Jump to content

Follow Us:   Twitter Facebook Celiac.com Forum RSS      

Get email alerts  Subscribe to FREE Celiac.com email alerts
arrowShare this page:
Subscribe Today!

Celiac.com Sponsor:
Celiac.com Sponsor:


Member Since 16 May 2012
Offline Last Active May 22 2015 09:45 AM

#886753 How To Decline Food?

Posted by on 31 August 2013 - 08:49 PM

 I dunno, maybe I'm weird or something, but I don't hesitate to tell anyone why I can't eat their food.  I'll say, "No thanks, unfortunately that type of food will make me sick."  Of course it leads into other questions, but I'm not embarrassed or ashamed (I'm not suggesting that the OP or any of us are) and frankly I take every opportunity to educate someone on Celiac.  If my two minute conversation could potentially help someone recognize their own symptoms (or the symptoms of a loved one) and get them help, then its all worth it for me.  This is a very misunderstood disease and diet and I feel satisfied when I can correct information.  Its all about confidence.  If you explain Celiac with confidence, my experience has been that people listen better and accept what you're saying - the conversation also doesn't turn into a pity session or "oh my god I feel so bad for you."  Yes I have Celiac, no, I cannot eat your food, and we can move on with the conversation....it also prevents the same food offerings at future events with these people.


All that being said, I'm not suggesting that everyone should go out with their "I'm a Celiac" t-shirt on and start preaching on street corners.  It's all about your comfort level and if you even feel like explaining it that day (there are some days where I'm either tired or annoyed and I just decline food without saying anything else).  I just wanted to share because I've never had a negative reaction for sharing why I couldn't eat someone's food - in fact it only led to more understanding on their part.    

  • 2

#885554 Nightmares - Glutened In My Dreams!

Posted by on 23 August 2013 - 08:42 PM

Oh I've had those dreams....I had a terrible nightmare where I picked up a big slice of pizza and shoved it in my mouth....then I "remembered" that I had Celiac and I began to cry and panic...


I explained to my friend the next day that most people would consider a dream about eating pizza a very good one - its funny to me that its probably our worst nightmare!

  • 1

#885252 Blood Test Negative For Gene Terrified Of Endoscopy

Posted by on 21 August 2013 - 08:29 PM

So sorry that you've gone through this much!  It definitely sounds like you've been through a lot and so many people on this forum feel your pain.  As far as the endoscopy goes, just as Belle said, its simple and there is no pain involved whatsoever.  You don't even realize that it was done - I've had two and I would take that ANY DAY over another colonoscopy.  :)  But I understand that the gluten challenge is provoking anxiety for you.  


Silly question, have you ever tried taking a Benedryl or other anti-histamine medication when you break out from these topic exposures?  If so, what happened?  If you were having an allergic reaction, an anti-histamine would have provided you with at least some relief.  Keep in mind that you could potentially be ingesting the gluten from the shampoo/makeup by touching your mouth after handling the gluteny items.  


And you said that you had the genetic test for Celiac?  So you tested negative for either the DQ2 or DQ8 gene?  If that's correct, then its my understanding that you cannot develop Celiac disease if you do not have this gene.  (someone correct me if I'm wrong).  My gene was lovingly passed down from my mother (who does not have Celiac, lucky duck)  Regardless, like Belle said, you could still have NCGI and should still take that very seriously.  


Another thought that I had was that your eczema could be a well known symptom of Celiac called Dermatitis Herpetiformis (see that section of the forum).  A small skin biopsy (when the eczema is pronounced) can be done to test if you have Celiac.  This may limit the possibility of having to do a six week gluten challenge.  But remember, if that biopsy comes out negative, it could mean its just eczema and there still is a potential for Celiac.


Bottom line is that you feel better off of gluten, and you dont need anyone with a fancy medical degree to tell you that.  I know its hard to be taken seriously by doctors when its not in your file, but you could always get around that by talking to the pharmacist directly before the prescription is filled and saying that you are allergic to gluten - they will not check your medical file, trust me they will believe you, they just want to make sure they wont give you something that will kill you.  I told my pharmacist after she's known me and given me my medications for many years (I was only diagnosed a year and some change ago) and she didn't question it one bit.


Where are you from?  You could always head over to the "Doctor's" section of the forum and ask if anyone could recommend a GOOD doctor in your area.  Best wishes to you!!    

