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Member Since 23 May 2012
Offline Last Active Mar 08 2013 08:24 PM

Topics I've Started

Hold Over Behaviors

28 August 2012 - 06:16 PM

I am so frustrated I could scream!!!!!!!!! My daughter is exhibiting what our pediatrician referred to as hold over behaviors. Since she has been sick for so long now that her body feels better she exhibits behaviors of age 2 & 3 again. Like she is re-testing the efficacy. Our pediatrician said to expect this after she was finally diagnosed Celiac. I can't believe it's true but it is. My daughter has started to act like a 2 year old again. She gets out of her room 20 times at bed time and she screams in my face. Behaviors that were gone and are now back! I can't believe it!

It's so hard. Has anyone else experienced this?

Another Step Backward

19 June 2012 - 06:57 PM

Daycare let my kid eat a donut yesterday. I haven't really explained to my child the reason we are eating different, I have been just trying to replace things in her diet to keep it normal. So yesterday when daycare put bowls on the table with donuts in them my daughter grabbed a bowl as she always had and she starting eating. It was 2 bites but we are back to square one. I am so disappointed. We were 2 weeks in....=(

Should I explain it to my 3.5 year old? Or just keep replacing? How do you have this conversation?

Helping My Husband - Cope With gluten-free

13 June 2012 - 07:05 PM

Does anyone have any tips for helping my husband cope with becoming gluten free?

A couple of weeks ago we started gluten-free for our daughter and the results have been amazing. I am also convinced my husband's EXTREME fatigue, bloating, gas, etc is caused by gluten. I have been pushing him to trial gluten free and he has been really reluctant saying I love my apple fritter, etc. Really the reality is he is LAZY! He doesn't want to think about these things when he by himself. When he is home he automatically gluten-free because the whole house is.....and he doesn't want to deal with asking when we are out. Causes anxiety or something for him.

I offer to make him some of his favorite things like donuts and other treats but he just seems to be having a hard time coping. Bare in mind he grew up with a mom with Celiac for the past 20 years in a country (Ireland) that was not really well equipped with alternatives so he has a history of 'hating' the process and disease already.

Any thoughts or ideas how I can help him past this I really appreciate it.

I went gluten-free 2 weeks ago with my daughter, I feel fantastic, I have lost 10 lbs and I feel like I have more energy and I am more awake.

I want him to get there....

The Waiting Game

23 May 2012 - 01:35 PM

Hi -

I am looking for thoughts, my daughter had a biopsy on Monday and we are waiting for the results of the biopsy. Last week her TTGA came back at 12.8 and her IgG came back at 7.1. Our pediatrician is very concerned however the GI specialist made me feel like I was stupid for being concerned or worried about this. My husband is also in the process of getting tested his TTGA and IgG came back negative and the GI wants to scope him anyway.

We have a family history of Celiac. My husband's mother has been a Celiac for 20 years and as my husband's GI said, Ireland (where he is from) is a hot bed for Celiac disease.

I can't wait any longer, why do these test results take so long? Can you have an elevated TTGA and IGG and not have Celiac disease?

If the biopsy comes back negative would you still do a celiac diet?

My daughters symptoms include: constipation, weight gain, severe distention and bloating, she is otherwise a normal health 3.5 year old.


A mother who is DONE waiting!

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