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Member Since 31 May 2012
Offline Last Active Jun 19 2013 06:21 PM

Posts I've Made

In Topic: gluten-free Diet & Exercise

18 June 2013 - 08:39 AM

Thanks to everyone who replied. To answer why I am on this diet, I was instructed to do so because I couldn't clear my rash and the dreaded GI problems for some reason. It reappears if I re-introduce gluten free grains. My hope is to only be on it for another 6 months to a year then try to re-introduce again. I have become super-sensitive to food. I assume because I was misdiagnosed for so long. My sister and I have horrible neurological problems from gluten so I wonder if our brains and bodies are on hyper-drive when it comes to even trace amounts of gluten. But I am hopeful that my body get with the regular gluten free program because this diet SUCKS -so difficult!


dilettantesteph: food dehydrator! I hadn't thought of that because dried fruit isn't allowed but I assume if you do it yourself it would be ok. Thanks! I only get very limit amounts of diary because of a diary intolerance. (D'oh, stupid food intolerances!!)

In Topic: Failed University

23 September 2012 - 06:19 PM

Hello there! I was in a very similar situation when I was working on my undergraduate degree. I wasn't diagnosed at the time but had a horrible year. I moved across the USA (from my parents' home in the West to attend school on the East Coast). I moved into an apartment dorm. I didn't have enough money for a meal plan and my parents refused to buy me one. I got a work study job and had exactly $5 a week for food. This means I ate a ton of pasta and cereal! I also had 3 roommates who would give me beer. Holy gluten, Batman! I fell apart by the end of the semester! I got very sick with pneumonia. The depression and anxiety was insane. The university medical center put me on Paxil. I was a total mess by the end of the semester! My grades were not good. Total mess!

I really cannot speak to your ASD. My niece and nephew have Asperger's and I doubt they will ever be "cured". But what I will give you is some hope regarding school. I had to take a year off from school. I ended up going a lower tier university once I got my health back on track. I ended up graduating Summa Cum Laude. I got into a pretty good graduate program! I earned my MA. Don't give up! You can turn it around. It takes a lot of work but it can be done. When applying to another university, I would absolutely discuss your issues with admissions. Explain what happened. When you get into another university, please talk with dining services or try to find an off campus roommate situation, if you can swing it. Some universities also have graduate student dorms, which are apartment-style. I would investigate if you could get into one of those so you are able to cook on your own.

In Topic: Will My Daughter Be Able To Have Children Of Her Own With This.disease.

25 August 2012 - 03:59 PM

I just posted on another thread but my sister and I have kids and went through pregnancies without being diagnosed! We weren't gluten free while pregnant because we didn't know. Having children with Celiac disease is completely possible. My sister has 3 kids and I have 2. In both our cases, only one child has celiac (both boys).

In Topic: Will Nutrients Still Get To My Baby If My Body Doesn't Absorb Nutrients P...

25 August 2012 - 03:52 PM

Smart decision!! My sister and I both have Celiac disease and went through multiple pregnancies without knowing. Our pregnancies were hard and high risk and our children have numerous problems (autism, apraxia, MERLD, heart condition). While we have no *proof* that the Celiac caused any of the disorders, I think science will discover that it is really bad. I know a neurologist at Children's Hospital in Washington, DC who is researching pregnancies with undiagnosed Celiac. So far, he said his preliminary findings were very troubling.

In Topic: I'm Terrified Of This Dx... :(

25 August 2012 - 03:41 PM

Hang in there. It is an overwhelming diagnosis but it gets easier! Once you start feeling better life is awesome. Your energy levels will be through the roof. There are so many gluten free breads now too. Costco even carries a brand now!