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Member Since 16 May 2012
Offline Last Active Oct 08 2013 04:34 PM

Posts I've Made

In Topic: Help With Results...

07 February 2013 - 06:51 PM

That was my feeling Mushroom. She has been living in a gluten-free house for 5 months now, but I did give her one serving of gluten a day, plus she had gluten when we went out. I still worried it was not enough though although the GI doctor said it just had to be a serving the size of her palm.

My older daugther was originally tested by a naturopath at 2.5 so perhaps I will try that and see what those tests say (different than what they do at the hospital). I will make sure to really gluten her up for 6 weeks?!

In Topic: Gluten Free For Three Weeks...major Improvements!

16 January 2013 - 12:26 PM

What a wonderful post! I have also noticed a HUGE difference in how my 5 year old daughter is feeling emotionally. Previously she would have horrible tantrums and become totally unreasonable and we just couldn't understand why. It is amazing how since being gluten-free all that unreasonableness and irritability are gone.

Hope you see some good weigh tgain over the next few months!

In Topic: Diet When First Going gluten-free For A Very Sensitive To Cc Child

16 January 2013 - 09:21 AM

Since you are just starting out, it might just take some time. It can also take some time to learn all the ins and outs of the diet. In a shared household there are precautions that you can take with separate counters, toasters, certain dishes like colanders, etc. How careful are other family members about gluten crumbs? We tried everything for a year and then we decided that we had to have a gluten free household. It will depend on your daughter's level of sensitivity. It may be to soon to know yet. Healing can take awhile too.

My son and I are both in the super sensitive category. We also had to go with mainly whole foods diet. It is easier to avoid possible cc that way. Good luck to you. I remember those gluten tantrums!

Thanks for the reply. Our whole house is gluten-free. My mom's is not nor is the daycare providers since no one has celiac in those families. I know my mom is super vigilant and the daycare provider is careful too, but maybe my daughter is just that sensitive...

I think we will put her on a whole foods diet (we already mostly eat whole foods but could step it up) and not let her eat anything from other peoples homes for a while.

In Topic: So Frustrated... Daughter Keeps Getting Glutened.

16 January 2013 - 09:17 AM

Thanks so much for the replies. We mostly eat a whole foods diet and don't eat out at all (except for that one smoothie). I feel like we are so careful. I think maybe we need to go to basically 100% whole foods though. I was reading about people having to replace pots and pans etc. I wonder if she could be sensitive to things cooked at the home daycare and at my moms. I really didn't think it would be this hard. I had a student with celiac and she was not like this. Once she accidentally ate non-gluten pizza and said she just got a bit of a tummy ache. I suppose at least this way we know she is getting hidden gluten instead of being unaware.

In Topic: Would Testing Be Worthwhile?

15 January 2013 - 10:32 AM

In my opinion - testing is always worth while - of course it is most accurate if consuming gluten and that should happen if at all possible.

Again IMO get all the blood data you can at every draw with young children especially - all nutrients and full celiac panel along with CBC & CMP - for us it is all about distraction - the first stick is the worst - read, sing, turn cart wheels if needed to distract little ones.

Not sure if you are close to Toronto but could you get your doctor to refer you to the GI clinic at Sick Kids? I wish we had done that first... the wait list was pretty long. It might be worth it to try and get in there.

If you do the full panel that is great but if you are going to choose between TTG and EMA go with TTG (if you think you will end up at Sick Kids). My daughter had to be retested because even though her EMA was strongly positive, at Sick Kids they use TTG. FYI testing is free at Sick Kids but they don't do a full panel.

Another frustrating thing... my daughter got her blood test in May but it wasn't until October that she had her endoscopy and we could go gluten-free.

My other daughter is currently going to get tested and I have been giving her one small serving of gluten a day. The size of HER palm is enough apparently.. according to Sick Kids.

I am SO glad that we went through all the emotional and )for my daughter) physical pain to get a proper diagnosis. It was a hard 6 months but was worth it. Now we will have follow ups at Sick Kids and had access to their dietician.

Good luck!

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