  • 1

#859069 Gluten Reactionary Symptoms And Remedies

Posted by on 17 March 2013 - 08:26 PM

My symptoms include bloating, either constipation or D, extreme fatigue, and lots of joint pain.  Drink lots of water, eat rice (or other dry, bland food), and I agree with the heating pad - always helps relieve the cramping type pain for me.  Digestive enzymes and probiotics will help heal your gut and will help with the infamation - its probably best to take these on a daily basis anyway.  Feel better!!

  • 1

#858603 Finally Some Excellent News...

Posted by on 14 March 2013 - 05:06 PM

Finally some good news - after an unexpected, shocker diagnosis on May 3, 2012, many dietitian appointments, 2 endoscopies, 1 colonoscopy, 1 capsule test, and a partridge in a pear tree later, I finally got the news from my GI doc that my TTG levels are within normal range and an intestinal biopsy confirmed that my villi have returned back to normal!!!  The good news seems surreal after so many bumps in the road...


I didnt write this to brag - rather to lend some support to those of you who may be struggling or thinking that things cant get better.  It hasn't been easy - and this is coming from a girl who lived off of chicken fingers, pizza, and macaroni and cheese for most of her life.  Yes, I had to change most of my lifestyle habits, and yes, there have been many accidental slip-ups, tears, and feelings of anger/frustration along the way.  But it DOES get better....thanks to everyone on this forum who have listened to me vent, provided support when I needed it, and helped me get on the road to being healthy.  I'll be sure to continue to return the favor where ever possible!! 

  • 2

#849018 Help, Wanting To Drop Some Weight/sweet Tooth Is A Problem

Posted by on 17 January 2013 - 03:32 PM

Hey Chrissy,
I have always had a sweet tooth too! I cant do much with the "sweet suggestions" unless you can do apples, dried cranberries, and raisins - if so, I have a fantastic recipe for something thats healthy but sweet. In terms of losing weight - I've had a lot of success on the Primal diet. Its a no carb, high protein//veggie/healthy fats diet and its really worked for me. There's a website you can go on to get some recipes - marksdailyapple.com. Once you get over the hump of not having carbs you dont crave the sweet stuff as much anymore - and for someone like me to say that, thats a lot!!!! You drop weight and build muscle fairly quickly, plus you're eating good foods. I started a thread on it in this section a while ago - you may want to refer to it because there were some great suggestions in there for others doing the Primal/Paleo diet. Hope this helps!!
  • 1

#845235 How Does This Happen?

Posted by on 27 December 2012 - 08:33 PM

From what I've read on here and other places, it seems to be general consensus that any kind of major body stressor can trigger Celiac - surgery, major illness, pregnancy, stress - it compromises the autoimmune system and can trigger the autoimmune response to gluten for someone with the genetic predisposition. I had anemia for years but no GI symptoms until the end of April this year when I had three nights of incredible stomach pains that led me to the GI doc - blood test was immediately run and there you go, I was diagnosed with Celiac. Even though I had anemia for years, I'm guessing the flu 10 years ago triggered everything for me but the GI pains suddenly came on fast and strong. Hope this helps!
  • 1

#834432 Cheating When On A Gluten Free Diet

Posted by on 04 November 2012 - 08:31 PM

Do you have Celiac? Gluten intolerance or allergy? I'd never dream of purposely cheating on my gluten free diet. Even a small amount now makes me feel so terrible that I couldnt imagine what I'd feel like if I had eaten a whole slice of bread. Also, if you do have Celiac (the autoimmune response) and you keep "cheating," then you run the risk of developing other serious health problems. Is pasta, cookies, or bread every once in a while worth developing more health problems? If you have a craving for something there's usually a pretty good gluten free substitute that will calm your cravings without making you sick - you just may have to hunt around for it.
  • 1

#831265 Nail Salons And Hair Color

Posted by on 21 October 2012 - 07:58 AM

Hello! 2 weeks ago today I found out I have celiac disease. I am gluten free (to the best of my knowledge) since then! :) I have noticed a big difference in that I have no more bloating, gas and much less heart burn/stomach pain (it is still there but less than before). I am thrilled to be on this new journey to feeling better! I have been very discouraged to hear about gluten being found in cosmetics, lotions, and shampoos! I am trying to figure out what cosmetics I am using contain gluten and starting the switch to gluten free. My question has to do with hair color (yes I am only as blonde as I pay to be haha) and acrylic nail tips (pink and white, solar, etc). As a stay home mom, I don't do much for myself, but do allow that when I can and would hate to give them up! My question is really this... is there any proof that glutened hair color or getting your nails done will actually harm your intestines? If there is only trace amounts of gluten in these types of products that can actually be ingested into your system, I would like to continue with it (unless of course I got really sick). Does anyone out there have input? I so appreciate it. This gluten free life is very overwhelming. It's EVERYWHERE and it's hard to know how to function normally and be safe. Thanks for any input!

