Snickers Bars.  In my defense, I do make one bar last 3 days  :D  I remember as a kid I would have cinnamon and sugar toast all the time.  It was total yummies then but now it would make me Urp.... :ph34r:


Thank you for your kind words and I wish you and your MIL and your family well also.



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#917296 So Frustrated Not Better Yet

Posted by on 23 May 2014 - 07:23 AM

I see you guys here giving sugar a bad rap.  I think you mean High Fructose Corn Syrup and other sugary concoctions may be troubling you.  Everything in moderation.  If I happen to eat a piece of cake with frosting, my stomach will complain and I will get C.  For me, that does not mean I am intolerant to it, it just means I ate to much at one time.  I eat a very low sugar diet anyway because I have cancer but I don't avoid it completely.  Like one of you said, if you don't eat sweets for a length of time you won't crave sweets any more.


Carry on with the sugar bashing... :P



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#917291 How Do You Emotionally Deal With Setbacks?

Posted by on 23 May 2014 - 07:09 AM

I haven't.  I've never actually made acorn squash...as much as I cook.  I think it intimidates me.  LOL!  How do you cook it? I would love to have something else to try.  Thanks!


Wow.  Squash are the bomb.  Ok.  Get a nice Acorn Squash, they are orange and green, I like some good orange color on the rind.  Knock on it.  Should sound a bit hollow, it has seeds.  Wash it good, cut it long ways thru the center.  put about a 1/4 - 1/2 inch of filtered water in a baking pan.  put the two halves, cut side down, in the pan and bake at 350 or so for about an hour.  When done the squash will be nice and soft.  I eat mine plain but some people put some butter and cinnamon or brown sugar sprinkled on theirs.  I think they taste great by themselves.  Another one is Spegetti Squash.  This one you cook and then you can use a fork and run it down the sides to make a linguini type string.  Season to taste.  Over on the "What's for Dinner" thread, they make Zoodles.  I think its zucchini made into noodles.  The members on the dinner thread know how to make any kind of food into all kinds of different ways.  You should check it out.



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