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roxieb73

Member Since 22 May 2012
Offline Last Active Nov 07 2012 12:37 PM
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Posts I've Made

In Topic: I Got Gotten

14 August 2012 - 01:14 PM

Not just Kix... when I was lamenting about putting up with my husband's whining about how there are no kid's cereals for him someone turned me onto Trix! For kids my butt... Trix are for celiacs.


Ohhh good one for when I get the need for a sugar fix. :D Yummy!

In Topic: I Got Gotten

14 August 2012 - 12:21 PM

Are you sure it was the chicken soup that glutened you, and not something before you started feeling ill with that bug?

I was glutened for the first time last week, and it started with what I thought was a bug. After a couple of days those buggy symptoms went away and were replaced with more typical gluten stuff, like stomach issues, headache, disconnected feeling, and anxiety. It's taken a few days, but I'm about 75% better now.

At first I thought it was two separate things, but now I'm convinced that the two were related because I'm absolutely sure I ate nothing that could have glutened me while I was ill with the flu-like stuff.


I had a very similar experience. I really thought I had the flu! High fever and all.... then I realized it was a gluten reaction. :(

In Topic: Genetic Test Results - I Admit Defeat

14 August 2012 - 11:02 AM

This is very close to my typing. You are Double DQ1 subtype (6/6) More prone to Neurological gluten problems.... such as Gluten Ataxia, peripheral neuropathy ect....

In Topic: How Bad Is Cheating On The Gluten Free Diet Periodically

14 August 2012 - 10:36 AM

I don't/won't ever cheat. That is not to say I won't accidentally ingest gluten but never on purpose. I truely believe if we had not figured out that I have Celiac I would have been dead within a year. I am getting so much better and the suffering I endure is just not worth a piece of cake or whatever. When I am tempted I just ask myself..... "Do you really want that piece of bread or do you want to be able to walk?" If you ask me it is a no brainer! I accidentally ingested some gluten a week ago....... It was awful! I was in so much pain I stayed in bed for 3 days, ran a fever of 103.4, I could barely walk to the bathroom. It took almost a week to recover. Not worth it for me.

In Topic: Let's Post Our Celiac Genes - Everyone Join Plz !

20 July 2012 - 10:55 AM

DQ1/DQ1 (subtypes 5,6)
Negative blood
No intestional biopsy
Rash biopsy DH or Lichen Planus (they aren't sure which but both autoimmune gluten reactions)
Too many symptoms to list but most severe being Osteomalacia. I have Iron defcient anemia, and critically low vitamin D, elevated Liver Enzymes etc....

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