Hi Daisymae! Welcome to the forum!! I also dye my hair and get my nails done regularly and I haven't had any issues. I use the UV gel when getting my nails done and I don't think there would be a huge difference between them and acrylics but I've done both with no problems - and my blood levels have come down dramatically since going gluten free, so its not preventing me from recovering.

As far as makeup is concerned, I did switch my makeup because I do tend to touch my face a lot during the day and have the bad habit of putting my hands near my mouth. I switched to Bare Essentials and their entire product line is gluten free (and fantastic makeup by the way!). It can be a bit pricey but it lasts a while, makes your face look great, and its reassuring that I'm not ingesting gluten. I even use their lip gloss which I love. You can find it pretty easily - they sell it at Sephora and even have their own stores in the mall now. Its definitely worth the investment.

I understand how overwhelming it is and we tend to become paranoid about everything once we are diagnosed, but I promise you will get the hang of it and it won't seem so daunting after a little while. Plus, you have this forum to vent and ask questions!! I can't tell you how helpful its been for me!! Best wishes to you!!
  • 1

#829557 Great Test Results!

Posted by on 13 October 2012 - 02:51 PM

I was diagnosed in May 2012 and just recently went back for my 6 month-ish follow up - the doc decided to run my Celiac panel again while he tested for my chief complaint of fatigue and increasing joint pain. I expected my TTG (was originally 100) to drop down to about 60 which I would have been very happy with given that I've had a few common rookie mistakes along the way. But the results came back and my TTG level was 13! I was shocked!! This has given me more motivation than ever to get those levels to an even better place and it let me know that I'm doing something right which is such a relief....I am going to ask for a copy of my results because they said my IgG and IgA levels were still high, so I'll post them on here because I'm a bit confused on how to interpret them.

The other shocking result is that my iron levels were fine - which surprised me because I was almost positive that it was the culprit in my increasing fatigue. I battled lowered iron levels since 2004. My vitamin levels are fine, thyroid is fine, so I'm not sure what else it could be. Any suggestions? I'm going to be getting a bone density scan on 10/29 which could (hopefully not) be the cause of my joint pain, and then I guess we'll take it from there.

I wanted to thank everyone on the forum for their suggestions, advice, tips, and unwavering support, not just for me but for all coming on here looking for some answers. It helped me so much and I completely attribute my healing to this site. I don't think it would have happened otherwise. Best wishes to everyone!!!
  • 2

#825566 Do You Ever Cheat On Your Gluten Free Diet?

Posted by on 25 September 2012 - 07:33 PM

NO WAY!!!! I'd never intentionally cheat - its the same thing as going into your garage, grabbing a bottle of antifreeze, taking a sip and saying "ok, a little bit won't hurt!" Please believe me when I say that when you are gluten free for a while and then accidentally get glutened, you will NEVER consider cheating purposely again. Is a cookie or pizza worth D, vomiting, migraines, fatigue, rashes, mood swings, and uncontrollable pain? (I dont know what your symptoms are, I'm just throwing out a few) Plus if you continue to cheat you put yourself at risk for other autoimmune diseases and issues with other organs.

I'm sorry if this sounds harsh, but nothing is worth doing that to your body. There are plenty of gluten free replacement foods that taste just the same, if not better, than "regular" foods. There are two dedicated gluten free bakeries near my house that make cookies, cakes, pizzas, raviolis, breads, etc that are to DIE for. In fact, my family now eats this bakery's goodies because they are that good. Your favorite foods in gluten free versions are out there, you just have to look for them.
  • 1

