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PersianCeliac

Member Since 23 May 2012
Offline Last Active Sep 18 2013 05:39 AM
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Topics I've Started

Follow Up Endoscopy After Gfd ?

14 September 2013 - 11:41 PM

Hi Everyone,

 

My mom (49 years old) was diagnosed with celiac 1 year and 4 months ago, she didnt have symptoms but since my aunt was diagnosed she had the test too and turned out she had celiac and endoscopy showed marsh 3b. She has been on a gluten free diet since then. Her repeat blood work 9 months after GFD showed normal results but only ttg was borderline (down from >800 to 10) . I was wondering when she should go for a repeat endoscopy to check her intestines for healing as i have read so many people go after one year and are still not completely healed since it takes time. Has anyone here gone for a repeat endoscopy? and if so, after how long and what were your results ?

 

From what i have read i feel she shouldnt go for a repeat endoscopy unless atleast after 2 years especially because she had extensive damage and she has the highest risk genes DQ2.5 AND DQ2.2


C Reactive Protein (Crp) And Celiac

13 August 2013 - 08:47 AM

hi everyone, i was wondering if anyone else had their c reactive peotein (CRP) measured at diagnosis and after going gluten free. I never had mine measured before diagnosis but after almost a year gluten free my crp is 1.7 on a normal reference of 0-3 and my celiac antibodies are all normal now after being waaaay off the chart. I wonder if the crp number is good or what so please share your experience.

Anyone With Second Endoscopy After Going gluten-free ?

14 April 2013 - 06:11 AM

my aunt had her follow up endoscopy recently after one year gluten free and a biopsy sample was taken
she was diagnosed witj celiac after having symptoms for 16 years and her initial endoscopy showed scalloping in all three parts of duodenum and her biopsy showed severe atrophy marsh 3C. now after 1 year gluten free strictly her endoscopy shows first part of duodenum is now normal but second and third parts still still show scalloping which is a sign of villous atrophy we are now waotong for biopsy results. i was wondering if anyone had a similar experience or how long it took for ypur intestine to heal ? i am worried that she still has damage even on endoscopy after one year gluten-free.

Genetics And Celiac Symptoms

12 March 2013 - 04:46 AM

Hii Everyone, does anyone here have double copies of DQ2 ? And if so would you say your extra sensitive go gluten like some studies suggest ?

My Dear Mom's Follow Up Results After Gfd

26 February 2013 - 10:46 PM

Hii Everyone, my mother 49 years old was diagnosed with celiac disease 9 months ago with no symptoms but since her sister was diagnosed we decided to check her too. Her results were off the chart !!

This was her blood work 9 months ago:

 

Gliadin Antibody IgG >800 (normal < 12 U/ml)

Gliadin Antibody IgA >800 (normal < 12 U/ml)

tTG IgA >800 (normal < 8 AU/ml)

Endomysial Antibody IgA POSITIVE

 

Her genetic test was DQ2.5 and DQ2.2 double genes !

 

Her endoscopy showed subtotal villous atrophy Marsh 3B.

Since my mom doesnt know much about such diseases and doesnt use the internet and so i became her personal doctor lol ! i took her to take all these tests and was educating her about GFD and buying her Gluten Free things whenever possible i was so strict that she would send me a picture of the product when she was traveling just for me to check that the ingredients didnt include gluten lol. I am her eldest 25 year old daughter and i love her soo much and her health is a priority to me. The problem is we live in a gulf country called Bahrain with complete ignorance about celiac they would actually laugh at her if she said she cant eat bread ! so it was so difficult for me to make sure she avoids gluten and realizes how important this is especially because she is double DQ2 and we rarely find gluten free items here ! Now after 9 months i decided to take her for a follow up test to see how well she was doing this is the result:

 

Gliadin Antibody IgG 9.6 (normal < 12 U/ml)

Gliadin Antibody IgA 3.5 (normal < 12 U/ml)

tTG IgA 8 (normal < 8 AU/ml)

Endomysial Antibody IgA NEGATIVE

 

I am so happy for her and soo proud of her ! i just wanted to post this to encourage all you celiacs out there and share this good news with you. God bless you all and i wish everyone and speedy recovery and fabulous results.

 

Fatima R