#823782 Just Diagnosed

Posted by on 16 September 2012 - 06:45 AM

Welcome to the forum! Yes, it is very scary when you first get diagnosed and dont know where to start. Please believe me when I say that you get the hang of it eventually - now I can go into the fridge without thinking and just know what I can pull out. I do have a couple suggestions that others have given to me and have been helpful...
- Remember the acronym BROW-M. Those are the things we cant have - Barley, Rye, Oats, Wheat, and Malt. On every food made in the USA it will tell you under the ingredients if it has those things in it. Also, many of us cant tolerate soy, corn, and diary (especially in the beginning). My suggestion is to cut dairy out for a little while until your gut heals more (unless you can tolerate it well).
- Since you've been so sick, I wouldn't go buying and eating a lot of gluten free replacement foods like pastas, breads, cakes, cookies, etc. They may be too hard on your gut right now. Someone said it really well when they said to me, "Stick to the outside perimeter of the food store," meaning fruits, veggies, meats, chicken, cheese, nuts, etc. It will be easier on your gut without all those processed foods. Plus, the processed gluten free foods are typically higher in calories, carbs, and can make you gain weight if you're eating a significant amount of them. Plus, they are pretty expensive.
- Read the Newbie thread at the top of the page, its incredibly helpful and will let you know what appliances and items in your house will likely be culprits for cross-contamination.
- Expect that you may feel a little worse before you feel better. This seems to be normal among us and we so lovingly refer to it as "gluten withdrawal." It can last a different amount of time for everyone but it will get better and you will start to feel fantastic if you keep eating gluten free.

The good thing is that they caught it now and you've been diagnosed. That seems to be the hardest part for most people. If you keep reading the threads you will see that many people on here have been sick their entire lives and hadn't been diagnosed until well into adulthood. Now you can get yourself back on track and it WILL get better. Its so nice to hear that your fiance has been so supportive and willing to help. My fiance has been wonderful too and although he hasn't gone gluten free (I didnt make him) he rarely eats gluten anyway so its not that big of an issue. Keep asking questions and always feel free to vent if you're having a hard time! Best wishes to you!!!!
  • 1

#822276 Gluten-Free Dating?

Posted by on 08 September 2012 - 06:24 AM

I didnt have to go through this since I was diagnosed after being engaged (it was a shocker!). But as a female your age, I have a couple suggestions. Sure, it would be easier to avoid food related dates at the beginning, just to see if you're compatible and want to take the relationship further. You also may be able to weed out who would be understanding of our situation.

But eventually food will come up, especially if you're spending more than a couple hours with her - food will be a necessity and it may seem odd if you're always mysteriously avoiding getting something to eat. My suggestion is bring it up earlier rather than later - the more casually you discuss it the less it will seem like a major issue. One thing you can do is get the app on your phone "Find me Gluten Free" or "Gluten Free Registry", and before you go on a date, look up gluten free restaurants in the area so if she asks to get food, you'll automatically know where you can go to eat. Casually ask for the gluten free menu and then begin another topic of conversation. If she asks about the gluten free menu, tell her you have food allergies (its easier to understand and tons of people have food allergies) and then if the relationship progresses then you can get into more detail about the Celiac. Just watch what she eats/drinks, cause if she starts chugging down a beer, then the kissing/cross contamination becomes a factor.

Again, from a girl's point of view, the more casual the conversation is about it the less it seems like a daunting issue. I would think nothing of a peanut or shellfish allergy, and gluten would also be the same. If she asks questions about it, definitely answer them, but keep the casual tone. There ARE girls out there who would understand, just like my fiance hopped on board as soon as he found out my diagnosis.

I hope this helps! Good luck!!
  • 1

#821583 Suffering Depression - Medication Question

Posted by on 04 September 2012 - 04:50 PM

I also have Celiac but I'm a mental health therapist for adolescents in a psychiatric hospital. Please know that anti-depressants take AT LEAST 3 to 4 weeks to start having an effect because it needs to build up a therapeutic level in your system. There are side effects that your doctor should make you aware of, and I am not a fan of regular physicians prescribing anti-depressant medications. They dont know enough about it and often prescribe inappropriate doses. They should be leaving it up to psychiatrists or psychiatric nurse practitioners who need to rule out other conditions first, like Celiac as a probable cause. I agree with the other posts, Celiac AND/OR Celiac withdrawal can cause depressed symptoms and I'd give the gluten free diet a good try before you start exposing yourself to anti-depressants. Some of the side effects of anti-depressants are decreased sex drive, weight gain, dizziness, constipation, nausea, etc....how severe are your symptoms??
  • 2

#820412 The 100% Positive Thread

Posted by on 29 August 2012 - 01:47 PM

No more acne, no more chest pains, no more acid-reflux - and best of all, I've been able to lose all that stubborn weight that wouldn't come off before!!!! 16 pounds down and a couple more to go!!!! I'm going to look great for my wedding next year!!!
  • 1

Celiac.com Sponsors: